Happy Mama….

Had a very good visit with mom today.  Quite a few laughs, and those are the moments I cherish with her – seeing her content, seeing her happy.  Those are the moments…

One of the highlights occurred when she was jabbering away about something.  I think perhaps she was talking about kids, and in the midst of all of the sounds that didn’t make sense, she said – very clearly, “two, three, four.”  Doesn’t sound like much, but anytime she speaks with clarity, it makes me so happy.  I feel like this last med change does have her talking much better than she had been.  Before dinner, I was trying to get her to take her pills when she looked at me and said, “I DON’T LIKE THAT,” then pursed her lips together tightly and flicked one of the pills up in the air! Oh boy… she hasn’t lost her spunk, that’s for sure.

But, she was particularly loving today, too.  She kissed me several times, stroked my face, and told me she loved me.  Doesn’t get much better than that.

Unfortunately, though her mood was great, I couldn’t get her to eat dinner.  She had a bite or two of round steak and a couple of spoons of jello with bananas, but that was it.  No interest in eating, and she was ready to go to sleep when I left…   If there’s one thing I’ve learned, it’s to take the good and leave the bad.  It isn’t always easy, but it’s something to shoot for! Thankfully, today was mostly good… I’ll take that.

Until next time, Carpe diem.

Aetrex GPS Tracking Shoes

Check out this video from CNET introducing us to shoes that use GPS tracking technology.  These sneakers are designed to help Alzheimer’s and dementia sufferers maintain their independence by providing a tracking mechanism, should they wander off.

Not long before we made the decision to move mom out of her house, we had several issues with her “going for a walk” and actually wandering off, unable to find her way home.  Believe me, getting a phone call telling you that your mother’s neighbor found her walking along a busy street at rush hour is more than slightly disconcerting.

Even after we moved her to a large, private pay AL facility, there were some frightening moments.  She wore an ankle transmitter that would set off an alarm if she walked out of the building; however, due to the device malfunctioning or, as we later found, sheer negligence, this system was far from foolproof.  Despite this safeguard, she did have at least two serious elopement issues.  Both times, she was found down the street – once on a very cold night (after dark) in an area with no sidewalks.  She was actually spotted by a neighbor, who was concerned when he saw a woman, appearing to be confused, walking in the middle of the street. Thankfully, the good samaritan took her to his house and called the police.

The second incident was similar, but she headed in a different direction and was found at a very busy intersection.  Again, she was fortunately rescued by a concerned onlooker and safely returned to the AL facility.

Wandering is such a frightening issue, and elopement is a real concern in the large facilities where the staff-to-resident ratio is unimaginable.  We were so thankful to have a happy ending both times, but these are just examples of what can happen – even in a $5k / month private pay assisted living facility.

The Aetrex GPS tracking shoes could definitely be a blessing under the right circumstances.  Of course, there would be a couple of obvious issues.  They require charging, and they do have to be worn in order to serve their purpose.  That sounds like a small thing, but if you’ve dealt with someone suffering from ALZ, you know that even following simple directions can be impossible for them.  I do think in the right situation, they could provide some peace of mind for caregivers, and you can’t put a price tag on that.

On a similar note, if you know someone dealing with these issues, please make sure they are aware of the Alzheimer’s Association’s Safe Return program in conjunction with MedicAlert.  For a small fee, this can truly be a life saver….

Striking a balance between allowing independence and assuring safety can be extremely challenging.  The more aids and tools you have at hand, the more likely it is that your loved one will remain happy and safe.

Until next time… Carpe diem…

A few words on genetic testing…

Just the other day, I was reading this piece on genetic testing.

I’ve had a number of people ask, “If there was a foolproof genetic test for Alzheimer’s, would you want to have it?”

That’s a question I’ve pondered over and over again in my mind.  Part of me says, YES!  I want to know so that I can get into a clinical trial, so that I can be prepared, so that I can eat blueberries for every meal and start consuming coconut oil by the jar.  Hell, for that matter, maybe I should slather the stuff on every inch of my body before bed at night!  Couldn’t hurt, right?

When it’s all said and done, I think I’d rather prepare for the worst and hope for the best, while doing everything I can to prevent it (appropriate diet, mental & physical exercise, etc).  Sure, it would be a relief to know I didn’t have to worry, but would it be worth the risk of knowing I WOULD get it if that were the case?  I’m just not sure how well I would handle living with that knowledge every day for the rest of my life.

So, if it was a possibility, would you go with Certainty or stick with Uncertainty?



Now, while you’re casting your vote, I’m off to bathe in coconut oil and work on the New York Times crossword puzzle!  I’ll be back soon!

Until next time… Carpe diem…