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The Long and Winding Road…

~ An Alzheimer's Journey and Beyond

The Long and Winding Road…

Category Archives: Music and Art

Music For Your Loved One

18 Saturday Jan 2014

Posted by Ann Napoletan in Behaviors, Caregivers, Giveaways, Mom, Music and Art, Products, Smiles, Tips, Treatments and Therapies

≈ 15 Comments

Tags

alzheimers, caregiving, dementia, music for alzheimers, music therapy

The winner is … Mary!

CD winner

 


old-radio
We’ve seen plenty of evidence that music can create magical moments for Alzheimer’s and dementia patients. It has the power to reduce depression and agitation, improve cognitive function, and provide wonderful opportunities for interaction with caregivers and loved ones. Music was certainly comforting to my mom, even in the very late stages of the disease.

One of the most compelling examples is illustrated in a YouTube video that went viral shortly after its 2012 release. “Henry” had been battling dementia for years, becoming completely withdrawn and non-communicative.  And then, the magic happened; caregivers played some of his favorite songs from years gone by, and he suddenly came to life.  The man who had previously barely spoken was now singing Cab Calloway’s hits and reminiscing about how much he loved music and dancing when he was young. It was nothing short of a miracle.

The past, which is not recoverable in any other way, is embedded, as if in amber, in the music and people can regain a sense of identity…  -Oliver Sacks, MD

Knowing firsthand how powerful music can be, Audrey Greene decided to combine her musical gift with years of eldercare experience to create a CD; however, she needed funding to make it happen. With that in mind, she began a Kickstarter campaign and with the help of 105 backers, raised over $4,700 to offset licensing and production costs.

During the crowd funding process, Audrey said, “At 57, I’m learning once again that almost anything is possible.” Indeed, this past November she realized her dream when “Mom’s Musical Memories” was released.

The CD contains 15 tracks, all carefully chosen for their potential to unlock memories, encourage reminiscing, and create musical moments of joy. Songs include old favorites like You Are My Sunshine, Somewhere Over the Rainbow, Let Me Call You Sweetheart, When the Saints Go Marching In, and Take Me Out to the Ballgame.

…Science aside; when an elder who’s been closed off and uncommunicative lifts her head, smiles, and begins to sing along, the power of music cannot be denied.  –Audrey Greene

The American Music Therapy Association says music not only encourages positive changes in mental status, but it can even be beneficial in pain management. Music also provides a wonderful opportunity for social interaction and reminiscence.

Research shows music touches areas of the brain that may not be damaged by the disease. In doing so, it brings those healthy pathways to the forefront. The result can be an astounding “awakening” like that experienced by “Henry” when he listened to songs from his era.

You can find Audrey’s CD on iTunes, Amazon, and Google Play, and she has graciously offered a copy to one lucky reader. To enter for a chance to win the CD, just leave a comment on this post. I’ll select a random winner on Saturday, January 25th. Good luck!


Audrey Greene has 20 years experience working at nursing facilities throughout Rhode Island. Her biggest musical influences are Ella Fitzgerald and Frank Sinatra, but she enjoys a wide variety of music, “anything from James Brown to Mozart.” Audrey’s goal is to raise awareness and encourage hope throughout the community with music. You can visit her website or find her on Facebook, and she can be reached via email at audreyjgreene@yahoo.com.

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The What, Why, and How of Snoezelen Therapy

26 Thursday Sep 2013

Posted by Ann Napoletan in Behaviors, Helpful Resources, Mom, Music and Art, Pharma, Ruminations, Treatments and Therapies

≈ 2 Comments

Tags

alzheimer's therapy, alzheimers, dementia, multi-sensory environments, snoezelen

Snoezelen RoomFor some reason, when I see the word Snoezelen, I think one of my favorite Sesame Street characters, the adorable Mr. Snuffleupagus. Of course, the two aren’t even remotely related, but for some reason I can’t get the image of that adorable woolly mammoth out of my head!

Why Snoezelen?

The term itself is derived from the Dutch words “snuffelen” (sniffing) and “doezelen” (dozing). Snoezelen originated in the Netherlands as a way compensate for sensory deprivation in the profoundly disabled. One study suggests that the average healthy person touches up to 300 different surfaces every 30 minutes, whereas a person with a severe disability will often touch less than ten surfaces in the same amount of time.

In the 1960’s and 1970’s, researchers found that in the absence of adequate stimulation, the brain begins to hallucinate to make up for what’s missing. Subsequent studies, including one led by Dr. Jason A. Staal, at Beth Israel Medical Center in NYC, have proven that augmenting the environment with various sensory stimuli can actually reduce agitation, depression, and apathy in patients.

How Does It Work?

Snoezelen RoomIn Snoezelen therapy, multi-sensory environments are created using visual, auditory, tactile, and aromatherapy stimulation. The concept has been successful with people of all ages, and in this safe, comfortable setting, Alzheimer’s and dementia patients have found peace and solace. The “treatment” can elicit calmness, an overall feeling of wellbeing, and a sense of security. In some cases, memories are awakened through the process.

Depending on how they are used, light, sound, and scents can evoke a variety of responses, and there is a risk of overstimulation. For this reason, when creating a “Snoezelen room,” it’s important to tailor the setting to each individual’s unique needs. Ideally, patients should be presented with a variety of options and have the freedom to choose the sensory experiences they find most pleasing.

Case Study

In a 2011 interview, Angela Green of Christian Care Centers in Mesquite, Texas, discussed the success they’ve had with Snoezelen rooms in their Alzheimer’s/Memory Care unit.

“The agitated individual that’s not able to communicate verbally [and] that has a lot of frustration from the stimulation they’re receiving will go into the Snoezelen room and find peace and to relax and enjoyment… We found that the colors and the sound and the motion and the touch that they’re able to experience, all of those things involve all of their senses and give them a complete enjoyment of their surroundings and something to interact with. It’s not uncommon to see one laughing or dancing when they’re in the environment, and even having good memory recall to the point that they can answer questions.”

Snoezelen RoomSnoezelen and Alzheimer’s

I don’t know about you, but this is something I would have jumped at the opportunity to try with my mom. The obvious question: Why aren’t we hearing more about alternative treatments like this here in the United States? We all agree that research is critical, but we also owe the best quality of life possible to those who are living with Alzheimer’s right now, don’t we??

I could rattle off the litany drugs that Mom’s neurologist prescribed during the course of her illness – everything from citalopram for depression to heavy-duty psych drugs like Risperidone, Divalproex (Depakote), Olanzapine (Zyprexa), and Lorazepam (Ativan)… and the list goes on.

The last couple of years, the psychotropic drugs rarely eased her agony and terror. I have to wonder if something like Snoezelen therapy could have helped to calm and relax her during those horrible spells. Mom is gone now, so I’ll never know – but it’s certainly something other families should have the option of considering…

For more information on Snoezelen and Multi-Sensory Environments, consider visiting these sites:

  • American Association of Multi-Sensory Environments
  • International Snoezelen Association
  • Stepping Stones
  • WorldWideSnoezelen.com

Photo credit: WorldWideSnoezelen.com

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Upcoming Conference Call: July 23

16 Tuesday Jul 2013

Posted by Ann Napoletan in Advocacy and Awareness, Events, Music and Art

≈ Leave a comment

usa2_logo_email_headerThe next USAgainstAlzheimer’s Activists Network conference call will be on Tuesday, July 23 from 12-1pm ET. Discussion topic will the ways that Alzheimer’s and art intersect, and activist Marti Bailey will explain her work in this area through Sibley Hospital’s Club Memory in Washington D.C.

Don’t miss it! Register today.

 

 

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