Call to Action: Do you have less than a minute to spare?

23 Monday Mar 2015

Posted by Ann Napoletan in Advocacy and Awareness, USAgainstAlzheimer's, Washington

Tags

alzheimers, Alzheimers advocacy, alzheimers funding

we_can_do_it_volunteers Hot off the press from our friends at USAgainstAlzheimer’s! They make it SO easy for you to let your voice be heard!

We need YOU and less than a minute of your time!

Last week we told you about the proposal for higher Alzheimer’s funding in the House. Now the message is making its way to the Senate.

A bipartisan group of senators is asking colleagues to make Alzheimer’s funding a priority in the government’s FY 2016 spending plan. The more senators we can get to join them, the greater our impact will be and the faster we have the research funding we need to find a cure and save lives.

But the Senate won’t act unless you make your voice heard.

Your senator needs to hear from you: This is our chance to make our voices heard and demand that Congress invest in desperately needed Alzheimer’s research.

Click here to send a letter asking your senator to make Alzheimer’s funding a priority and to sign the FY 2016 Senate Alzheimer’s Appropriations letter today.

With more research funding, we can stop Alzheimer’s. By making your voice heard, you’re helping move us forward in the fight for a cure. Thank you for standing with us against this devastating disease.

Sincerely,

Team USAgainstAlzheimer’s

Did you know….

18 Wednesday Mar 2015

Posted by Ann Napoletan in Advocacy and Awareness, ALZ Assn - National, Cure Alzheimer's Fund, Facts & Figures, Helpful Resources, Round Up, Tips, USAgainstAlzheimer's

≈ Leave a comment

Tags

alzheimers, Alzheimers advocacy, alzheimers awareness, dementia

An estimated 200,000 of the 5 million Americans living with Alzheimer’s are under the age of 65. Many are in their 40s and 50s.

When you donate to the Cure Alzheimer’s Fund, 100 percent of funds of your gift goes directly to research. The organization’s founders cover all overhead expenses.

Women are at the epicenter of the Alzheimer’s epidemic, which is why Maria Shriver recently announced her new initiative, Wipe Out Alzheimer’s (in partnership with the Alzheimer’s Association).

The Longest Day is June 21st and it’s not too early to start planning a dawn to dusk activity to honor your loved one and raise Alzheimer’s awareness!

A comprehensive list of helpful resources is just a click away! -> Resources

USAgainstAlzheimer’s makes being an advocate a piece of cake by providing EASY actions you can take to make a real difference. Sign up at http://www.usagainstalzheimers.org

The Alzheimer’s Association publishes a comprehensive Facts & Figures Report annually. Check it out to learn more.

You can call the U.S. Capitol switchboard to make your voice heard! Simply dial 202-224-3121 and ask for your member of Congress and/or Senators. For each office, give your name, explain that you’re a constituent and an Alzheimer’s advocate, and ask to speak with the Health Legislative Assistant. If that person is not available, ask to leave a message. Share your personal story and explain why you feel it’s critical that they support increased funding for Alzheimer’s.

The Long and Winding Road is also on Facebook! Stop by our page for your daily dose of inspiration and information!

Fog: It’s Not Just a Weather Condition

15 Sunday Mar 2015

Posted by Ann Napoletan in Advocacy and Awareness, Caregivers, Early Onset, Expectations, Face of Alzheimer's, Helpful Resources, Mom, Reblog

≈ Leave a comment

Tags

alzheimers, dementia, understanding alzheimers, younger onset alzheimers

A brilliant piece by Brian LeBlanc, who is living with young onset Alzheimer’s. When I think back to my mom in terms of what Brian is describing, it all makes sense. The moments of clarity. The fog rolling in and out. Never knowing when it will come or go. Thank you, Brian, for helping us understand, because understanding makes us better caregivers.

A Bit of Brian's Brilliance

I’m frequently asked, “how have you been” or “how are you feeling?” or “how was your day?” My most frequent response is “a little foggy.”

In an effort to help everyone understand what I am trying to say, I consulted www.merriam-webster.com and looked up fog. This is what I found:

nounˈfȯg, fäg

: many small drops of water floating in the air above the ground, the sea, etc.

: a state of mental confusion

The second definition, as you may have guessed, is the one that I refer to.

To give you an example, imagine driving down the road. Fog has set in and visibility is obstructed. You can’t see much, you’re cautious of your surroundings because of the dense fog. All of a sudden, you break through to a clearing. You can see all around you. Your vision is clear and you can proceed as…

View original post 197 more words