ALZ Lesson #423 – Rein in expectations.

While traveling this journey, there are those times when our expectations tend to exceed a realistic level, and of course that can only lead to disappointment. I’m learning, but it hasn’t been easy and I still slip up from time to time.

Even as recently as Thanksgiving 2010, I’ve created some extreme let downs by expecting too much.  2010:  Mom’s first Thanksgiving at Eason House, and I had great visions of having our traditional meal there. I baked pies ahead of time, prepared the sides, and shuttled everything to the house, where I would cook the turkey.

Oh, I had grandiose dreams of my mom having a wonderful day and even being able to help out in the kitchen.  We would have such a lovely meal, almost like old times.

Enter harsh reality.  It was one of the worst days mom had experienced since she’d been at Eason House.  Crying (sobbing), screaming, wanting to leave.  You name it.  By the time dinner was ready, my stomach was in absolute knots and I didn’t care if I never saw another  Thanksgiving dinner in my life.  That was really a turning point for us in terms of holidays; the realization that they would never be the same.  In fact, they would never even slightly resemble the old days, so we needed to work on some new traditions.  This past year, we did just that – no more overinflated expectations – new traditions for a new chapter in our lives.  Acceptance.

The past few days have threatened to yank me into the land of overly lofty expectations yet again, though on a lesser scale.

On Friday, I received an enthusiastic text from Eason House.  The girls were so excited; apparently mom was having a great day and was “talking up a storm.”  At one point she said, “That dog is mean,”  then a bit later she went to the fridge, pulled out a bowl of jello and said, “I want this.”   They couldn’t get over how clearly she was communicating.

But the coup de grâce was when they heard her say, “You know Ann.”  Well, if indeed that is what she said, that would be the first time she’s spoken my name in … well, in as long as I can remember.  I couldn’t believe it; I was so excited at the thought that I decided I’d go straight to the house after work.

Of course, by the time I got there, it was all over.  She was very tired, extremely restless, and lacking anything that even slightly resembled focus.  She wasn’t talking much at all.

Fortunately, I had been prepared for the worst.  As I drove out of downtown, I told myself to rein in my expectations.  Let’s face it, the odds of the visit going anything like what I had conjured up in my mind were slim to none.  Cautious optimism is one way to describe it; in a way, you hope for the best but prepare yourself for the worst.

That night, when it was all said and done, I left Eason House feeling disappointed and a little sad.  But for the most part, I was happy to know that she’d had those wonderful moments of clarity earlier in the day – even if I wasn’t there to share them with her…

Until next time…Carpe diem…

Long Term Care Insurance… Give it some thought.

This week, I deposited my mom’s final long term care claim check.  I wish I had a good record of what she paid in premium to compare against the three year benefit.  If I recall correctly, it wasn’t until after she retired that she purchased the policy from Unum, which makes a small part of me wonder if she was starting to think something was not quite right.  Or, perhaps she just decided it was a good idea.

A couple of years ago, I took out an LTC policy of my own through MetLife.  Honestly, had it not been for this situation with my mom, I doubt I would have even considered it.  MetLife has a program through my employer where they offer slightly discounted premiums; otherwise, I would have definitely gone with Unum. I can’t say enough good things about how wonderful they’ve been to work with.

Over its three years, that policy paid out close to $200,000. That may sound like a lot, and … it is a lot.  But, it’s important to know that if you’re going the private pay route, you’ll use every dime of that and then some. Bottom line, I can’t even begin to express what a blessing it has been to not have to worry about money for those first three years of care.

I truly believe that an LTC policy is well worth the money and is one of the most wonderful gifts we can leave to our families.  There is so much to deal with in the early years of this disease, and we often come to the realization that long term care is needed much too late, leaving very little time to find a facility and make all of the necessary arrangements.  Having the ability to defer money worries for awhile makes life just a bit easier.

Now things will start to get tight… thankfully, mom has a decent pension, but that combined with social security won’t cover her monthly expenses so we’ll have to start tapping savings.  Will there be enough money?  Well, that’s the $64,000 question, isn’t it?  I can’t control the future, but for right now, I know she’s getting the best care possible at Eason House, and I can’t ask for more than that.

If you’re interested in learning more about long term care insurance, check out this link to AARP’s offering through Genworth Financial or visit Unum’s website.

Until next time… Carpe diem…

Wisdom

My daughter posted this quote on her blog today.  When I saw it, it really hit home and got me thinking.

In the absence of clearly-defined goals, we become strangely loyal to performing daily trivia until ultimately we become enslaved by it.  ~Robert Heinlein

Read and reread that simple sentence… think about the words and the message for a minute.  We become enslaved by the daily trivia.  

Alzheimer’s Disease.  It’s never far from my mind, making it all the more important to BE HERE NOW.  This phrase was heavily used in an engagement type program we had at work a few years ago, and it has stayed with me.  Be here NOW.  Focus on NOW.  Don’t worry about tomorrow, don’t dwell on yesterday.  Live in such a way that if you die tomorrow, you’ll have no regrets.  Don’t get caught up in life’s ho hum routine…

So much of this is about not getting lost in the minutia – or the “daily acts of trivia” as the quote references.  We’re all guilty of plodding through the daily motions of life at some time or another… wake up, let the dog out, get ready for work, spend the day at office, come home, eat dinner, get ready for bed, go to sleep, repeat…  An easy trap to fall into, isn’t it?

This week, I challenge you to break free of that routine.  Each day, set a goal for yourself and follow through.  Plan to go for a walk at lunch, or call a friend you haven’t talked to in awhile.  Take a different route to work or get in that 30 minutes of exercise before calling it a day.  It doesn’t have to be anything monumental, but it will do wonders for waking up your soul and reminding you that life is so much more than a daily routine.

As they say, life isn’t a dress rehearsal, this is the main event! Don’t miss it!

Until next time… Carpe diem…