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The Long and Winding Road…

~ An Alzheimer's Journey and Beyond

The Long and Winding Road…

Category Archives: Pharma

Research News: SNIFF & A4

24 Monday Feb 2014

Posted by Ann Napoletan in Advocacy and Awareness, Helpful Resources, Pharma, Prevention, Research, Treatments and Therapies, USAgainstAlzheimer's

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a4 trial, alzheimers, alzheimers research, sniff study

The fine folks at USAgainstAlzheimer’s recently hosted an outstanding Activists Network call on two impending clinical trials. We had the pleasure of hearing directly from Dr. Suzanne Craft, Professor of Gerontology and Geriatric Medicine at Wake Forest.

Dr. Craft is leading the SNIFF study, which is currently enrolling participants at research centers around the country. In addition, we learned more about the A4 trial, also getting underway. If you’d like to learn more, take a look at the follow up post I wrote for the USA2 by2020 blog: Exciting News on the Research Front.

Hope for the future.

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Register Now: USAgainstAlzheimer’s Activists Network Call

31 Friday Jan 2014

Posted by Ann Napoletan in Advocacy and Awareness, Events, Helpful Resources, Pharma, Research, USAgainstAlzheimer's

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alzheimers, alzheimers clinical trials, alzheimers research, sniff insulin study, usagainstalzheimers

Two major Alzheimer’s clinical trials will soon begin enrolling participants — the Insulin Study (also know as SNIFF) and the so-called A-4 Trial.

Join USAgainstAlzheimer’s on Thursday, February 6 from 12-1pm ET for the next Activists Network conference call to hear Dr. Suzanne Craft of Wake Forest Medical School, who is the director of the Insulin Study (SNIFF). This study will examine whether a type of insulin, when administered as a nasal spray, improves memory in adults with a mild memory impairment or mild Alzheimer’s disease. Dr. Craft will explain SNIFF and answer your general trial questions, including who is eligible, study locations and how to sign up. Enrollment is scheduled to begin in the coming weeks.

To register for this call please go to: http://actions.usagainstalzheimers.org/p/salsa/web/common/public/signup?signup_page_KEY=8587.

Ginny Biggar at USAgainstAlzheimer’s can answer any questions you have. Her email is vbiggar[at]usagainstalzheimers.org.

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The What, Why, and How of Snoezelen Therapy

26 Thursday Sep 2013

Posted by Ann Napoletan in Behaviors, Helpful Resources, Mom, Music and Art, Pharma, Ruminations, Treatments and Therapies

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alzheimer's therapy, alzheimers, dementia, multi-sensory environments, snoezelen

Snoezelen RoomFor some reason, when I see the word Snoezelen, I think one of my favorite Sesame Street characters, the adorable Mr. Snuffleupagus. Of course, the two aren’t even remotely related, but for some reason I can’t get the image of that adorable woolly mammoth out of my head!

Why Snoezelen?

The term itself is derived from the Dutch words “snuffelen” (sniffing) and “doezelen” (dozing). Snoezelen originated in the Netherlands as a way compensate for sensory deprivation in the profoundly disabled. One study suggests that the average healthy person touches up to 300 different surfaces every 30 minutes, whereas a person with a severe disability will often touch less than ten surfaces in the same amount of time.

In the 1960’s and 1970’s, researchers found that in the absence of adequate stimulation, the brain begins to hallucinate to make up for what’s missing. Subsequent studies, including one led by Dr. Jason A. Staal, at Beth Israel Medical Center in NYC, have proven that augmenting the environment with various sensory stimuli can actually reduce agitation, depression, and apathy in patients.

How Does It Work?

Snoezelen RoomIn Snoezelen therapy, multi-sensory environments are created using visual, auditory, tactile, and aromatherapy stimulation. The concept has been successful with people of all ages, and in this safe, comfortable setting, Alzheimer’s and dementia patients have found peace and solace. The “treatment” can elicit calmness, an overall feeling of wellbeing, and a sense of security. In some cases, memories are awakened through the process.

Depending on how they are used, light, sound, and scents can evoke a variety of responses, and there is a risk of overstimulation. For this reason, when creating a “Snoezelen room,” it’s important to tailor the setting to each individual’s unique needs. Ideally, patients should be presented with a variety of options and have the freedom to choose the sensory experiences they find most pleasing.

Case Study

In a 2011 interview, Angela Green of Christian Care Centers in Mesquite, Texas, discussed the success they’ve had with Snoezelen rooms in their Alzheimer’s/Memory Care unit.

“The agitated individual that’s not able to communicate verbally [and] that has a lot of frustration from the stimulation they’re receiving will go into the Snoezelen room and find peace and to relax and enjoyment… We found that the colors and the sound and the motion and the touch that they’re able to experience, all of those things involve all of their senses and give them a complete enjoyment of their surroundings and something to interact with. It’s not uncommon to see one laughing or dancing when they’re in the environment, and even having good memory recall to the point that they can answer questions.”

Snoezelen RoomSnoezelen and Alzheimer’s

I don’t know about you, but this is something I would have jumped at the opportunity to try with my mom. The obvious question: Why aren’t we hearing more about alternative treatments like this here in the United States? We all agree that research is critical, but we also owe the best quality of life possible to those who are living with Alzheimer’s right now, don’t we??

I could rattle off the litany drugs that Mom’s neurologist prescribed during the course of her illness – everything from citalopram for depression to heavy-duty psych drugs like Risperidone, Divalproex (Depakote), Olanzapine (Zyprexa), and Lorazepam (Ativan)… and the list goes on.

The last couple of years, the psychotropic drugs rarely eased her agony and terror. I have to wonder if something like Snoezelen therapy could have helped to calm and relax her during those horrible spells. Mom is gone now, so I’ll never know – but it’s certainly something other families should have the option of considering…

For more information on Snoezelen and Multi-Sensory Environments, consider visiting these sites:

  • American Association of Multi-Sensory Environments
  • International Snoezelen Association
  • Stepping Stones
  • WorldWideSnoezelen.com

Photo credit: WorldWideSnoezelen.com

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