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The Long and Winding Road…

~ An Alzheimer's Journey and Beyond

The Long and Winding Road…

Category Archives: ALZ Assn – National

Heart and Brain: 2 Peas in a Pod?

08 Friday Mar 2013

Posted by Ann Napoletan in Advocacy and Awareness, ALZ Assn - National, Caregivers, Caregivers.com, Helpful Resources, Prevention

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“The brain gives the heart its sight and the heart gives the brain its vision.”
-Dr. Jill Kalman, cardiologist, Mount Sinai Medical Center

Interesting way of looking at it, right?

Dr. Kalman, along with Dr. Maria Carrillo, vice president of medical and scientific relations for the Alzheimer’s Association, recently spoke at an event hosted by The Judy Fund.

They talked about the two health issues that many women fear: heart disease and Alzheimer’s. Researchers are finding that risk factors traditionally associated with heart disease are likely linked to ALZ as well.

From the Alzheimer’s Association: We can make lifestyle choices that keep both the heart and the brain healthy.  For instance, we know that a higher BMI (body mass index) and higher cholesterol (particularly the bad LDL kind) is certainly a risk factor for heart disease and may be a risk factor for Alzheimer’s disease.  We also know inflammation is bad – it is connected to the brain abnormality typical of Alzheimer’s patients and it is a common problem for victims of stroke and heart attack.  This is why it is so important for family caregivers to pay attention to both the heart and the head.

While trying to balance everything they are dealing with emotionally, logistically, physically, and otherwise, caregivers all too often forget to care for themselves. Most have a very difficult time asking for help (and even accepting help when offered), but that needs to change. There are free, easily accessible tools, such as the Alzheimer’s Association Care Team Calendar and CareZone that can make this easier, so check them out! (And watch for my Caregivers post on Monday to learn more about CareZone.)

The bottom line, as the old adage goes, if you don’t take care of yourself, there will quickly come a time when you won’t be able to take care of anyone else. Start now by taking small steps:

  • Take a 20 minute walk
  • Replace one unhealthy “constant” in your diet with a healthy food
  • Go to bed 30 minutes earlier at night
  • Drink water rather than soda

Read more about what Drs. Kalman and Carrillo had to say here -> Caregiving Conversation Between Your Heart and Your Head

Also, check out The Judy Fund, which was established by the Marshall Gelfand Family in memory of Judy Gelfand. Both Mrs. Gelfand and her mother suffered from ALZ. This organization, led by daughter Elizabeth Gelfand-Stearns has raised nearly $5 million since 2003 and has sponsored nine research projects. Talk about making a difference!! What an accomplishment and beautiful tribute to Mrs. Gelfand…

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Stats and Safety Tips

04 Monday Mar 2013

Posted by Ann Napoletan in ALZ Assn - National, Blogging, Caregivers, Caregivers.com, Facts & Figures, Helpful Resources, Safety

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Did you know that:

      • 80% of care provided at home is delivered by family caregivers.
      • In 2011, family members and friends provided an estimated 17.4 billion hours of unpaid care valued at more than $210 billion.
      • 43% of those caring for Alzheimer’s patients reported the physical stress of caregiving was high to very high, and the physical and emotional impact of ALZ and dementia caregiving is estimated to result in $8.7 billion in increased health care costs in the U.S.
      • 65% of caregivers with full or part-time jobs reported having to alter their work schedules or take time off, while 20% have had to take a leave of absence.
      • 43% of those caring for loved ones with ALZ have been providing care for 1 to 4 years; 32% for 5 years or more.

As you can see based on these statistics, caregiving for ALZ and dementia patients is on the rise, and a significant portion of this care is provided in the home. Today on Caregivers, some tips and resources for creating a safe environment for your loved ones at home: In Home Safety: 10 Tips For Caregivers

Source for statistics: http://www.alz.org/downloads/facts_figures_2012.pdf

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Support Those Who Support ALZ!

04 Monday Mar 2013

Posted by Ann Napoletan in Advocacy and Awareness, ALZ Assn - National, Events

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The TJX Companies, Inc., has pledged $1 million to the Alzheimer’s Association and now through March 16, you can help when you shop at Marshalls.

Now through March 16th, Marshalls customers across the United States will be offered the opportunity to add a dollar to each purchase. That added dollar will be donated to the Alzheimer’s Association and its efforts to advance Alzheimer’s-related care, support and research – and taking a stand against this disease, nationwide.

This campaign is part of a much bigger pledge from The TJX Companies, Inc. on behalf of its 168,000 Associates and retail division including T.J. Maxx, Marshalls, HomeGoods and Sierra Trading Post in the United States; Winners, HomeSense, and Marshalls in Canada; and T.K. Maxx, and HomeSense in Europe. They have pledged $1 million to the Alzheimer’s Association in recognition of the massive impact the disease has worldwide.

Every single dollar donated through the campaign will go to towards supporting our vision of a world without Alzheimer’s. Thank you Marshalls and TJX Companies, Inc.!

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Marilyn, BA (before Alzheimer's)

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