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The Long and Winding Road…

~ An Alzheimer's Journey and Beyond

The Long and Winding Road…

Category Archives: Advocacy and Awareness

Alzheimer’s Hope & Merry Christmas!

24 Thursday Dec 2015

Posted by Ann Napoletan in Advocacy and Awareness, Early Onset, Inspiration, Washington

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2016 election, Alzheimers advocacy, alzheimers awareness, alzheimers funding, alzheimers research, dementia

We-Can-Do-It-Rosie-The-Riveter-PosterAs many of you know, last week, Congress passed the omnibus bill which included $350 million in additional funding for Alzheimer’s. This brings our funding to just below $900 million – which, while still woefully under what is spent on the other major diseases – is a vast improvement.

Hillary Clinton has now made Alzheimer’s a campaign issue and is the only candidate who has a solid plan for addressing this disease that WILL bankrupt Medicare and Medicaid if we sit back and do nothing (or don’t move quickly enough).

I just got some news about an upcoming town hall the Clinton campaign is holding next week in Portsmouth, NH, and it sounds like Alzheimer’s will also be spotlighted there. Portsmouth has a population of 21,000 and there are between 15 and 20 Younger Onset caregiver spouses in their local support group. That’s a massive number for such a small community – and those are only YOUNGER onset – age 65 and younger.

I was in the car today thinking about all of this, and it gave me chills. Back in 2004, when we realized Mom’s “symptoms” were more than normal aging, you barely heard the “A” word uttered. In 2015, it’s a Presidential campaign issue. Our voices ARE being heard. If you’re an advocate – keep doing what you’re doing. We’re chipping away at this, and brilliant researchers like Rudy Tanzi (named as one of Time Magazine’s 100 Most Influential People in 2015) and Reisa Sperling are so ready to find the answers we’ve been looking for for such a long time!

Last but not least, thank you for reading The Long and Winding Road. I am truly grateful for each and every visitor to this site and I would like to wish you and yours a very Merry Christmas. I’ll leave you with what was always my mom’s favorite Christmas song…

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Keep the “HAPPY” in YOUR Holidays!

20 Sunday Dec 2015

Posted by Ann Napoletan in Advocacy and Awareness, Blogging, Caregivers, Helpful Resources, Holidays, Inspiration, Tips, USAgainstAlzheimer's

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alzheimers, alzheimers caregiver tips, alzheimers caregiving, alzheimers holiday tips, dementia, usagainstalzheimers

lightssantaalz.smOf the work I’ve done in the area of advocacy and caregiver support, my involvement with UsAgainstAlzheimer’s is one of the things I’m most proud of.

This organization has an incredible staff of passionate individuals who are in this fight to win it, and they’re led by George & Trish Vradenburg – a couple that does more for this movement than any other two people I know. As the founders of USA2, the Vradenburgs cover all operating expenses so that 100% of every dollar donated goes straight to the task at hand – fighting this monster called Alzheimer’s!

I’m honored to be a contributor to Trish’s blog, Before I Forget, and hope you or someone you know who has a loved one living with Alzheimer’s will find my holiday tips helpful. No matter what’s happening in our lives, we all deserve happiness, and I want you to know that this disease does NOT have the power to take away special moments of sheer joy.

Please hop over and read the holiday post and share the link with anyone who may benefit!   –> http://www.usagainstalzheimers.org/blog/keeping-happy-holidays

With love and wishes for a blessed holiday,
Ann

 

 

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Exciting News from the Hill!!

16 Wednesday Dec 2015

Posted by Ann Napoletan in Advocacy and Awareness, Research, USAgainstAlzheimer's, Washington

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Alzheimers advocacy, alzheimers research, alzheimers research spending, alzheimers spending, dementia research, usagainstalzheimers


A press release from UsAgainstAlzheimer’s.

Washington, DC – The agreement reached between the House and Senate on a massive Fiscal Year 2016 omnibus spending package includes an increase of $350 million for the National Institutes of Health (NIH) for Alzheimer’s and dementia research.   (Read Full Press Release)

Contact your representative NOW to ask for their “yes” vote on Friday!

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The Long and Winding Road

Marilyn, BA (before Alzheimer's)

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