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The Long and Winding Road…

~ An Alzheimer's Journey and Beyond

The Long and Winding Road…

Category Archives: Advocacy and Awareness

Mad as Hell – at Alzheimer’s

24 Thursday Apr 2014

Posted by Ann Napoletan in Advocacy and Awareness, Face of Alzheimer's, Grieving, Life After Caregiving, Mom, Ruminations

≈ 4 Comments

Tags

alzheimers, Alzheimers advocacy, alzheimers awareness, dementia

Tonight, I don’t feel like beating around the proverbial bush – let’s just get right to it.

I’m MAD. Pissed. Irate. Infuriated.

Angry as hell that I don’t have my mom. Mad that when I have a day like I had today I can’t pick up the phone and talk to her about it. Furious that Alzheimer’s took her away just when she was supposed to be starting to enjoy the retirement she worked so hard for.

I know I’m not the only one who has ever felt this way, but at the moment it doesn’t matter. I want to shout from the rooftops. I want to shake the people who have the power, yet don’t do anything to change this situation. I want the world to know what this disease does and that it’s so much more than memory loss. I want them to realize this is not just a disease of the elderly; people are diagnosed in their 40’s and 50’s – sometimes even younger. I want the masses to be well aware that Alzheimer’s has NO SURVIVORS.

 

Mom would be 77-years-old if she were here today. She lived until two months past her 76th birthday. When she died, it had been nearly a decade since we’d been able to travel together and almost that long since we could sit and have a normal conversation. We missed out on all of those precious years together. At 77, she should have been able to travel to Napa with us a couple of weeks ago. Oh how she would have loved that trip!

My mom’s body was healthy and strong; had it not been for Alzheimer’s, I have no doubt she would be here enjoying an active retirement just like so many of her friends. And, right now I’d be on the phone telling her about my day while she reminded me that everything happens for a reason even if we don’t know what it is….

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The Long and Winding Road Needs You!!

23 Wednesday Apr 2014

Posted by Ann Napoletan in Advocacy and Awareness, ALZ Blog, Blogging

≈ 2 Comments

Tags

best senior living 2014

Hello friends…  I need your help. Voting in the 2014 Best Senior Living Awards ends in less than a week.

As some of you know, I started this blog with one goal in mind. I wanted to reach the widest audience possible to offer support and education, encourage advocacy, and share our story in hopes of helping others on their Alzheimer’s journey. I’m proud and honored that the blog has been nominated in the 2014 Best Senior Living Awards’ Blogs by Individuals category.

Here’s where you come in! Popular vote determines which nominees will make it to the final round, and getting to that point would increase The LaWR’s exposure significantly.

Right now I’m behind, but your votes can easily change that! If you have just 30 seconds to click the link below and vote for (i.e. “like”) The Long and Winding Road, I would be very grateful. Please help me as we continue this fight to END Alzheimer’s! Voting closes Monday, April 28. Thank you so much. ❤

Follow this URL to vote:
http://www.seniorhomes.com/b/2014-best-senior-living-awards/best-senior-living-blogs-individual/

Unfortunately, only those with Facebook accounts are eligible to vote because voting consists of clicking a “like” button on my voting page.

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Call to Action: Global Alzheimer’s Resolution

17 Thursday Apr 2014

Posted by Ann Napoletan in Advocacy and Awareness, USAgainstAlzheimer's, Washington

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Tags

#endalz, alzheimers, Alzheimers advocacy, alzheimers legislation, dementia

As the third most deadly disease in the U.S., Alzheimer’s is taking a huge toll on us. But it is not just a U.S. crisis, it’s a global crisis. And only by working together can we find a treatment or a cure.

Reps. Smith, Fattah, Waters, Burgess and Meadows have come together to propose the Global Alzheimer’s resolution, which would create a much-needed global action plan and fund for fighting Alzheimer’s.

Take action TODAY and tell your representatives to co-sponsor this critical legislation, H. Res. 489 – there’s no time to waste. It’ll take no more than a few minutes of your time, and your voice could make all the difference in the world.

Click here -> http://actions.usagainstalzheimers.org/p/dia/action3/common/public/?action_KEY=13792

And, please share with your friends and family.

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The Long and Winding Road

Marilyn, BA (before Alzheimer's)

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