• Home
  • Helpful Resources
  • Reading List
  • Recommended Blogs
  • Marilyn’s Legacy: A World Without Alzheimer’s
  • About Me
  • Contact Me

The Long and Winding Road…

~ An Alzheimer's Journey and Beyond

The Long and Winding Road…

Author Archives: Ann Napoletan

Caregiver App Roundup

18 Thursday Jul 2013

Posted by Ann Napoletan in Caregivers, Caregivers.com, Helpful Resources, Technology, Tips

≈ 1 Comment

Check ouiphonet this great article from Jeff Anderson at A Place for Mom – it provides a nice summary of the various smartphone apps I’ve reviewed over the past several months (and a few additional ones). Do you know anyone who might find this information useful? If so, please share it with them!

7 Best (and Worst) Apps for Caregivers 

 

Share this:

  • Share on X (Opens in new window) X
  • Share on Facebook (Opens in new window) Facebook
  • Share on Pinterest (Opens in new window) Pinterest
  • Share on Reddit (Opens in new window) Reddit
  • Share on LinkedIn (Opens in new window) LinkedIn
  • Share on Tumblr (Opens in new window) Tumblr
  • Email a link to a friend (Opens in new window) Email
Like Loading...

Maria Shriver Looks at Early Diagnosis

17 Wednesday Jul 2013

Posted by Ann Napoletan in Advance Directives, Advocacy and Awareness, ALZ Assn - National, Early Onset, Genetic Testing, Research, Signs and Symptoms

≈ Leave a comment

Source: http://www.today.com/health/life-more-precious-now-why-early-detection-alzheimers-important-6C10647845

Linda Carroll
TODAY contributor

The memory problems started when Nancy Albertson hit her late 50s. Some may have blamed stress or poor sleep for difficulties finding words, but Albertson’s mother had died from Alzheimer’s disease and she knew it the early warning signs.

An articulate woman who taught English as a second language, Albertson wasn’t used to searching for a word and coming up empty.

“I wanted to say something or write something and I thought, I can’t get that word,” she told NBC News special anchor Maria Shriver, who also lost a parent to the disease. “I’m not sure what that word is that I want to use.”

Her family doctor initially assumed there must be some other cause for Albertson’s memory loss. “I think it’s something that you don’t think of in people under the age of 60 very often,” Dr. Gordon Golden, a primary care physician told TODAY.

But then Albertson’s husband, Rick, added some more detail.

“Her husband Rick was very concerned that this was not the same Nancy he had known and loved for years,” Golden said.

Golden referred Nancy to a neurologist who eventually diagnosed her with early onset Alzheimer’s disease.

And just like that Nancy Albertson became one of the faces of a disease that is becoming epidemic. More than 5 million people in the United States have Alzheimer’s and that number is expected to nearly triple by the year 2050, according to the Alzheimer’s Association.

About 4 percent of that 5 million, or about 200,000 people, have early onset disease, just like Nancy Albertson, according to the Alzheimer’s Association.

Because Alzheimer’s is so much less common among people under the age of 65, doctors often assume that there might be another explanation for symptoms.

But there are signs that should ring the alarm, including:

  • Memory loss that disrupts daily life
  • Challenges in planning or solving problems
  • Confusion with time or place
  • Difficult with language or reading
  • Changes in mood and personality

New guidelines being presented at the Alzheimer’s Association International Conference in Boston this week may help doctors more easily diagnose the disease. Other researchers at the meeting are reporting scanning studies that allow doctors to diagnose the disease earlier – even before a patient has any observable signs. The hope is that a treatment will be found that will halt the disease that attacks the brain some 20 years before it causes symptoms.

While there is no cure for Alzheimer’s right now, there are medications that help ameliorate its symptoms. Those medications have helped Nancy Albertson live a more normal life – for now at least.

While some people might shy away from getting an early diagnosis when there isn’t a cure, NBC chief medical editor Dr. Nancy Snyderman says it’s extremely important to find out.

“I can’t underscore enough the need to get family business in order and knowing that you are legally and financially OK,” she said. “And having that conversation.”

The other reason to find out, Snyderman said, is to have an opportunity to participate in clinical trials testing out new medicines.

Once Nancy Albertson knew she had Alzheimer’s, she struggled trying to decide how to tell her four siblings about her diagnosis.

In the end she decided to write them a letter, in which she explained, “one thing I am fortunate for is that I am able to get more help than mom did.”

She also told them that they shouldn’t worry about her. “I feel much closer to God. And between God, my husband, and the medicine, I think my life is better now – because life is more precious now.”

Share this:

  • Share on X (Opens in new window) X
  • Share on Facebook (Opens in new window) Facebook
  • Share on Pinterest (Opens in new window) Pinterest
  • Share on Reddit (Opens in new window) Reddit
  • Share on LinkedIn (Opens in new window) LinkedIn
  • Share on Tumblr (Opens in new window) Tumblr
  • Email a link to a friend (Opens in new window) Email
Like Loading...

Case Study: Elder Abuse

16 Tuesday Jul 2013

Posted by Ann Napoletan in Blogging, Neglect and Abuse

≈ 4 Comments

older-man-in-wheelchairSeveral weeks ago, I did a post on elder abuse. Today, a fellow blogger shared this post with me. With her permission, I’m sharing the link here because people need to hear stories like this firsthand and understand that these things happen every day.

Absolutely horrible, terribly unpleasant to think about… can’t even imagine that another human being could be so cruel… Bottom line, though, unless we have the conversation – rather than sweeping the problem under the rug – it will continue.

Kudos to this family for sharing their story.

Share this:

  • Share on X (Opens in new window) X
  • Share on Facebook (Opens in new window) Facebook
  • Share on Pinterest (Opens in new window) Pinterest
  • Share on Reddit (Opens in new window) Reddit
  • Share on LinkedIn (Opens in new window) LinkedIn
  • Share on Tumblr (Opens in new window) Tumblr
  • Email a link to a friend (Opens in new window) Email
Like Loading...
← Older posts
Newer posts →
© Copyright 2025
All Rights Reserved
The Long and Winding Road

Marilyn, BA (before Alzheimer's)

Contributor

Contributor

Recent Posts

  • The Latest Alzheimer’s Research Developments
  • National Caregivers’ Day: February 21, 2025
  • June 7, 2021: A Historic Day
  • UsAgainstAlzheimer’s National Alzheimer’s Summit: Don’t Miss It!
  • Happy 84th Birthday, Mom.

Enter your email address to follow this blog and receive notifications of new posts by email.

Join 443 other subscribers

Archives

Blog Directory & Business Pages at OnToplist.com

Blog Stats

  • 146,246 hits

Meta

  • Create account
  • Log in
  • Entries feed
  • Comments feed
  • WordPress.com
stats for wordpress

Categories

Popular Posts

  • About Me
  • Thank you!
  • A Special Bond
  • Monday ... on Caregivers
  • Telling the Story
  • Hiding In the Canned Goods Aisle...and Other Stuff
  • Walking a mile in his shoes...
  • CGSN: Focus on YOU!
  • Look for me on VoiceQuilt!
  • Caregiving: Imperfections, Weaknesses, Acceptance, and Forgiveness

Recent Comments

  • Motherhood: Lost and Found, a Memoir of a Mother’s Alzheimer’s | The Long and Winding Road… (alzjourney.com) | Ann Campanella on Motherhood: Lost and Found, a Memoir of a Mother’s Alzheimer’s
  • Betty Trimble on Film Review: Angel’s Perch
  • Carol on Caregiver PTSD: Fact or Fiction?
  • (3) Ritamae Reichardt on When Caring Takes Courage: A MUST HAVE Caregiving Guide
  • Mary Jo George on June 7, 2021: A Historic Day

Pages

  • 2013-2014 News Archive
  • Helpful Resources
  • Latest News & Events
  • Postmaster General Letter – Alzheimer’s Semipostal
  • R E S I S T Resources
  • Reading List
  • Recommended Blogs
  • About Me
  • Contact Me
Coming Soon!
Marilyn's Legacy: A World Without Alzheimer's, Inc.
Stay tuned!!

Blog at WordPress.com.

  • Subscribe Subscribed
    • The Long and Winding Road...
    • Join 443 other subscribers
    • Already have a WordPress.com account? Log in now.
    • The Long and Winding Road...
    • Subscribe Subscribed
    • Sign up
    • Log in
    • Report this content
    • View site in Reader
    • Manage subscriptions
    • Collapse this bar
 

Loading Comments...
 

    %d