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The Long and Winding Road…

~ An Alzheimer's Journey and Beyond

The Long and Winding Road…

Category Archives: Research

Spotlight on Dave Morgan, Ph.D., Alzheimer’s Researcher

21 Thursday Feb 2013

Posted by Ann Napoletan in Advocacy and Awareness, ALZ Assn - National, Facts & Figures, Prevention, Research, Washington

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Did you know:

  • While the death rate from heart disease, prostate cancer, breast cancer, HIV and stroke is declining, the number of Alzheimer’s deaths is rising—increasing 66 percent between 2000 and 2008.
  • Alzheimer’s is the only cause of death among the top 10 in America without a way to prevent, cure or even slow its progression.

The Alzheimer’s Association recently spoke to Dr. Dave Morgan, Chief Executive Officer/Director of the USF Health Byrd Alzheimer Institute, Distinguished Professor of Molecular Pharmacology and Physiology, and Director of Neuroscience Research for the College of Medicine and at the University of South Florida.

On a very encouraging note, Dr. Morgan said, “…my hope is that in the not-too-distant future, if you’re willing to get a PET scan or spinal tap to determine if you’re at risk, you’ll be able to take drugs to delay the onset of the disease and presumably prevent it in your lifetime.”

Additional food for thought:

“The analogy of Alzheimer’s to AIDS is an interesting one: About 20 years ago, AIDS advocates launched a campaign to gain federal funding for research, and it worked. The amount of money put into AIDS research was incredible – about $3 billion to this day, which helped lead to effective treatments for the disease.

On the other hand, Alzheimer’s has received significantly less federal funding than AIDS, yet it affects far more people and costs our nation 10 times as much. We’ve seen from the AIDS example that unevenness in funding can be overcome – and it can’t come too soon.”

To read more from Dr. Morgan, check out the entire article.

 

 

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State of the Union Address Shines the National Spotlight on ALZ

14 Thursday Feb 2013

Posted by Ann Napoletan in Advocacy and Awareness, ALZ Assn - National, NAPA, Research, Washington

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It pleases me to no end to share this communication released by the Alzheimer’s Association today. This is exactly the kind of exposure we need to drive home the importance of the war we are waging on this disease. Thank you, President Obama, for shining the spotlight on this impending national crisis.

—–

From Alzheimer’s Association President & CEO, Harry Johns
February 13, 2013

Last night, President Barack Obama mentioned Alzheimer’s in his State of the Union Address, the first time that’s happened in thirteen years.   He said:

Today, our scientists are mapping the human brain to unlock the answers to Alzheimer’s; developing drugs to regenerate damaged organs; devising new material to make batteries ten times more powerful.  Now is not the time to cut these job-creating investments in science and innovation.  Now is the time to reach a level of research and development not seen since the height of the Space Race.

The Alzheimer’s Association applauds the President for underscoring the importance of funding for medical research, and specifically research to end the Alzheimer’s epidemic. We must provide Alzheimer’s scientists with the resources they require in time for the huge generation of Baby Boomers who will as much as triple the ranks of the more than five million Americans who have Alzheimer’s today.  We must change the trajectory of Alzheimer’s if we are to address one of the most significant underlying cost drivers of Medicare and Medicaid.

Just as with the National Alzheimer’s Plan and the previous financial commitments from the Obama administration, the President’s statement about the importance of Alzheimer’s research in his State of the Union Address is based on recognition of the human and financial impact of Alzheimer’s.  It is another important step on this continuing journey which our Association has so much responsibility to lead.  It indicates the impact of our public work and our work behind the scenes.   It is also a clear signal that your work and the work of our more than 500,000 nationwide advocates to make Alzheimer’s a national priority is making a difference.

Just three weeks ago, the Alzheimer’s Advisory Council, on which I have the honor to serve, unanimously endorsed recommendations to Health and Human Services Secretary Kathleen Sebelius, as well as to Congress, to update the National Alzheimer’s Plan.  These recommendations include benchmarks to achieve the Plan’s goal of preventing and effectively treating this deadly disease by 2025. In keeping with the President’s remarks last night, we call on the President and Congress to take action in the coming days to fully support the critical first steps in implementing this plan – a plan that is a result of bipartisan cooperation by Congress, swift and effective implementation by the Administration, and the input of many Americans with Alzheimer’s, their caregivers and other advocates from across the country.

We must ensure that the National Alzheimer’s Plan is fully funded.  We must continue to raise concern about the disease to be commensurate with its impact and to raise awareness of our Association. We must expand the reach of programs so that all who face this disease know that they don’t have to face it alone. And we must ensure that promising research is supported, shared and optimized in our fight with the devastating, debilitating killer that is Alzheimer’s.

I look forward to our next steps together and to our ultimate success at achieving our mission.  Thank you for everything you do to make such advances possible.

Harry Johns
Alzheimer’s Association President & CEO

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Tuesday’s Gleanings

12 Tuesday Feb 2013

Posted by Ann Napoletan in "Super Foods", Advocacy and Awareness, Blogging, Caregivers, Diet, Helpful Resources, Humor, Inspiration, Research, Tips

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picWell, it seems my self-diagnosed ADHD is in full swing tonight. I sat down over an hour ago to finish my Caregivers piece for tomorrow… and lo and behold, I haven’t even opened the document yet.

BUT…. I found another wonderful resource for Alzheimer’s and dementia caregivers and advocates. Check out The Dementia Queen… “Insight with a dash of humor on the side.”

The DQ, Sue Paul, is an occupational therapist and geriatric specialist. She works with ALZ and dementia patients, and, like many of us, created her blog in hopes that her experiences can help those struggling with the disease(s). Kudos to Sue!

On another note, and speaking of great kudos, I received this message from Max Wallack today:

“Unfortunately, even with the support of so many tireless Alzheimer’s advocates, my cause for Alzheimer’s research is not the winner of the $10,000 award in the Kids Who Give contest. However, the contest was a wonderful experience because I came to have contact with so many people who share my passion to make a difference in the course of this disease. Today, one supporter even donated $5,000 of his private funds for Alzheimer’s research at BUSM. I will continue to work hard and pursue my lifelong goal to tackle this disease on multiple fronts, encompassing compassionate care of those afflicted, support for weary caregivers, and research to find treatments and, perhaps, a cure.”

On behalf of Alzheimer’s/dementia caregivers, advocates, and families, I’d like to congratulate Max not only on his efforts in the Kids Who Give contest, but really on all of his endeavors. I don’t doubt for a second that we’ll be hearing great things about this young man. His future is bright, and we’re thankful that he has committed himself to the ALZ cause.

And, last but not least… (I warned you, didn’t I?? ADHD!!)   Have a glass of red wine while you read this article –> Red Wine Provides Hope for Alzheimer’s Sufferers.

Researchers at the University of Leeds in the UK are finding that resveratrol, a compound found in red wine and green tea extracts, is not only good for the heart, but may also slow the progression of ALZ. The study, published in the Journal of Biological Chemistry, suggests that resveratrol prevents the formation of amyloid protein clumps which attach to brain cells, ultimately causing them to die.

So there you have it! In less than 400 words, we’ve met a Dementia Queen, celebrated an amazing young scholar and role model, and touted the benefits of red wine. How’s that for variety!?

~Goodnight friends.

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Marilyn, BA (before Alzheimer's)

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