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The Long and Winding Road…

~ An Alzheimer's Journey and Beyond

The Long and Winding Road…

Author Archives: Ann Napoletan

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Don’t ever forget it…

05 Friday Apr 2013

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Posted by Ann Napoletan | Filed under Inspiration

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The BRAIN Initiative

04 Thursday Apr 2013

Posted by Ann Napoletan in Research, Washington

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Big, big news for Alzheimer’s and related dementias. Very, VERY proud of our Administration for recognizing a critical need; it would seem the passionate ongoing efforts to increase awareness are yielding benefits.

Referring to it as “the next great American project,” yesterday, President Obama introduced the country to the BRAIN Initiative (Brain Research through Advancing Innovative Neurotechnologies). This $100 million initiative will focus on developing and using new technologies to study the most intricate workings of the brain.

Obama said, “As humans we can identify galaxies light years away, we can study particles smaller than an atom, but we still haven’t unlocked the mystery of the three pounds of matter sitting between our ears.”

Dr. Francis Collins, Director of the National Institutes of Health, underscores the importance of studying the brain pointing to the billions of dollars being spent on health care for not only Alzheimer’s and other dementias, but also conditions like autism, stroke, epilepsy, and traumatic brain injuries.

Watch the President’s full speech in the video below, and read more about the initiative in this article from CBS News.

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StoveTop FireStop

03 Wednesday Apr 2013

Posted by Ann Napoletan in Products, Safety

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I remember it like yesterday. My mom was still living independently, and safety was becoming more and more of a concern. It’s so difficult to know when it’s time to broach the subject of assisted living when you’re dealing with someone who would rather die than give up their independence.

You begin to think – if I take away her freedom and independence, am I killing her in the most cruel way possible? Yet, you know there are safety issues, so you prolong the inevitable by finding ways to “dementia proof” the house.

One of the most common areas of concern is the kitchen, specifically the possibility of starting a fire on the stove.

I just learned about a product that may help provide some peace of mind. It’s called StoveTop FireStop; aka “Fireman in a Can.” The FireStop is mounted under the range hood and is automatically activated when a flame reaches it. Upon activation, a powder fire suppressant is released to extinguish the flame.

Make no mistakes, there comes a point when even something like this isn’t enough; the risk simply outweighs any and all possible safety measures. But, if you’re at a point where you feel your loved one can remain independent for awhile longer with some safeguards in place, StoveTop FireStop may be worth a try. It’s definitely something I would have considered for Mom.

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Marilyn, BA (before Alzheimer's)

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