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The Long and Winding Road…

~ An Alzheimer's Journey and Beyond

The Long and Winding Road…

Tag Archives: caregiver

Caregiver Study – Seeking Participants

07 Saturday Dec 2013

Posted by Ann Napoletan in Caregivers, Life After Caregiving, Research, Sandwich Generation

≈ 5 Comments

Tags

alzheimers, caregiver, caregiving, dementia, research study

Posting for Laura Lewis, a doctoral student seeking current and former caregivers to participate in a research study she is conducting online. Details below.

______

Hey everyone, I am not currently a caregiver, but I am an oncology nurse and a graduate nursing student studying dementia after my experiences taking care of my grandmother at the end of her life. I am looking for help with a study I am doing for my dissertation and I am posting the information here…

Volunteers wanted for a Nursing research study on caregiving for a loved one at the end of life!

My name is Laura Foran Lewis and I am a doctoral student in the School of Nursing at the University of Connecticut. I am looking for individuals who may be willing to participate in a research study about family caregivers. The purpose of this research study is to explore the experience of caregiving for a loved one with dementia (including Alzheimer’s disease) at the end of life.

I am looking for individuals who took care of someone with dementia who passed away in the last 10 years. You may have cared for them at home, or they may have been in assisted living or in a nursing home. Participation is entirely online and includes answering a few questions about your experience as a caregiver. It can take as long or short as you like, depending on how much you decide to share.

To find out more about this study or to participate, please see the study website: http://www.caregiverstudy.weebly.com/ or email me directly at laura.foran@uconn.edu.

Thank you for your consideration!
Laura Lewis, RN, MSN, Student Investigator
Principal Investigator: Cheryl Beck, DNSc, CNM, FAAN

…Also please SHARE if you are willing! I am really passionate about helping those with dementia and their families, and your participation will help me make this study meaningful!! Thank you!!

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The Impact of Long-Term Caregiving and Dementia

13 Wednesday Nov 2013

Posted by Ann Napoletan in Advocacy and Awareness, Caregivers, USAgainstAlzheimer's

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Tags

Alzheimers advocacy, alzheimers awareness, caregiver, caregiving, dementia awareness, usagainstalzheimers

“This is unacceptable for our future…” ~Meryl Comer, President, Geoffrey Beene Foundation, Alzheimer’s Initiative

Please watch this short video and then share it with several others. It’s a step toward increasing awareness and understanding…

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Gratitude

05 Tuesday Nov 2013

Posted by Ann Napoletan in Caregivers, Caregivers.com, Helpful Resources, Inspiration, Ruminations

≈ 1 Comment

Tags

21-day gratitude challenge, alzheimer's caregiver, alzheimers, caregiver, caregiving, dementia, gratitude

grat·i·tude noun \ˈgra-tə-ˌtüd, -ˌtyüd\
: a feeling of appreciation or thanks

In November, as Thanksgiving approaches, the word “gratitude” seems to be popping up everywhere. It’s a shame we don’t focus on our blessings as much as we should year ’round, but I’m thankful to be surrounded by reminders this month.  autumn

Even under the best circumstances, it’s easy to get caught up in the crazy pace, endless demands, and mind-numbing routines that tend to define life in the 21st century. The danger, of course, is that we become oblivious to the little miracles that surround us daily.

And Then There’s Caregiving

Let’s keep it real here – when you’re a caregiver, gratitude can be hard to come by. You’re pulled in a million directions, stressed to the max, and you often find yourself just trying to keep your head above water. You’re likely faced with some of the most difficult decisions of your life and each step forward leads you deeper into the unknown.

The days of being proactive are a distant memory – these days, reactive mode is the norm. To add insult to injury, you’re watching someone you love dearly slip further away with each passing moment.

It’s easy to see why gratitude isn’t the foremost thing on your mind…

Conscious Cultivation

autumn-leavesAs hokey as it may sound, the truth is gratitude has the power to get us through the most challenging of times if we just make a small effort.

Several months ago, I wrote an article for Caregivers.com discussing the idea of “cultivating gratitude”. It’s all about being aware of the world around us and realizing even in the seemingly mundane, there are great blessings.

November is the perfect time to give this a try. Each day this month, take just a few minutes in the morning or right before bed to jot down a couple of things you’re thankful for. There’s plenty of inspiration at every turn, and you can even join a group of 6,000 or so new friends in the KindSpring 21-Day Gratitude Challenge beginning November 7th.

Happiness is not what makes us grateful. It is gratefulness that makes us happy.  -Brother David Steindl-Rast

It’s a Journey

What do you have to lose, right? Give it a whirl and see if you don’t notice your outlook is a little brighter and you’re consciously experiencing more moments of joy.

Remember that some days, you may really have to dig deep to find just one thing you feel grateful for. It’s not always going to be a big-ticket item; in fact, most often, it will be something small.mom hands

  • Having 20 minutes to enjoy your coffee before the rest of the house wakes up.
  • A smile from the loved one you’re caring for.
  • Your warm bed on a cold night.
  • The fact that Mom ate her lunch.
  • The scent of a favorite candle.

Perspective

In hindsight, with it all said and done, I truly believe our Alzheimer’s journey taught me that the little things in life really are the big things. I’m not saying I walk around in a state of euphoria all day long (I wish!), but it’s all about perspective.

In my case, it’s an ongoing process; I have to consciously remind myself of what’s important and of my many blessings. In fact, I’m using the 21-Day Gratitude Challenge as motivation to get back into the habit of writing down the things I’m thankful for each day.

Join me in the challenge and let me know how it goes!!

 

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Marilyn, BA (before Alzheimer's)

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