• Home
  • Helpful Resources
  • Reading List
  • Recommended Blogs
  • Marilyn’s Legacy: A World Without Alzheimer’s
  • About Me
  • Contact Me

The Long and Winding Road…

~ An Alzheimer's Journey and Beyond

The Long and Winding Road…

Author Archives: Ann Napoletan

Alzheimer’s: When Will the Government Put Their Money Where Their Mouth Is?

03 Tuesday Feb 2015

Posted by Ann Napoletan in Advocacy and Awareness, ALZ Assn - National, Face of Alzheimer's, Facts & Figures, Helpful Resources, Life After Caregiving, NAPA, Research, Ruminations, USAgainstAlzheimer's, Washington

≈ Leave a comment

Tags

alzheimers, Alzheimers advocacy, alzheimers funding, alzheimers research, dementia

 


In recent days, staunch supporters including Senators Susan Collins (ME), Edward Markey (MA), Amy Klobuchar (MN), and Jerry Moran (KS) have encouraged President Obama to include an increase for Alzheimer’s research in his FY 2016 budget. After all, what’s a “plan” to end Alzheimer’s by 2025 without the funding necessary to do so?

And the Verdict is in

Disappointment ensued as the Obama Administration released the proposed budget yesterday, and Alzheimer’s was overlooked. In a press release, George Vradenburg, co-founder of USAgainstAlzheimer’s said, “If we as a nation do not make Alzheimer’s research a top priority, we simply cannot meet our national goal of preventing and treating Alzheimer’s by 2025.”

What will it take to convince our government that unless we do something to stop it, Alzheimer’s will be the public health crisis of our lifetime? Perhaps the powers-that-be need to listen carefully to Michael Auslin’s story, or that of Karen Garner, whose husband was diagnosed before his 50th birthday. What about Rebecca Emily Darling, who was just 26-years-old when her mother was diagnosed?

Proof in the Numbers

  • Alzheimer’s is the only cause of death among the top 10 in America that cannot be prevented, cured, or even slowed. More than 500,000 people die annually from Alzheimer’s.
  • Deaths from Alzheimer’s increased 68 percent between 2000 and 2010, while deaths from other major diseases decreased.
  • More than 5 million Americans are living with some form of dementia. If we remain on the current trajectory, that number will rise to 16 million by 2050.
  • Every 67 seconds, someone in the U.S. develops Alzheimer’s. By 2050, it will be every 33 seconds.
  • In 2014, the direct costs to American society of caring for those with Alzheimer’s totaled over $200 billion, including $150 billion in costs to Medicare and Medicaid.
  • Unless something is done to stop it, Alzheimer’s will cost an estimated $1.2 trillion (in today’s dollars) in 2050. Costs to Medicare and Medicaid will increase nearly 500 percent.

For more information, check out the Alzheimer’s Association’s 2014 Facts and Figures report.

Take Action

Consider this: Alzheimer’s research spending currently stands at less than 1% of the cost of care.

Please write or call your Senate and Congressional representatives. Ask them to support the fight to #ENDALZ.

If not now, when?

It’s been said there are two kinds of people: those who have been personally touched by Alzheimer’s and those who will be.

Share this:

  • Share on X (Opens in new window) X
  • Share on Facebook (Opens in new window) Facebook
  • Share on Pinterest (Opens in new window) Pinterest
  • Share on Reddit (Opens in new window) Reddit
  • Share on LinkedIn (Opens in new window) LinkedIn
  • Share on Tumblr (Opens in new window) Tumblr
  • Email a link to a friend (Opens in new window) Email
Like Loading...

An Alzheimer’s Anthem: Remember Me

24 Saturday Jan 2015

Posted by Ann Napoletan in Advocacy and Awareness, Cure Alzheimer's Fund, Events, Face of Alzheimer's, Fundraising, Inspiration, Mom, Music and Art, Research, Ruminations

≈ 1 Comment

Tags

#rememberme, alzheimers, alzheimers song, chris mann, cure alzheimers fund, dementia, remember me, rudy tanzi

#remembermeWhile there are plenty of things that stir my emotions, music can really send me into a tailspin. I still haven’t listened to the Glen Campbell song, I’ll Be Me. One day I will, but I’m not ready yet.

Over the past day or so, I’ve seen a couple of Facebook posts regarding a new song and video by Chris Mann, a 2012 finalist on The Voice.

Remember Me is the result of a collaboration between Mann and a rather unlikely suspect, world-renowned Alzheimer’s researcher, neuroscientist Rudy Tanzi.

A recent Rolling Stone article describes how the two met and what inspired the partnership. (Call me crazy, but I feel as though this could be a game changer with regard to bringing Alzheimer’s out of the shadows! Who could have imagined uttering the words “Rolling Stone” and “Alzheimer’s” in the same sentence?)

Tonight as I was driving home, I shook off my apprehension and clicked the play button to listen to this remarkably powerful song for the first time. Within seconds, I found myself sobbing – it’s difficult to describe the raw emotion I felt as the beautiful lyrics cut into my heart. A rush of piercing grief, intense regret, and tremendous loss washed over me – body and soul. It took my breath away in every sense of the word. I couldn’t help but imagine my mom…

I know there’ll come a day, when I have gone away / And the memory of me will fade / But darling think of me, and who I use to be / And I’ll be right there with you again / I hope I’m one thing worth not forgetting / Tell me that you’ll never let me go

You can watch the poignant Remember Me video below, but please click over to iTunes and buy the single, then encourage your friends to do the same. A portion of proceeds will benefit the Cure Alzheimer’s Fund.*

 

Join the #RememberMe movement. Learn more -> here

*Since its inception in 2004, the Cure Alzheimer’s Fund (a 501(c)(3) nonprofit organization) has contributed $27.4 million to research. The founders cover all overhead expenses, and 100% of donations go directly to research. Dr. Rudy Tanzi is a key member of the organization’s research consortium.

Share this:

  • Share on X (Opens in new window) X
  • Share on Facebook (Opens in new window) Facebook
  • Share on Pinterest (Opens in new window) Pinterest
  • Share on Reddit (Opens in new window) Reddit
  • Share on LinkedIn (Opens in new window) LinkedIn
  • Share on Tumblr (Opens in new window) Tumblr
  • Email a link to a friend (Opens in new window) Email
Like Loading...

What if…

21 Wednesday Jan 2015

Posted by Ann Napoletan in Caregivers, Grieving, Life After Caregiving, Mom, Ruminations

≈ 2 Comments

Tags

alzheimers, dementia

I try very hard not to let myself go there… to the land of “what ifs.”

Just like the proverbial “coulda, woulda, shoulda,” that line of thinking is terribly counterproductive. Life is what it is; it unfolds the way it’s meant to unfold even if it doesn’t align with our expectations.

I try not to go there, because nothing positive can come of it.

However, sometimes when I’m not watching, “what if” reaches out from the dark of the night and grabs me with its razor-sharp claws. This selfish, cruel character has no regard for my well-being. Try as I might, I can’t escape the monster’s clutches.

I melt into it…

What if after having “one of those days,” I could stop at Mom’s house? What if we could sit and talk for a bit? She would share some pearls of wisdom, a plate of leftovers, and a healthy dose of humor. She’d top it off with a giant mom-hug and all would be right with the world again.

Oh the things we take for granted.

What if?

What if?

What if?

What if Alzheimer’s hadn’t taken her so early?

What if life was fair?

What if bad things didn’t happen to good people?

And then just as abruptly as it appeared, “what if” fades back into the shadows leaving me with an aching heart and a tear-stained face.

For now, I’m me again, keeping the “what ifs” at bay… until next time.

 

 

Share this:

  • Share on X (Opens in new window) X
  • Share on Facebook (Opens in new window) Facebook
  • Share on Pinterest (Opens in new window) Pinterest
  • Share on Reddit (Opens in new window) Reddit
  • Share on LinkedIn (Opens in new window) LinkedIn
  • Share on Tumblr (Opens in new window) Tumblr
  • Email a link to a friend (Opens in new window) Email
Like Loading...
← Older posts
Newer posts →
© Copyright 2025
All Rights Reserved
The Long and Winding Road

Marilyn, BA (before Alzheimer's)

Contributor

Contributor

Recent Posts

  • The Latest Alzheimer’s Research Developments
  • National Caregivers’ Day: February 21, 2025
  • June 7, 2021: A Historic Day
  • UsAgainstAlzheimer’s National Alzheimer’s Summit: Don’t Miss It!
  • Happy 84th Birthday, Mom.

Enter your email address to follow this blog and receive notifications of new posts by email.

Join 443 other subscribers

Archives

Blog Directory & Business Pages at OnToplist.com

Blog Stats

  • 144,916 hits

Meta

  • Create account
  • Log in
  • Entries feed
  • Comments feed
  • WordPress.com
stats for wordpress

Categories

Popular Posts

  • About Me
  • Thank you!
  • A Special Bond
  • Monday ... on Caregivers
  • Telling the Story
  • Hiding In the Canned Goods Aisle...and Other Stuff
  • Walking a mile in his shoes...
  • CGSN: Focus on YOU!
  • Look for me on VoiceQuilt!
  • Caregiving: Imperfections, Weaknesses, Acceptance, and Forgiveness

Recent Comments

  • Motherhood: Lost and Found, a Memoir of a Mother’s Alzheimer’s | The Long and Winding Road… (alzjourney.com) | Ann Campanella on Motherhood: Lost and Found, a Memoir of a Mother’s Alzheimer’s
  • Betty Trimble on Film Review: Angel’s Perch
  • Carol on Caregiver PTSD: Fact or Fiction?
  • (3) Ritamae Reichardt on When Caring Takes Courage: A MUST HAVE Caregiving Guide
  • Mary Jo George on June 7, 2021: A Historic Day

Pages

  • 2013-2014 News Archive
  • Helpful Resources
  • Latest News & Events
  • Postmaster General Letter – Alzheimer’s Semipostal
  • R E S I S T Resources
  • Reading List
  • Recommended Blogs
  • About Me
  • Contact Me
Coming Soon!
Marilyn's Legacy: A World Without Alzheimer's, Inc.
Stay tuned!!

Blog at WordPress.com.

  • Subscribe Subscribed
    • The Long and Winding Road...
    • Join 443 other subscribers
    • Already have a WordPress.com account? Log in now.
    • The Long and Winding Road...
    • Subscribe Subscribed
    • Sign up
    • Log in
    • Report this content
    • View site in Reader
    • Manage subscriptions
    • Collapse this bar
 

Loading Comments...
 

    %d