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The Long and Winding Road…

~ An Alzheimer's Journey and Beyond

The Long and Winding Road…

Category Archives: Support system

National Caregivers’ Day: February 21, 2025

21 Friday Feb 2025

Posted by Ann Napoletan in Caregivers, Facts & Figures, Family, Support system

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alzheimers, alzheimers caregivers, caregiver support, caregiving, dementia, dementia caregivers, family caregivers, national caregivers day, unpaid caregivers

Did you know…

  • In 2023, over 11 million Americans provided unpaid care for people with Alzheimer’s or other dementias; that care was valued at $350 billion.
  • About 30% of dementia caregivers are age 65 or older, and 66% of caregivers live with the person they care for.
  • Approximately 10% of caregivers provide care to a spouse, while over half care for a parent or in-law. About one quarter of dementia caregivers are in the “sandwich generation,” meaning they are caring for an aging parent as well as at least one child.
  • Compared with caregivers of people without dementia, caregivers of those with dementia indicate more substantial emotional, financial, mental health, and physical challenges.
  • 41% of dementia caregivers have a household income of $50k or less.
  • Many dementia caregivers are at significant risk of social isolation as a result of their shrinking social networks.

Source: Alzheimer’s Association Facts & Figures 2024

Thank a caregiver every time you have the opportunity!

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This Week in Alzheimer’s

05 Saturday Nov 2016

Posted by Ann Napoletan in Advocacy and Awareness, Call to Action, Caregivers, Face of Alzheimer's, Galaxy A List, Helpful Resources, Inspiration, November-National ALZ Awareness Month, Research, Round Up, Support system, Treatments and Therapies, USAgainstAlzheimer's

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a list, alzheimers, alzheimers news, alzheimers research, alzheimers support, alzheimers week in review

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New Alzheimer’s/Cognitive Impairment Benefit from CMS!

On November 3, 2016, it was announced that the Centers for Medicare & Medicaid Services (CMS) has finalized its decision to pay for cognitive and functional assessments and care planning for patients with Alzheimer’s disease and other cognitive impairments. This milestone marks the first time people living with Alzheimer’s disease will have paid access to care planning with a medical professional. Read more here.

Does Deep Brain Stimulation Boost Memory in Alzheimer’s Patients?

Researchers at Toronto Western Hospital and Johns Hopkins University are hopeful about a clinical trial involving deep brain stimulation. One might think of this as a pacemaker for the brain; electrodes are implanted in the brain and deliver a steady stream of electrical impulses to the part of the brain that regulates memory. The study is currently moving into its third and final phase.  Read more here.

Greg O’Brien Honored

Journalist, author, and advocate Greg O’Brien received the inaugural Bea Lerner Valor Award at September’s third annual UsAgainstAlzheimer’s Out of the Shadows Dinner. The award is given to a person living with dementia and is named to honor the mother of UsAgainstAlzheimer’s co-founder, Trish Vradenburg. Read more here. 

National Alzheimer’s Awareness Month

The White House issued a Presidential Proclamation declaring November 2016 as National Alzheimer’ Awareness Month. Read more here. 

Alzheimer’s Talks: Dr. Rudy Tanzi

The transcript and recording from October’s Alzheimer’s Talks call have been posted. The call featured leading researcher, Dr. Rudy Tanzi, who spoke in depth about his new work on a microbial hypothesis of the causes of Alzheimer’s disease.   You can find the transcript and recording here. 

Easy Actions You Can Take to Make a Difference!

  • Take 30 seconds to provide hope to others touched by Alzheimer’s!! Introducing Adversity 2 Advocacy’s Project Hope Exchange! Learn more here.
  • Join the A List 1000 today! It just takes 5 minutes, and gives you an opportunity to help shape the future. Learn more here.
  • Participate in the Health-eBrain Study to help advance the cognitive health of caregivers. Learn more here.
  • Participate in a caregiver study being conducted at Xavier University. Learn more here. 

Looking for Support?

Join the UsAgainstAlzheimer’s Facebook Support Community! We have members all over the world who possess a vast amount of experience and who understand what you’re going through. Although each of our stories is unique, we’re bonded by a common experience – Alzheimer’s (or some other form of dementia). The Community provides a safe place to share fears, frustrations, and the moments of joy we all hunger for.  Find us here.

Book Giveaway

Last but not least, click here to enter for a chance to win a copy of Chicken Soup for the Soul: Living With Alzheimer’s and Other Dementias. In the book, you’ll find 101 stories that will inspire, validate, and comfort you. Winner will be drawn Friday, November 11.

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World Alzheimer’s Day – Join the A List 1000!

20 Tuesday Sep 2016

Posted by Ann Napoletan in Advocacy and Awareness, Call to Action, Caregivers, Facts & Figures, Galaxy A List, Research, Support system, USAgainstAlzheimer's, World ALZ Month

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a list 1000, alzheimers, Alzheimers advocacy, alzheimers awareness, world alzheimers day, world alzheimers month

Wednesday, September 21st, is World Alzheimer’s Day. To mark the day, please consider joining the A-List 1000. It’s a quick, easy, and extremely powerful initiative led by UsAgainstAlzheimer’s. Learn more here and sign up today – for yourself and the ones you love!
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The Long and Winding Road

Marilyn, BA (before Alzheimer's)

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