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The Long and Winding Road…

~ An Alzheimer's Journey and Beyond

The Long and Winding Road…

Category Archives: Tips

Music For Your Loved One

18 Saturday Jan 2014

Posted by Ann Napoletan in Behaviors, Caregivers, Giveaways, Mom, Music and Art, Products, Smiles, Tips, Treatments and Therapies

≈ 15 Comments

Tags

alzheimers, caregiving, dementia, music for alzheimers, music therapy

The winner is … Mary!

CD winner

 


old-radio
We’ve seen plenty of evidence that music can create magical moments for Alzheimer’s and dementia patients. It has the power to reduce depression and agitation, improve cognitive function, and provide wonderful opportunities for interaction with caregivers and loved ones. Music was certainly comforting to my mom, even in the very late stages of the disease.

One of the most compelling examples is illustrated in a YouTube video that went viral shortly after its 2012 release. “Henry” had been battling dementia for years, becoming completely withdrawn and non-communicative.  And then, the magic happened; caregivers played some of his favorite songs from years gone by, and he suddenly came to life.  The man who had previously barely spoken was now singing Cab Calloway’s hits and reminiscing about how much he loved music and dancing when he was young. It was nothing short of a miracle.

The past, which is not recoverable in any other way, is embedded, as if in amber, in the music and people can regain a sense of identity…  -Oliver Sacks, MD

Knowing firsthand how powerful music can be, Audrey Greene decided to combine her musical gift with years of eldercare experience to create a CD; however, she needed funding to make it happen. With that in mind, she began a Kickstarter campaign and with the help of 105 backers, raised over $4,700 to offset licensing and production costs.

During the crowd funding process, Audrey said, “At 57, I’m learning once again that almost anything is possible.” Indeed, this past November she realized her dream when “Mom’s Musical Memories” was released.

The CD contains 15 tracks, all carefully chosen for their potential to unlock memories, encourage reminiscing, and create musical moments of joy. Songs include old favorites like You Are My Sunshine, Somewhere Over the Rainbow, Let Me Call You Sweetheart, When the Saints Go Marching In, and Take Me Out to the Ballgame.

…Science aside; when an elder who’s been closed off and uncommunicative lifts her head, smiles, and begins to sing along, the power of music cannot be denied.  –Audrey Greene

The American Music Therapy Association says music not only encourages positive changes in mental status, but it can even be beneficial in pain management. Music also provides a wonderful opportunity for social interaction and reminiscence.

Research shows music touches areas of the brain that may not be damaged by the disease. In doing so, it brings those healthy pathways to the forefront. The result can be an astounding “awakening” like that experienced by “Henry” when he listened to songs from his era.

You can find Audrey’s CD on iTunes, Amazon, and Google Play, and she has graciously offered a copy to one lucky reader. To enter for a chance to win the CD, just leave a comment on this post. I’ll select a random winner on Saturday, January 25th. Good luck!


Audrey Greene has 20 years experience working at nursing facilities throughout Rhode Island. Her biggest musical influences are Ella Fitzgerald and Frank Sinatra, but she enjoys a wide variety of music, “anything from James Brown to Mozart.” Audrey’s goal is to raise awareness and encourage hope throughout the community with music. You can visit her website or find her on Facebook, and she can be reached via email at audreyjgreene@yahoo.com.

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Activities Designed With Your Loved One in Mind

05 Sunday Jan 2014

Posted by Ann Napoletan in Activities for Your Loved One, Caregivers, Helpful Resources, Products, Tips

≈ 4 Comments

Tags

alzheimers, alzheimers activities, caregiving, dementia, dementia activities, mindstart

My curiosity was piqued when Monica Heltemes, Occupational Therapist and founder of MindStart, contacted me recently. I began to read about her line of products and felt she had something special and definitely worth sharing!

The Problem

As loved ones progress toward the middle and late stages of dementia, finding appropriate activities can present a challenge. We’d prefer not to offer coloring books and puzzles designed for toddlers, but let’s face it – options are limited. Often, we’re forced to choose between products intended for children or those that are adult-oriented but likely to be too complicated – ultimately a big source of frustration.

elderly-womanRegardless of what stage they are in, dementia patients share a common desire to maintain a life of purpose. As the disease progresses, it’s increasingly critical to remember this need and make every effort to see that it is met. As cognitive function declines, this becomes more difficult; however, remaining as active and engaged as possible is vital to physical and emotional well-being.

The Solution

MindStart products are based on Monica Heltemes’ 15+ years of experience in working with dementia patients. Designs are also influenced by Reisberg’s Theory of Retrogenesis, Allen Cognitive Theory, and many occupational therapy practices.

Four characteristics make them ideal for individuals with cognitive impairment:

  • Simpler design with fewer steps and less detail
  • Adult-oriented themes to stimulate memories and encourage reminiscing
  • An appropriate level of challenge for various stages of dementia
  • Ease caregiver stress by reducing difficult behaviors and providing engaging activities

A small research study involving MindStart products was conducted at the University of Minnesota and results were encouraging. The study found that because MindStart products are adapted to meet the needs of dementia patients, they tend to require less supervision and assistance from caregivers. The patient is able to work independently, thus they experience more satisfying feelings of success and accomplishment.

Products Adapted for Dementia Patients

mindstart-puzzleAs you browse the various products, you’ll note that each one includes a recommendation indicating whether it’s best for high activity (early stage), medium activity (mid-stage), or low activity (late stage).

Some of the items I found particularly interesting include:

  • This is My Life Memory Book. This book includes space for photos as well as simple text prompts to help individuals record their life story. It is recommended for all stages and is a great way to encourage reminiscing. It’s also an excellent tool to help new caregivers to get to know your loved one.
  • Praise and Glory Book. This book is also recommended for all levels of activity. It includes well-known hymns and beautiful images to inspire connection to one’s faith. With large print and thick-stock pages that lay flat, it can be used individually, during family visits, or in small groups.
  • Chat Cards – Baby. My mom, like many dementia patients, absolutely adored babies. Even on her worst days, a visit from a small child always brought a smile to her face. These cards, featuring images of sweet babies along with conversation-starting ideas can help evoke emotions and bring memories to the surface.
  • Look and Lace cards feature bright images to encourage conversation and awaken memories, but they’re also great for individuals who enjoy working with their hands. According to MindStart, the repetitive nature of lacing activities is especially useful for mid-stage patients.

Be sure to peruse all of the products when you have a chance:

  • 12 and 24-piece puzzles featuring vivid colors and attention grabbing images
  • Various themed music DVDs
  • Games, books, and other activities

What activities have you found particularly beneficial for your loved one? One of my mom’s housemates loved folding laundry almost as much as playing games and working puzzles! At the end of the day, we all crave purpose… that doesn’t change when you have dementia.

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Common Sense Caregiving Discussion: Denial, Awareness, and More

01 Wednesday Jan 2014

Posted by Ann Napoletan in Advocacy and Awareness, Caregivers, Helpful Resources, Tips

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Tags

alzheimers, alzheimers awareness, alzheimers denial, caregiving, dementia

This week, I had the pleasure of participating in Gary LeBlanc’s Common Sense Caregiving discussion, along with Viki Kind, host of the Kind Ethics Radio Show, and Harry Urban, founder of the Forget-Me-Not Community on Facebook. Some thought provoking conversation regarding that thing we all seem to face at one time or another the (other) Big “D” – denial.

Topics also included the USAgainstAlzheimer’s Facebook Community, the Alzheimer’s Prevention Initiative, and some great ideas for raising awareness in 2014! Take a look!

Click here to watch the video: Common Sense Caregiving Discussion – 12.29.13

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