Alzheimer’s Round Up – Nov 2018

Tags

, , , , , , ,

Greetings, friends. It’s time for an Alzheimer’s Round Up. As always, thank you so much for reading. Stay tuned for some tips as you prepare for the upcoming Thanksgiving holiday.

Until then…

Be Brain Powerful

This past week, the Be Brain Powerful campaign launched in NYC. This WomenAgainstAlzheimer’s campaign aims to bring awareness to women’s brain health and “ignite a cultural transformation in the way we care for our brains.” We talk about taking care of our bodies, but why don’t we talk about taking care of our brains? Be Brain Powerful will be a formidable health and wellness initiative, and Marilyn’s Legacy is proud to be a partner in this movement! If you had to choose one word to explain what brain health means to you, what would it be? Mine would be, independence.

Alzheimer’s Talks – Nov 20

Coming up at 1pm ET on November 20, UsAgainstAlzheimer’s hosts AlzTalks: A Biomarker Test – Now and in the Future.  During the call, Scott Lewis, Director of Alzheimer’s Disease Diagnostic Pathway at Biogen, will discuss techniques used today to diagnose Alzheimer’s and what diagnosis might look like in the future. In addition, Melissa Bianchi, an expert in patient protections and partner at law firm, Hogan Lovells, will share thoughts on how families should prepare for receiving biomarker confirmation. The call is free, register by clicking here.

Keep Asking Questions

Retired Justice Sandra Day O’Connor, the first female ever named to the U.S. Supreme Court, recently disclosed she has been diagnosed with dementia, most likely Alzheimer’s disease. O’Connor retired from the Court in 2006 to care for her husband, John, who also had the disease. In his touching article for Psychology Today, Greg O’Brien shares the story of meeting Justice O’Connor in Arizona back in the 1970’s and the mentorship and friendship that ensued. Click here to read Greg’s article.

Exciting Research at West Virginia University

Judy Polak was diagnosed with Alzheimer’s in 2014 and is now the only person in the world to undergo a new procedure using ultrasound waves in an attempt to slow the disease. The key is temporarily opening the blood-brain barrier, allowing antibodies from the immune system to pass into the brain and break up the plaques. You can read more about the trial, overseen by Dr. Ali Rezai, Executive Chair of WVU’s Rockefeller Neuroscience Institute, by clicking here.

An 11-Year Old Making a Difference

Hailey Richman is a force to be reckoned with! Her grandmother was diagnosed with Alzheimer’s when Hailey was just four, and that experience sparked her passion for helping others. Noticing there wasn’t much support available for kids, she started Kid Caregivers, a website providing support and encouragement to children affected by the disease. To learn more about how Hailey is using puzzles to help thousands who are living with Alzheimer’s, click here.

 

 

 

 

 

Image

Remembering Our Heroes

Tags

ML Veterans Day

Marilyn’s Legacy 2018 Annual Campaign

Tags

, , , , ,

Greetings readers, friends, and Marilyn’s Legacy supporters!

Autumn is upon us, and this was always Mom’s favorite season; it’s hard to imagine that she would have turned 82 this past Friday and that December 15th will mark six years since she left us. I miss her so much. As Jess and I are just returning from a lovely trip, I am reminded of the many experiences Mom missed out on due to this horrendous illness – Alzheimer’s disease.

As many of you know, Marilyn’s Legacy was borne of a desire to honor her memory and give purpose to our journey – an unexpected experience that defies all logic. Our mission is to increase Alzheimer’s awareness among the masses as well as raise funds to stop this insidious disease and provide support to enhance quality of life for families currently on this journey.

ORIGINAL_12959358_10207650539373514_272841886_oThis month, we embark on our 3rd annual giving campaign. I’m proud to say that because of your generous support, we’ve raised over $10,000 since our inception in 2016. Those funds have been directed to organizations that are leaders in this space. They are driving bold innovative research, advancing national care policies to support caregivers, and working to increase speed, efficiency, and diversity around clinical trials. There is too much good work being done to even begin to touch on all of it, but progress is being made each and every day. We are more hopeful than ever.

Fiscal responsibility is of utmost importance to us at Marilyn’s Legacy, so we can assure you that the organizations who receive funding from us display superior financial stewardship. We know you want your contributions to go straight to the important work taking place, not to paying salaries and overhead. Two of our most important partners, UsAgainstAlzheimer’s and the Cure Alzheimer’s Fund, deploy every dollar of donations to the goals of stopping Alzheimer’s and supporting affected families.

Will you join us in the fight to stop Alzheimer’s and in supporting families currently facing this journey each day? Please consider making a one-time or recurring tax-deductible contribution today by visiting http://marilynslegacy.org/donate.

We sincerely appreciate your support of our mission and wish you a blessed autumn and holiday season.

Ann Napoletan
Founder, Marilyn’s Legacy 💜

P.S. Stay tuned for new content coming soon.