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The Long and Winding Road…

~ An Alzheimer's Journey and Beyond

The Long and Winding Road…

Category Archives: Advocacy and Awareness

Please Vote for Us: Healthline’s Best Health Blog of 2016

30 Wednesday Nov 2016

Posted by Ann Napoletan in Advocacy and Awareness, ALZ Blog, Blogging, Call to Action, Marilyn's Legacy

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alzheimers, alzheimers awareness, alzheimers blogging, dementia, healthline best health blog contest

12.15.16 Update:  Thank you for voting! Of over 350 nominated blogs, we placed 17th, and there were THREE Alzheimer’s blogs in the top 20! 

We’re proud to announce that The Long and Winding Road has been nominated as one of Healthline’s Best Health Blogs for the third year in a row. Voting is open until December 12, and you can vote once every 24 hours. To vote, simply click here or on the image below. When the voting page fully loads, type “Long and Winding” in the search box to find us and then click VOTE!!!  We appreciate your support.

* Note: Should we be so fortunate, any prize money received would go directly to our non-profit, Marilyn’s Legacy: A World Without Alzheimer’s, to continue the work of fighting AD and supporting families who are on this journey right now. 

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Help Us Fight Alzheimer’s on #GivingTuesday

27 Sunday Nov 2016

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#givingtuesday, alzheimers, giving tuesday, Marilyn's Legacy

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Posted by Ann Napoletan | Filed under Advocacy and Awareness, Fundraising, Marilyn's Legacy

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Thanksgiving Blessings

22 Tuesday Nov 2016

Posted by Ann Napoletan in Advocacy and Awareness, Caregivers, Helpful Resources, Holidays, Inspiration, Life After Caregiving, Ruminations

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Tags

alzheimers, caregivers, caregiving at the holidays, dementia, holidays, holidays with alzheimers

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It was late summer into fall of 2012 when my mom began a very steep, swift decline. Autumn has always been my favorite time of year (Mom’s, too), but for the past four years, it hasn’t held the same appeal. Now September and October bring thoughts of her last year with us and what a painful time that was. She died on December 15, 2012.

I’ve often said that I don’t remember life before Alzheimer’s (BA). It’s such an all-consuming journey, and when it’s over, after the shock wears off, you realize you don’t even know yourself anymore. The person you were BA is gone and has been replaced by another version of you. That’s not an entirely bad thing; in many ways, the experience helped me grow into a better person.

For years now, Thanksgiving has felt like just another day, but the one thing it does is remind me to reflect on my many blessings. Losing a friend of 30 years last month was a sobering reminder that tomorrow isn’t promised and today is all we really have. That loss also made me realize how much I have to be grateful for.

One of my greatest blessings is the fact that I’m able to use a heartbreaking experience to help others. I’ve been afforded remarkable opportunities to share our story, offer support to caregivers, and advocate for more funding and improved care. Through this work, I’ve met some of the most caring and compassionate human beings on the planet and have forged friendships with passionate advocates around the globe. All of these things are such gifts.

It would be easy to remain bitter – or to resent that fact that this dreaded disease chose us – but what good would that do? Life is what we make it. My mom would want me to keep moving forward with purpose, and I think she would love that her story is making a difference.

The holidays can be especially challenging for caregivers. Let’s face it, those dreamy images we see in Martha Stewart and Southern Living just don’t reflect reality. This holiday season, remember that blessings can be found every day – often in the simplest things.

Alzheimer’s teaches us to appreciate even the smallest of miracles; an unexpected smile, an “I love you” that comes out of the blue when you thought you might never hear it again, or just the fact that your loved one ate a good dinner or had a restful night.  My wish for you this Thanksgiving is that you’re able to find some quiet time to reflect on your blessings.

Peace, love, and joyful moments,
Ann


Other posts you might enjoy

Last Minute Tips for Thanksgiving 
Reasonable Expectations: Key to a Happy Holiday
Getting Through the Holidays with Alzheimer’s
Giving Thanks
Alzheimer’s and Managing Holiday Expectations
Alzheimer’s Taught Me To Be Grateful

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Marilyn, BA (before Alzheimer's)

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