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The Long and Winding Road…

~ An Alzheimer's Journey and Beyond

The Long and Winding Road…

Tag Archives: dementia

Walk, Run, Bike, and Earn!!

28 Tuesday Jan 2014

Posted by Ann Napoletan in Advocacy and Awareness, ALZ Assn - National, Fundraising, Technology, Tips

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Tags

alzheimers, alzheimers association, alzheimers fundraising, charity miles, dementia

charity miles“I’m just one person. In the grand scheme of things, how much of a difference can I really make?”

Common sentiment. I’m sure most of us have asked ourselves that question a time or two.

The fact is, we CAN make a difference; there are all kinds of ways to help and not all of them involve a huge financial or time commitment!

Have you heard about Charity Miles? You can download this great little app for your iPhone or Android device, and it’s FREE!

With Charity Miles, you can earn money for the Alzheimer’s Association when you take a walk, go for a run, or hop on your bicycle! Before you head out, just launch the app and choose the Alzheimer’s Association as your charity. As you walk/run/ride, you’ll earn 10 cents/mile for biking and 25 cents/mile for walking or running! It’s THAT easy! (See Terms of Service for complete details.)

snowybikeThose of us in the midwest and east are currently mired in the latest arctic blast, while some folks are posting “selfies” as they sip margaritas on the beach!! But that’s okay!!

Whether you’re living in a climate that affords you the opportunity to enjoy those walks and rides year ’round or you’re like me and dreaming of spring – download Charity Miles and let’s earn some easy money for the Alzheimer’s Association!  (And tell all your friends, too!!)


Addendum to original post:  Note that in order to complete the donation process, users must accept sponsorship and share via either Twitter or Facebook. Thanks to Lynda Everman for this important piece of information!

Excerpt from Charity Miles Terms of Service

Earning Sponsorships.  You can earn sponsorships for a different Charity (or the same Charity) each time that you use the Application.  To begin earning a sponsorship, simply swipe the Application’s home screen to select your desired Charity.  Once you have selected your Charity, please choose whether you want to walk, run or bike… And then press the “START” button to commence a session.  

Once you commence a session, the Application will track your distance and, subject to the amount of the Purse, you can earn 25¢ per mile for your chosen Charity while walking or running, and 10¢ per mile while biking.  The Application will convey your achievements both in terms of: (i) the miles you complete; and (ii) the real world impact that you can help your Charity fund.  Please note that our expressions of your real world impact are good faith approximations and may not be exact in each case.

When you finish a session, the Application will summarize your achievements and offer you a sponsorship for your Charity.  To accept the sponsorship, you will be asked to share your achievements, raise awareness for your Charity and (please) thank your Sponsor on Facebook and/or Twitter.  In each instance, we will present you with a proposed but editable message to share.  Subject to the User Content Rules (described below) you can say anything you want in these messages.  However, as we discuss below, we encourage you to thank your Sponsors.

Also, please note: if you do not accept the sponsorship, then your achievements will not accrue on behalf of your Charity.  We have instituted this policy for two reasons.  First, walking, running and biking for charity is not just about raising money—it is also about raising awareness.  Therefore, we want to encourage you to use Charity Miles to promote your Charities as much as possible.  

Second, while our Sponsors are genuinely grateful for the opportunity to support you, we are just as grateful for their support.  So, if you are grateful for your Sponsor’s support, then we encourage you to promote them too.  It’s not required.  But the point of Charity Miles is to turn amateur walkers, runners and bikers into sponsored athletes.  And just like professionally sponsored athletes, we should try to do right by our Sponsors.  Remember: the more we support our sponsors, the more they will support us.  And the more they support us, the bigger the Purse will be for the Charities!

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Music For Your Loved One

18 Saturday Jan 2014

Posted by Ann Napoletan in Behaviors, Caregivers, Giveaways, Mom, Music and Art, Products, Smiles, Tips, Treatments and Therapies

≈ 15 Comments

Tags

alzheimers, caregiving, dementia, music for alzheimers, music therapy

The winner is … Mary!

CD winner

 


old-radio
We’ve seen plenty of evidence that music can create magical moments for Alzheimer’s and dementia patients. It has the power to reduce depression and agitation, improve cognitive function, and provide wonderful opportunities for interaction with caregivers and loved ones. Music was certainly comforting to my mom, even in the very late stages of the disease.

One of the most compelling examples is illustrated in a YouTube video that went viral shortly after its 2012 release. “Henry” had been battling dementia for years, becoming completely withdrawn and non-communicative.  And then, the magic happened; caregivers played some of his favorite songs from years gone by, and he suddenly came to life.  The man who had previously barely spoken was now singing Cab Calloway’s hits and reminiscing about how much he loved music and dancing when he was young. It was nothing short of a miracle.

The past, which is not recoverable in any other way, is embedded, as if in amber, in the music and people can regain a sense of identity…  -Oliver Sacks, MD

Knowing firsthand how powerful music can be, Audrey Greene decided to combine her musical gift with years of eldercare experience to create a CD; however, she needed funding to make it happen. With that in mind, she began a Kickstarter campaign and with the help of 105 backers, raised over $4,700 to offset licensing and production costs.

During the crowd funding process, Audrey said, “At 57, I’m learning once again that almost anything is possible.” Indeed, this past November she realized her dream when “Mom’s Musical Memories” was released.

The CD contains 15 tracks, all carefully chosen for their potential to unlock memories, encourage reminiscing, and create musical moments of joy. Songs include old favorites like You Are My Sunshine, Somewhere Over the Rainbow, Let Me Call You Sweetheart, When the Saints Go Marching In, and Take Me Out to the Ballgame.

…Science aside; when an elder who’s been closed off and uncommunicative lifts her head, smiles, and begins to sing along, the power of music cannot be denied.  –Audrey Greene

The American Music Therapy Association says music not only encourages positive changes in mental status, but it can even be beneficial in pain management. Music also provides a wonderful opportunity for social interaction and reminiscence.

Research shows music touches areas of the brain that may not be damaged by the disease. In doing so, it brings those healthy pathways to the forefront. The result can be an astounding “awakening” like that experienced by “Henry” when he listened to songs from his era.

You can find Audrey’s CD on iTunes, Amazon, and Google Play, and she has graciously offered a copy to one lucky reader. To enter for a chance to win the CD, just leave a comment on this post. I’ll select a random winner on Saturday, January 25th. Good luck!


Audrey Greene has 20 years experience working at nursing facilities throughout Rhode Island. Her biggest musical influences are Ella Fitzgerald and Frank Sinatra, but she enjoys a wide variety of music, “anything from James Brown to Mozart.” Audrey’s goal is to raise awareness and encourage hope throughout the community with music. You can visit her website or find her on Facebook, and she can be reached via email at audreyjgreene@yahoo.com.

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Call to Action!

17 Friday Jan 2014

Posted by Ann Napoletan in Advocacy and Awareness, ALZ Assn - National, Facts & Figures, Research, Washington

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Tags

Alzheimers advocacy, alzheimers budget, alzheimers research, alzhiemers, dementia

WhiteHouseA record $122 million increase for Alzheimer’s was passed by Congress tonight. While there is still more work to be done, we have inspired a bipartisan effort to make Alzheimer’s a national priority. Our voices have been heard!

Please click the URL below and take a minute to ask the President to swiftly sign the FY2014 funding bill into law.

https://act.alz.org/site/Advocacy?cmd=display&page=UserAction&id=1178

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