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The Long and Winding Road…

~ An Alzheimer's Journey and Beyond

The Long and Winding Road…

Category Archives: ALZ Assn – National

Alzheimer’s: When Will the Government Put Their Money Where Their Mouth Is?

03 Tuesday Feb 2015

Posted by Ann Napoletan in Advocacy and Awareness, ALZ Assn - National, Face of Alzheimer's, Facts & Figures, Helpful Resources, Life After Caregiving, NAPA, Research, Ruminations, USAgainstAlzheimer's, Washington

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alzheimers, Alzheimers advocacy, alzheimers funding, alzheimers research, dementia

 


In recent days, staunch supporters including Senators Susan Collins (ME), Edward Markey (MA), Amy Klobuchar (MN), and Jerry Moran (KS) have encouraged President Obama to include an increase for Alzheimer’s research in his FY 2016 budget. After all, what’s a “plan” to end Alzheimer’s by 2025 without the funding necessary to do so?

And the Verdict is in

Disappointment ensued as the Obama Administration released the proposed budget yesterday, and Alzheimer’s was overlooked. In a press release, George Vradenburg, co-founder of USAgainstAlzheimer’s said, “If we as a nation do not make Alzheimer’s research a top priority, we simply cannot meet our national goal of preventing and treating Alzheimer’s by 2025.”

What will it take to convince our government that unless we do something to stop it, Alzheimer’s will be the public health crisis of our lifetime? Perhaps the powers-that-be need to listen carefully to Michael Auslin’s story, or that of Karen Garner, whose husband was diagnosed before his 50th birthday. What about Rebecca Emily Darling, who was just 26-years-old when her mother was diagnosed?

Proof in the Numbers

  • Alzheimer’s is the only cause of death among the top 10 in America that cannot be prevented, cured, or even slowed. More than 500,000 people die annually from Alzheimer’s.
  • Deaths from Alzheimer’s increased 68 percent between 2000 and 2010, while deaths from other major diseases decreased.
  • More than 5 million Americans are living with some form of dementia. If we remain on the current trajectory, that number will rise to 16 million by 2050.
  • Every 67 seconds, someone in the U.S. develops Alzheimer’s. By 2050, it will be every 33 seconds.
  • In 2014, the direct costs to American society of caring for those with Alzheimer’s totaled over $200 billion, including $150 billion in costs to Medicare and Medicaid.
  • Unless something is done to stop it, Alzheimer’s will cost an estimated $1.2 trillion (in today’s dollars) in 2050. Costs to Medicare and Medicaid will increase nearly 500 percent.

For more information, check out the Alzheimer’s Association’s 2014 Facts and Figures report.

Take Action

Consider this: Alzheimer’s research spending currently stands at less than 1% of the cost of care.

Please write or call your Senate and Congressional representatives. Ask them to support the fight to #ENDALZ.

If not now, when?

It’s been said there are two kinds of people: those who have been personally touched by Alzheimer’s and those who will be.

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Giving Tuesday: Bravelets to donate $20 per item sold!

02 Tuesday Dec 2014

Posted by Ann Napoletan in Advocacy and Awareness, ALZ Assn - National, ALZ Assn Central Ohio, Fundraising, Products

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#endalz, alzheimers, alzheimers awareness, bravelets, giving tuesday

Today is GIVING TUESDAY, and the awesome folks at Bravelets are doing their part by doubling all donations today!

Purchase your Bravelet today from our fundraising page and $20 will be donated to the Alzheimer’s Association to fund research and programs. With seven unique styles to choose from, there’s one to suit every taste, and each time you wear your Bravelet, you’ll be helping to raise awareness!

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I Am Woman, Hear Me Roar

30 Sunday Mar 2014

Posted by Ann Napoletan in Advocacy and Awareness, ALZ Assn - National, Beating Alzheimer's By Embracing Science (B.A.B.E.S), Facts & Figures, Fundraising, Helpful Resources, Research

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alzheimers, Alzheimers advocacy, alzheimers awareness, b.a.b.e.s., beating alzheimers by embracing science, dementia

The 2014 Facts & Figures report recently released by the Alzheimer’s Association shines a bright spotlight on the fact that women are disproportionately affected by AD. Consider these statistics:

  • Almost two-thirds of Americans with Alzheimer’s are women.
  • A woman’s estimated lifetime risk of developing Alzheimer’s at age 65 is 1 in 6, compared with nearly 1 in 11 for a man.
  • As real a concern as breast cancer is to women’s health, women in their 60s are about twice as likely to develop Alzheimer’s during the rest of their lives as they are to develop breast cancer.
  • More than 60 percent of Alzheimer’s and dementia caregivers are women.
  • Nearly 19 percent of women Alzheimer’s caregivers had to quit work due to caregiving responsibilities.

Those numbers are staggering, so what can we, as women, do to make a difference?

I’d like to introduce you to Beating Alzheimer’s By Embracing Science (B.A.B.E.S), founded by Jamie Tyrone. This grassroots organization channels the power and energy of women who share a common passion – ending Alzheimer’s and other related forms of dementia. Continue reading →

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Marilyn, BA (before Alzheimer's)

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