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The Long and Winding Road…

~ An Alzheimer's Journey and Beyond

The Long and Winding Road…

Category Archives: Advocacy and Awareness

Tribeca Film Festival 2013 – Shining the Spotlight

23 Tuesday Apr 2013

Posted by Ann Napoletan in Advocacy and Awareness, Celebrities, Events, Inspiration, Pat Summitt

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It’s both wonderful and encouraging to know that two films featured at this year’s Tribeca Film Festival are helping to shine the spotlight on Alzheimer’s. This is the very sort of exposure we need to bring a critically important issue to the forefront, while giving it a human face and removing the stigma that comes with the disease.

The first, Pat XO, is a documentary produced by the great Robin Roberts. As I watched the trailer, I couldn’t help but smile. What an incredible idea to hand out video cameras to those closest to Pat Summitt and ask them to talk about this legend – the winningest coach in all of college basketball. I truly cannot wait to see this film! Coach Summitt is an inspiration in so many ways.

Also at Tribeca this year, the premiere of The Genius of Marian, a son’s intimate portrait of his mother’s struggle with Alzheimer’s.

John Anderson’s review for Indiewire describes the film as follows:

It’s remarkable film, not only for the obvious affection with which it was made, but as art. The downward trajectory of a woman in the grip of ever-worsening dementia provides only so many opportunities for visual storytelling. And while White and Fitch do have wonderful archival material to work with – their subject, Pam White, was a model, and the footage of her as a young woman sparkles in its poignancy. But for a great deal of the film, White is creating something out of imagery that occurs with a seeming randomness, but which ultimately coheres in a way that’s quite moving and singular: As well it should. Pam White isn’t a medical statistic, she’s a person with a history, albeit one that’s slipping away, at least from her.

Three cheers for Robin Roberts and ESPN, filmmaker Banker White, and of course the Tribeca Film Festival for bringing much needed attention to our fight.

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Thank you!

13 Saturday Apr 2013

Posted by Ann Napoletan in Advocacy and Awareness, Blogging

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This blog is a labor of love… for my mom… for those living with Alzheimer’s… for caregivers… for family members… for anyone and everyone who has been touched by this cruel disease. I couldn’t be more pleased to share the graphic below. In slightly over a year, The Long and Winding Road has seen visitors from 41 countries on five continents; North America, Asia, Europe, Australia, and Africa.

THANK YOU for visiting, reading, and sharing…

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Be an Advocate: It’s So Easy To Help

12 Friday Apr 2013

Posted by Ann Napoletan in Advocacy and Awareness, Washington

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HOPE-graphicIn just over a week, many advocates will be joining together at the 25th Annual Alzheimer’s Association Advocacy Forum in Washington. Over those several days, they will share their own very personal stories and encourage lawmakers to make Alzheimer’s and related dementias a top national priority.

Recently, we’ve made great strides with the passage of the National Alzheimer’s Project Act and development of the first ever National Alzheimer’s Plan, but there is still much work to do. Widespread budget cuts threaten the progress that we’ve made, making it so very important to continue sharing the message that ALZ is on the brink of becoming a national epidemic; we must continue to march forward.

One way you can help is to contact your legislators, and this site makes it very easy to do! Ask your representative to co-sponsor the Alzheimer’s Breakthrough Act. The HOPE for Alzheimer’s Act (Senate bill number S. 738 and House bill H.R. 1386)

The Act will:

  • Improve diagnosis of Alzheimer’s disease
  • Increase access to information on care and support for newly diagnosed individuals and their families
  • Provide essential support for those facing this devastating, debilitating disease.
  • Ensure that an Alzheimer’s or dementia diagnosis is documented in the individual’s medical record.
  • Support recommendations made 2012 National Alzheimer’s Plan.

Once again, use this site to contact your representative in Washington by simply entering your name and address. After you’ve done that, you’ll have a chance to review and customize (if desired) the message before sending it. Please share the URL with your friends. This can literally be done in less than 5 minutes.

Thank you, and keep fighting!

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Marilyn, BA (before Alzheimer's)

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