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The Long and Winding Road…

~ An Alzheimer's Journey and Beyond

The Long and Winding Road…

Author Archives: Ann Napoletan

Thanksgiving Blessings

22 Tuesday Nov 2016

Posted by Ann Napoletan in Advocacy and Awareness, Caregivers, Helpful Resources, Holidays, Inspiration, Life After Caregiving, Ruminations

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Tags

alzheimers, caregivers, caregiving at the holidays, dementia, holidays, holidays with alzheimers

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It was late summer into fall of 2012 when my mom began a very steep, swift decline. Autumn has always been my favorite time of year (Mom’s, too), but for the past four years, it hasn’t held the same appeal. Now September and October bring thoughts of her last year with us and what a painful time that was. She died on December 15, 2012.

I’ve often said that I don’t remember life before Alzheimer’s (BA). It’s such an all-consuming journey, and when it’s over, after the shock wears off, you realize you don’t even know yourself anymore. The person you were BA is gone and has been replaced by another version of you. That’s not an entirely bad thing; in many ways, the experience helped me grow into a better person.

For years now, Thanksgiving has felt like just another day, but the one thing it does is remind me to reflect on my many blessings. Losing a friend of 30 years last month was a sobering reminder that tomorrow isn’t promised and today is all we really have. That loss also made me realize how much I have to be grateful for.

One of my greatest blessings is the fact that I’m able to use a heartbreaking experience to help others. I’ve been afforded remarkable opportunities to share our story, offer support to caregivers, and advocate for more funding and improved care. Through this work, I’ve met some of the most caring and compassionate human beings on the planet and have forged friendships with passionate advocates around the globe. All of these things are such gifts.

It would be easy to remain bitter – or to resent that fact that this dreaded disease chose us – but what good would that do? Life is what we make it. My mom would want me to keep moving forward with purpose, and I think she would love that her story is making a difference.

The holidays can be especially challenging for caregivers. Let’s face it, those dreamy images we see in Martha Stewart and Southern Living just don’t reflect reality. This holiday season, remember that blessings can be found every day – often in the simplest things.

Alzheimer’s teaches us to appreciate even the smallest of miracles; an unexpected smile, an “I love you” that comes out of the blue when you thought you might never hear it again, or just the fact that your loved one ate a good dinner or had a restful night.  My wish for you this Thanksgiving is that you’re able to find some quiet time to reflect on your blessings.

Peace, love, and joyful moments,
Ann


Other posts you might enjoy

Last Minute Tips for Thanksgiving 
Reasonable Expectations: Key to a Happy Holiday
Getting Through the Holidays with Alzheimer’s
Giving Thanks
Alzheimer’s and Managing Holiday Expectations
Alzheimer’s Taught Me To Be Grateful

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Two Upcoming Events: Caregiving Conference and Lewy Body Dementia Webinar

22 Tuesday Nov 2016

Posted by Ann Napoletan in Caregivers, Events, Helpful Resources

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caregiving, caregiving conference, caregiving event, caregiving webinar, lewy body dementia, lewy body webinar

 

The first annual Caregiving.com National Caregiving Conference is coming up in Chicago on December 2nd and 3rd. Learn more on the registration website or find out how you can attend virtually via webinar. If you’re a professional, the conference qualifies for CEU credits.

Friday includes optional intensive sessions on various topics, while the main conference will take place on Saturday. Agendas for both days can be found here. 

 

The Lewy Body Dementia Associationlbda and Lewy Body Dementia University are offering a series of free short videos and educational webinars for both LBD families and healthcare professionals. The next webinar is December 5th at 3pm ET. 

Attendees will have an opportunity to ask questions of Dr. Bradley Boeve, Professor of Neurology, Division of Behavioral Neurology and Center for Sleep Medicine, Department of Neurology, Mayo Clinic College of Medicine, Rochester, MN. Dr. Boeve will focus on LBD clinical care.

You can also visit the website to view recordings of the previous webinars featuring an update on the latest LBD research and a discussion on clinical trials.

 

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Contest for Family Caregivers: Win Free Meals for a Month

20 Sunday Nov 2016

Posted by Ann Napoletan in Uncategorized

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Image Source: Peachdish.com

 

I’m happy to share this press release received from Seniorlink, Inc. Details on the contest can be found below.

 
 

Seniorlink, Inc. Announces Call for Entries to “Thank You Caregiver Nation” Contest

Family Caregivers to Receive Free Meals Monthly Throughout 2017
Contest Goal is to Spotlight the Value and Selfless Commitment of Caregivers

BOSTON, Nov. 16, 2016 /PRNewswire/ — Seniorlink, Inc., a leading caregiver solutions company, announced a call for entries for “Thank You Caregiver Nation” – a new contest focused on raising awareness of family caregivers – the many silent heroes who provide care and comfort to a loved one.

The contest will feature twelve winners, with one winner selected for each month of 2017. Each winner will receive a credit to purchase meal options from PeachDish, a nutritious meal kit delivery company. The winners can use their PeachDish credit to order fresh, farm-to-table ingredients to cook meals for their families, and reduce the stress of food shopping and meal planning.

There are an estimated 44 million caregivers in the United States today (i). They are the partners, spouses, sons, daughters, friends and loved ones who carry out a daily mission of compassion, hope and assistance. Through their commitment they provide dignity and comfort to a family member or loved one in need of care.

“Seniorlink stands alongside family caregivers as they fulfill their vital role in their loved ones lives,” said Thomas P. Riley, CEO of Seniorlink, Inc. “Caregiving can take a physical, financial and emotional toll. This contest is our way of saying thank you – and showing our unwavering commitment to provide the highest quality resources, advocacy and insights for caregivers and their families.”

Individuals wishing to nominate a caregiver, or themselves if they are a caregiver, have until midnight on December 31, 2016 to register at www.tycaregivers.com. All that is required is an email address and a short written entry outlining why the nominated caregiver should be recognized. Winners will be randomly selected from a pool of applicants and notified via email.

See www.tycaregivers.com for complete contest terms and conditions.

About Seniorlink, Inc.

For more than 16 years, Seniorlink has pioneered solutions for caregivers across the nation, helping them provide their loved ones with the highest quality care. Seniorlink’s unique in-home care solution, Caregiver Homes, dedicates experienced care teams to work alongside caregivers and their families, offering coaching and support at every step. This model, known as Structured Family Caregiving, was the first home and community-based service in the nation to receive the National Committee for Quality Assurance’s (NCQA) highest level of Accreditation for Case Management.

To move from supporting thousands to millions of caregivers, Seniorlink has developed Vela, a caregiving platform that brings compassion to technology and assists caregivers as they navigate the complex and sometimes overwhelming world of caregiving. Vela transforms the caregiving experience by connecting care partners directly with caregivers to provide them with the coaching and insights they need along their journey, ultimately improving outcomes and lowering costs for their most complex, vulnerable members. To learn more, go to www.seniorlink.com and follow on Twitter @SeniorlinkInc.

About NCQA

NCQA is a private, non-profit organization dedicated to improving health care quality. NCQA accredits and certifies a wide range of health care organizations. It also recognizes clinicians and practices in key areas of performance. NCQA is committed to providing health care quality information for consumers, purchasers, health care providers and researchers.

About PeachDish

Celebrating the freshest ingredients with Southern-inspired food full of innovative flavor, PeachDish delivers a refrigerated box to your doorstep with ingredients and recipes to cook dinner at home. Customers choose from at least eight different menu options each week, including at least three vegetarian dishes. While purchasing produce at the season’s peak to achieve the most flavor and nutrition, the company works directly with farmers and purveyors to source ingredients local to the Southeast, which has an especially long growing season. Boxes are priced depending on number of servings ordered, and shipping location around the U.S. Order as often as you like, with free shipping for regular subscribers.

(i) AAPR & Public Policy Institute (June 2015). Executive Summary: Caregiving in the U.S. Retrieved from http://www.aarp.org/content/dam/aarp/ppi/2015/caregiving-in-the-united-states-2015-executive-summary-revised.pdf

SOURCE Seniorlink, Inc.

Related Links

http://www.seniorlink.com

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Marilyn, BA (before Alzheimer's)

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