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The Long and Winding Road…

~ An Alzheimer's Journey and Beyond

The Long and Winding Road…

Tag Archives: Alzheimers advocacy

Call to Action!

17 Friday Jan 2014

Posted by Ann Napoletan in Advocacy and Awareness, ALZ Assn - National, Facts & Figures, Research, Washington

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Alzheimers advocacy, alzheimers budget, alzheimers research, alzhiemers, dementia

WhiteHouseA record $122 million increase for Alzheimer’s was passed by Congress tonight. While there is still more work to be done, we have inspired a bipartisan effort to make Alzheimer’s a national priority. Our voices have been heard!

Please click the URL below and take a minute to ask the President to swiftly sign the FY2014 funding bill into law.

https://act.alz.org/site/Advocacy?cmd=display&page=UserAction&id=1178

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Thank you, Alzheimers.net!

28 Saturday Dec 2013

Posted by Ann Napoletan in Advocacy and Awareness, Alzheimers.net, Blogging, Helpful Resources, Ruminations

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alzheimers, Alzheimers advocacy, alzheimers blogs, dementia

best-alzheimers-blogs-2013What a pleasant surprise to learn that Alzheimers.net has included The Long and Winding Road among its five Best Alzheimer’s Blogs of 2013.

I’m honored to be included in the company of:

  • Bob DeMarco of the highly regarded Alzheimer’s Reading Room, a leading source of Alzheimer’s news with a knowledge base containing over 4,000 articles.
  • Lori LaBey of Alzheimer’s Speaks, recognized by Dr. Oz as the #1 online influencer for Alzheimer’s. Lori is also a sought after speaker and host of Alzheimer’s Speaks Radio.
  • The incomparable Norman McNamara, who is spearheading the movement for dementia-friendly communities worldwide and has had several face-to-face meetings with Prime Minister David Cameron who recently hosted the G8 Dementia Summit in London.
  • Rick Phelps and the fantastic folks at Memory People, offering the latest information as well as compassion, understanding, and real-time support for its nearly 5,000 members.

Thanks to these tireless advocates for their hard work and great example, and to Alzheimers.net for including The Long and Winding Road in their 2013 top 5!

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From the Desk of George Vradenburg: Please Take Action

23 Monday Dec 2013

Posted by Ann Napoletan in Advocacy and Awareness, Research, USAgainstAlzheimer's, Washington

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alzheimers, Alzheimers advocacy, alzheimers funding, alzheimers research, dementia

USAgainstAlzheimers

Friends –

We’ve finally got a budget deal – now what will Congress do with it?

The next three weeks are crucial in determining how much to invest in stopping Alzheimer’s.

Urge your members of Congress to increase funding for Alzheimer’s research now.

I was proud to participate at last week’s G8 Dementia Summit in London where world leaders recognized the leadership of the United States by endorsing our goal of preventing and treating Alzheimer’s by 2025. This landmark action marks a historic step forward in the global fight against Alzheimer’s.

And Wednesday, Congress took what could be the first step in freeing up additional funding for Alzheimer’s research by passing the first budget in years. Your advocacy helped make this happen!

But will Congress use the increased flexibility in this budget deal to allocate the funding needed to reach the goal of stopping Alzheimer’s by 2025?

The next three weeks will be crucial in determining funding levels for Alzheimer’s research in Fiscal Year 2014.

Please urge your members of Congress to support a significant increase in funding for Alzheimer’s research as they begin to flesh out the details of the new budget agreement.

Although the bi-partisan budget deal that Congress passed this week partially addresses the deep budget cuts – known as “sequestration” – that went into effect earlier this year, it does not yet determine the level of funding for NIH and for Alzheimer’s. The current level of Alzheimer’s research funding is only about one-quarter of the amount leading Alzheimer’s scientists have deemed as the minimum necessary to achieve the goal of ending Alzheimer’s by 2025.

Last week, at the landmark G8 Dementia Summit1, member nations recognized the leadership of the United States by committing to identify an effective therapy for dementia by 2025 and to significantly increase the amount of funding for dementia research to reach that goal. This action underscores how the U.S. is seen as leading the global movement to stop Alzheimer’s disease, just as we played a similar role in global efforts to prevent and treat HIV/AIDS a decade ago.

Now Congress must respond to the call of the G8 and provide adequate funding for Alzheimer’s research so this country can continue to demonstrate its leadership in the global fight to stop Alzheimer’s by 2025.

Ask your members of Congress to urge the Appropriations Committee to include an $80 million increase in Alzheimer’s research, as well as an additional $20 million to support Alzheimer’s patient and caregiver programs in the spending package they’re creating right now.

Thanks to all your efforts in fighting the sequester and to the successful G8 Dementia Summit last week, momentum is building – now it’s up to us to turn that momentum into real-world action.

Your members of Congress need to hear from you today to ensure that ending Alzheimer’s is a top priority. Please send your message now.

To stop Alzheimer’s, we have to be brave and demand action – and insist that our leaders share our courage. Only when we join together as an engaged and enraged community will we stop this disease.

Sincerely,

George Vradenburg
Chairman and Co-Founder
USAgainstAlzheimer’s

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