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The Long and Winding Road…

~ An Alzheimer's Journey and Beyond

The Long and Winding Road…

Category Archives: Caregivers

Jeb Bush & Bernie Sanders on Alzheimer’s

11 Tuesday Aug 2015

Posted by Ann Napoletan in Advocacy and Awareness, Caregivers, Face of Alzheimer's, Washington

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alzheimers, alzheimers caregivers, alzheimers funding, alzheimers research, bernie sanders, brenda bouchard, candidates on alzheimers, dementia, honoring ken, jeb bush

Keeping her promise, New Hampshire caregiver Brenda Bouchard has been out on the campaign trail – most recently posing her question to Bernie Sanders and Jeb Bush. If you’d like to hear the candidates’ thoughts on Alzheimer’s, take a look at the clips below. Also be sure to check out my July 30th post if you missed seeing what Clinton, Kasich, and Santorum had to say.

 

 

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Alzheimer’s: Comfort, Reassurance, & Happiness with Sootheze Pals

08 Saturday Aug 2015

Posted by Ann Napoletan in Behaviors, Caregivers, Helpful Resources, Products, Treatments and Therapies

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alzheimers, aromatherapy for alzheimers, dementia, plush bears for alzheimers, sootheze, sootheze pals

“Vanilla Bear” Image Courtesy of Sootheze

It’s no secret that stuffed animals can provide comfort and bring happiness to people living with Alzheimer’s. Well how about combining the soothing reassurance of a soft, plush bear or dog with the therapeutic benefits of aromatherapy?

The folks at Sootheze are doing just that with their line of Sootheze Pals. Plenty of research has shown the benefits of lavender and other herbal scents as far as helping reduce agitation in Alzheimer’s patients. The Sootheze plush animals are filled with a blend of nine herbs including lavender, rose hips, and cinnamon. Their “stuffing” consists primarily of all-natural flaxseed.

“Scruffy” Image Courtesy of Sootheze

Sootheze pals are available in a variety of animals including cats, dogs, bears, and bunnies. The company also offers a “collar” style that can be draped around the neck and shoulders. Adding to their versatility, the plush pets can be cooled in the freezer or heated in the microwave if desired. What a cozy addition to a cold winter day or night.

I realize some challenge this idea, supporting the notion that dolls and stuffed animals are demeaning to adults. However, I truly believe it depends on the individual and how far along they are in the disease. This goes hand in hand with the concept of joining our loved ones in their world when they can no longer make it back to ours. We have to stop and think, does the idea of a stuffed animal feel demeaning to our loved one, or are we just uncomfortable with it?

In terms of benefits, there are many others:

  • Providing a distraction or tool for redirection
  • Giving busy hands something soft to “pet”
  • Providing something to love, nurture, and take care of
  • Triggering happy memories of a beloved pet from long ago
  • Providing a focal point for interactions with caregivers and loved ones
  • Bringing an overall comfort and feeling of safety and wellbeing

Stock Image: Morguefile

For the last couple of weeks, one of the dear ladies I visit in memory care has told me she’s very afraid – a common occurrence in Alzheimer’s patients. I sit and hold her hand, which seems to help, but we know we can’t always be there.

This coming week, I’ll be taking the sweet Vanilla Bear I received from the nice folks at Sootheze, to his new home in the unit. My hope is that he will bring smiles, joy, and a sense of security to my friends when they’re sad, lonely, or just need a hug.

Visit the Sootheze website to learn more or shop for a Sootheze pal for your loved one.

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Presidential Candidates on Alzheimer’s

30 Thursday Jul 2015

Posted by Ann Napoletan in Advocacy and Awareness, Caregivers, Face of Alzheimer's, Washington

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alzheimers, alzheimers caregivers, alzheimers funding, alzheimers research, brenda bouchard, candidates on alzheimers, dementia, hillary clinton, honoring ken, john kasich, rick santorum

New Hampshire resident, Brenda Bouchard, has been caring for her husband, who is living with younger onset Alzheimer’s, for 10 years. She also cares for her 89-year-old mother who has Alzheimer’s and lives with her.

With more on her plate than most of us can begin to imagine, Bouchard has set out to bring Alzheimer’s to the national stage. She recently attended three New Hampshire town hall meetings and posed a critical question to presidential candidates Santorum, Clinton, and Kasich. You can see their responses in the video clips below.

 What will you do to make sure this devastating disease gets the attention it deserves?

This courageous, passionate caregiver is just getting started. Brenda explains, “What I am working to do is to put these questions before as many candidates as I can to help keep the national conversation going around Alzheimer’s. It’s non-partisan for me in terms Alzheimer’s.

“I’m singularly focused on getting the candidates to talk about Alzheimer’s so we can change the climate and culture around this disease and hopefully get enough people talking about it so we can demand more funding for research to find a cure!!! I plan to keep truckin’!!!”

Thank you for all you’re doing to shine the national spotlight on Alzheimer’s, Brenda!

We can help Brenda and the movement to #ENDALZ by sharing these videos with others to get the country talking. The squeaky wheel gets the grease and I’ve never met a group of people who are more passionate and committed than Alzheimer’s caregivers and advocates!


 

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Marilyn, BA (before Alzheimer's)

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