UsAgainstAlzheimer’s National Alzheimer’s Summit: Don’t Miss It!

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Due to COVID-19, this year’s UsAgainstAlzheimer’s National Summit is a FREE virtual experience jam packed with outstanding speakers and topics!

The event will be held Oct 19-21, and you can attend all sessions, or choose the ones that interest you the most. Registration is still open; just visit http://www.usa2summit.org to register – you don’t want to miss this fantastic conference!

Marilyn’s Legacy is honored to be an ambassador for the 2020 Summit.

10/25/20 UPDATE: All sessions are now available to view on demand at https://www.usa2summit.org/.

Happy 84th Birthday, Mom.

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On October 12, 2020, my mom would have celebrated her 84th birthday. When I see healthy, vibrant seniors around that age, I can’t help but imagine what Mom would have been like if Alzheimer’s hadn’t gotten in the way.

In the eight years since her death, we’ve come a long way in terms of shining the light on this disease and bringing it out of the shadows. While a certain level of stigma still exists, people are talking much more openly about their personal experiences, many families are asking for help, and progress is being made in terms of the general public understanding the importance of early diagnosis.

Although we don’t always hear about it, encouraging work is being done in research labs across America and the world. I recently attended a Cure Alzheimer’s Zoom call and heard leading researcher Dr. Rudy Tanzi discuss many studies currently underway. That call served as a reminder that forward progress is being made each and every day. Hope is alive.

Back in 2016, I founded Marilyn’s Legacy because I wanted to keep my mom’s memory alive, and I needed a way to give purpose to everything we had been through. I needed to know something positive resulted from the suffering Mom endured. Because of our many generous supporters, in five years of existence, over $19,000 in donations have been directed to UsAgainstAlzheimer’s, the Cure Alzheimer’s Fund, The Ohio State University Alzheimer’s Fund in Neurology, the HFC (formerly Hilarity for Charity) Caregiver Respite Grant Program, and the National Church Residences Hospice Caregiver Support Program (earmarked for dementia families). I’m very proud of what we’ve accomplished, but there is always more to do.

Families of the over 5 million Americans current living with Alzheimer’s and other forms of dementia are facing challenges the likes of which many cannot fathom.  No two days are the same and it is an experience that defies all logic.

Losing a lifetime of memories would certainly be horrendous on its own, but that merely scratches the surface when it comes to these diseases. Severe agitation, paranoia, verbally and physically abusive behaviors, delusions, hallucinations, loss of ability to speak, inability to manage the activities of daily living,  and eventually inability to swallow – as time goes on, these symptoms and others can become commonplace.

As we mark Mom’s 84th birthday, we hope you might consider making a one-time or recurring tax-deductible contribution to this, our 5th annual giving campaign. To do so, please visit  http://marilynslegacy.org/donate


Other ways to help:

Amazon Smile. When shopping Amazon, please use our Amazon Smile link:  http://smile.amazon.com/ch/81-1813012.  By your taking this simple action, Amazon will make a donation to Marilyn’s Legacy and it won’t cost you a dime! Bookmark our link and use it each time you shop!

Alzheimer’s Semipostal Stamp.  Thanks to the tireless efforts of advocates Kathy Siggins and Lynda Everman, the Alzheimer’s stamp has returned. Before being withdrawn in 2017, the stamp had generated over $1.0 million for NIH supported research. Stamps are available for purchase at most post offices, online at https://store.usps.com/store/product/buy-stamps/alzheimers-S_564204 and by phone at 1-800-STAMP-24. Get yours today! For additional information, please check out this fantastic blog post by Carlen Maddux.

Share this post. A quick share of this post to your social media channels is a great way to help spread the word!

Thank you for taking the time to visit The Long and Winding Road. We’re grateful for your support! May you and yours remain safe and healthy during the coming weeks and months.

Mother’s Day in Heaven

Happy Mother’s Day to my beautiful Mother in Heaven, and special blessings to all who are missing their own mothers today and every day.

These photos taken at Eason House are some of my favorites from one of my most memorable Mother’s Days. Mom was having such a good day and I see so many glimpses of the old Marilyn in the images.  Oh how she loved her sweet treats, and she sure enjoyed her fudgsicle that day.

This morning, I sat quietly for a few minutes and felt her loving presence surrounding me…

Eight Mother’s Days without her.

 

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