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The Long and Winding Road…

~ An Alzheimer's Journey and Beyond

The Long and Winding Road…

Category Archives: Inspiration

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28 Saturday Jan 2017

Tags

alzheimers, caregivers, dementia

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Posted by Ann Napoletan | Filed under Caregivers, Inspiration, Meme

≈ 2 Comments

Welcome to 2017

15 Sunday Jan 2017

Posted by Ann Napoletan in Inspiration, Life After Caregiving, Ruminations

≈ 2 Comments

Tags

ending Alzheimers, goals, intentions, new year, personal growth

15781071_1862715674005271_6924225020825222082_nHere we are. 2017.

I’ll be honest; I was happy to say farewell to 2016. I took a bit of a digital sabbatical between Christmas and New Year’s to reflect on the past year. I spent some time thinking about what is working in my life and the things I’m not necessarily happy with, and I set some goals/intentions for the coming year.

A few of my goals include finding more time to write, making measurable progress on my plan for retirement, spending more time with the people who are most important to me, and starting to document my bucket list instead of just thinking about it.  I have some solid steps in mind to move those goals forward, but others are more challenging.

I’m committed to focusing on myself this year, being okay with saying “no,” letting go of what I can’t control, and perhaps  most importantly realizing that I AM ENOUGH. At age img_451051, I know the coming year needs to be one of improved health – mind, body, and soul. I must find (or create) more balance in my life, and if I come to the conclusion that something truly isn’t working and can’t be changed, I need to muster up the courage to cut my losses and move on. Alas, these things are not so easy, but I want – and need – to make a solid effort.

No matter our circumstances, I think it’s important to keep moving forward. There are times in life when big, bold steps aren’t necessarily possible, but even small steps constitute growth and that’s what matters.

How are you feeling about the new year? Hopeful? Apprehensive? Have you set any goals? What, if anything, are you hoping to change or improve and do you have a plan for getting there?  Whatever your answers, I wish you a blessed year full of good health and happiness. More than anything, I hope this year brings us substantially closer to ending Alzheimer’s disease.

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Thanksgiving Blessings

22 Tuesday Nov 2016

Posted by Ann Napoletan in Advocacy and Awareness, Caregivers, Helpful Resources, Holidays, Inspiration, Life After Caregiving, Ruminations

≈ 5 Comments

Tags

alzheimers, caregivers, caregiving at the holidays, dementia, holidays, holidays with alzheimers

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It was late summer into fall of 2012 when my mom began a very steep, swift decline. Autumn has always been my favorite time of year (Mom’s, too), but for the past four years, it hasn’t held the same appeal. Now September and October bring thoughts of her last year with us and what a painful time that was. She died on December 15, 2012.

I’ve often said that I don’t remember life before Alzheimer’s (BA). It’s such an all-consuming journey, and when it’s over, after the shock wears off, you realize you don’t even know yourself anymore. The person you were BA is gone and has been replaced by another version of you. That’s not an entirely bad thing; in many ways, the experience helped me grow into a better person.

For years now, Thanksgiving has felt like just another day, but the one thing it does is remind me to reflect on my many blessings. Losing a friend of 30 years last month was a sobering reminder that tomorrow isn’t promised and today is all we really have. That loss also made me realize how much I have to be grateful for.

One of my greatest blessings is the fact that I’m able to use a heartbreaking experience to help others. I’ve been afforded remarkable opportunities to share our story, offer support to caregivers, and advocate for more funding and improved care. Through this work, I’ve met some of the most caring and compassionate human beings on the planet and have forged friendships with passionate advocates around the globe. All of these things are such gifts.

It would be easy to remain bitter – or to resent that fact that this dreaded disease chose us – but what good would that do? Life is what we make it. My mom would want me to keep moving forward with purpose, and I think she would love that her story is making a difference.

The holidays can be especially challenging for caregivers. Let’s face it, those dreamy images we see in Martha Stewart and Southern Living just don’t reflect reality. This holiday season, remember that blessings can be found every day – often in the simplest things.

Alzheimer’s teaches us to appreciate even the smallest of miracles; an unexpected smile, an “I love you” that comes out of the blue when you thought you might never hear it again, or just the fact that your loved one ate a good dinner or had a restful night.  My wish for you this Thanksgiving is that you’re able to find some quiet time to reflect on your blessings.

Peace, love, and joyful moments,
Ann


Other posts you might enjoy

Last Minute Tips for Thanksgiving 
Reasonable Expectations: Key to a Happy Holiday
Getting Through the Holidays with Alzheimer’s
Giving Thanks
Alzheimer’s and Managing Holiday Expectations
Alzheimer’s Taught Me To Be Grateful

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Marilyn, BA (before Alzheimer's)

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