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The Long and Winding Road…

~ An Alzheimer's Journey and Beyond

The Long and Winding Road…

Category Archives: Advocacy and Awareness

Film Review: Angel’s Perch

31 Saturday Aug 2013

Posted by Ann Napoletan in Advocacy and Awareness, Celebrities, Events, Films, Humor, Inspiration

≈ 10 Comments

Tags

alzheimers, alzheimers awareness, Angel's Perch, dementia

ap3Part 1 of 2. Stop back in the coming days for an interview with talented filmmakers J.T. Arbogast and Kimberly Dilts.

I’ve always said that caring for a loved one who has Alzheimer’s is like joining a club you never wanted to be a part of. It’s truly an experience that can only be understood by those who have been through it and witnessed its wrath.

Independent Filmmaking At Its Finest

Obviously, my curiosity was piqued immediately when I heard about Angel’s Perch, an independent film released earlier this summer. The filmmaker, J.T. Arbogast, lost his grandmother to Alzheimer’s in 2008, so it was logical that he would be more than qualified to make a movie on the subject.  …And was he ever!!

Angel's Perch - ColumbusWe hosted a sold out screening of Angel’s Perch here in Columbus and received a myriad of rave reviews. Sometimes even silence speaks volumes, and that was the case when at the end of the movie as the credits rolled, not a soul moved. You could have heard a pin drop in the theater – it was as though we all needed a few moments to absorb the tremendous story we had just seen played out on the giant screen before us. I really don’t have words to describe how I felt as I was leaving the event.

A Picture Painted Through Real Life Experience

jackThe story begins with Jack (played by Arbogast) on the verge of winning a potentially career-changing contract for his architectural firm. Like so many of us, one minute, life is normal – and then the phone rings, and in a split second the world is turned upside down.

His grandmother had just been found wandering, and her long-time caregiver, Betsy, was calling to explain what had happened. The incident sparked increased worries that living alone was beginning to compromise Polly’s safety. Understandably very concerned, in the midst of preparing for an important client presentation, Jack packed a bag, jumped in the car, and drove to West Virginia.

grandmakaneOne of the most poignant scenes in the film takes place when Arbogast’s character walks into his Polly’s house, sets his things down, and quietly gazes around the living room. Photographs and reminders of happier days; memories of special times spent with his grandmother over the years whirl through his mind.

I knew that feeling, as I had experienced similar moments in my own mother’s house. Later, I learned much of the filming, including that scene, actually took place in Arbogast’s grandmother’s house. Is it any wonder Jack’s experience felt so real?

From Historic Logging Town to Movie Set

cassmapThe film is set in Cass, West Virginia, a tiny spec of a town that was home to a booming paper mill in the early 1900’s. After the industry’s collapse, Arbogast’s grandparents had a hand in saving the town by convincing the powers-that-be to make it part of the state park system. In 1961, it became Cass Scenic Railroad State Park.

The same steam engine used to transport logs still carries many visitors on a scenic ride that combines a bit of history with some absolutely stunning views. Ironically, we had taken my mom to Cass for an autumn ride on the railroad several years before Alzheimer’s began to slowly wage war on her mind. Looking back, such a fond memory.

I don’t want to give away too much because you must find a way to see Angel’s Perch yourself. However, I can promise you a beautifully tender story peppered with moments of humor that will strike a chord with anyone who has traveled the Alzheimer’s journey. Only a member of our special “club” could make a movie so on point; there were scenes that could have literally been plucked right out of my life.

Flawless Casting

JoyceThe cast is phenomenal. Joyce Van Patten plays Polly so perfectly that you really forget she’s acting; I don’t know how she prepared for the role, but her portrayal is brilliant. Likewise, Arbogast’s Jack is authentic and believable – watching him deal with the emotional rollercoaster ride that comes with the disease was at times like looking in the mirror.

Ellen Crawford played Polly’s long-time caregiver and family friend beautifully. Her character, Betsy, clearly wrestled with her own emotions as she watched the Alzheimer’s progress, just as I watched my mom’s caregivers struggle with what was happening to the woman they had come to love.

Rounding out the cast were Ashley Jones as Jack’s adorable “girl-next-door” childhood friend, Ally Walker, who played a hilarious Judy – the resident beautician and town busybody and gossip, Jesse Sharp as Jack’s ambitious business partner, Kevin, and Elisabeth Hower as Jack’s wife, Sarah. Last but not least, two of Cass’ own made their big screen debuts in the film!

Local Talent Shines

DelbertDoc Snyder was portrayed by Green Bank resident, Mike Holstine, and Homer Hunter, of Stony Bottom, played Delbert, the endearing postman who was apparently rather popular with the ladies. Arbogast hit the nail on the head, saying Hunter “just about steals the film way from everyone else… he’d never acted a day in his life, but you sure wouldn’t have known it by his performance.” There was no question that the audience fell in love with him!

What is Tugg?

Arbogast and his wife, producer Kimberly Dilts, released the film through a relatively new distribution channel that allows people just like you and I to bring the film to our own local theaters. Kim said the grassroots method of getting the film in theaters “requires much more elbow grease, but it’s very gratifying.”

tuggIf you’re interested in hosting a local screening, visit Tugg.com to learn more. All of the folks I dealt with there were extremely encouraging and helpful; my primary promotional tool was social media, and as mentioned, we sold all of the seats! I definitely recommend giving it a go; through the experience I met some lovely people and we were able to raise almost $300 for our local chapter of the Alzheimer’s Association.

Made With Love and It Shows

APgenericIn closing, let me say that from the cast to the cinematography to the story itself, this film is a winner.  Made on a shoestring budget that began with a Kickstarter campaign, in my opinion, Angel’s Perch would easily stand up alongside any film on the festival circuit. I hope it reaches each and every person reading this post; in just 90 short minutes, it will make you laugh, cry, and feel every emotion in between. This movie was made with love, and I promise it will truly touch your heart.

_____

J.T. Arbogast is a Los Angeles-based writer, actor, and producer with a number of stage, film, and television credits. Prior to his arrival in LA, he spent four years as the Associate Director of the critically acclaimed National Comedy Theatre in New York, of which he was also an original cast member.

Kimberly Dilts is a producing artist who works as an actor, director, choreographer, writer, and teacher. She has a number of stage and television credits, and enjoys voicing Anime. She also served as Director of Operations for The Haitian Education and Leadership Program for several years.

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Purple Angel: Who’s With Me??

29 Thursday Aug 2013

Posted by Ann Napoletan in Advocacy and Awareness, Helpful Resources, Support system

≈ 7 Comments

Tags

ALZ/Dementia Hospital Wristband Project, alzheimers awareness, dementia aware, purple angel

ostrich-purple-angel-sticker

Norman McNamara is asking for volunteers to help take the Purple Angel worldwide. The UK is making great strides toward increasing awareness, and the Purple Angel has hit Florida thanks to Gary LeBlanc’s fantastic project.

Dementia Awareness Around Town

Now it’s time to make customer-facing BUSINESSES in the U.S. dementia aware.

Unless you’ve taken someone with Alzheimer’s or another form of dementia out shopping or to a restaurant, you can’t appreciate how challenging it can be. People just don’t understand, and we need to change that.

Those who come in contact with the public on a regular basis should understand dementia, recognize the signs, and know how to treat customers who have the illness with kindness, dignity, and respect. The Purple Angel campaign can help…

Enter OstrichUK

The wonderful folks at OstrichUK have given this project a massive boost. Thanks to Ostrich (ostrichcare.co.uk) tens of thousands of distinctive Purple Angel stickers and information posters are now available for distribution.

The idea is for customer-facing businesses to encourage dementia awareness in their associates by asking them to read an informational poster. Once the information has been shared, participating shops and restaurants will receive a special Purple Angel sticker to display in their window. When customers see that sticker, they can be assured the business is aware of the special needs of patrons who suffer from dementia.

Get Involved!

Are you willing to do a little bit of legwork to help spread the word in your town OR are you a business who would like to participate? The idea is very grassroots and beautifully simple – and just imagine the power of this campaign if everyone were to pitch in.

To order Purple Angel Dementia Aware stickers FREE, email hello@ostrichcare.co.uk. The stickers come in batches of 50 and are accompanied by informational posters and basic tips for sharing. Remember to include both your email and postal addresses in your request.

If you are a business who would like to become dementia aware and proudly display a Purple Angel in your window, contact me at anapoletan(at)gmail(dot)com for more information.

And Speaking From Experience…

Let’s do this. As someone who has personally experienced the discomfort and awkwardness of taking my mom out – even early in her illness – I can assure you the Purple Angel campaign will make a positive difference to many families!

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Coming Soon….and a Fabulous Read for Caregivers

29 Thursday Aug 2013

Posted by Ann Napoletan in A Place for Mom, Advocacy and Awareness, Blogging, Caregivers, Films, Inspiration, Life After Caregiving

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Tags

alzheimers, caregiver, caregiver burnout, caregiver stress

Ah, it’s been a busy week and I’m already asking myself how in the world I was managing three weekly posts for APFM. For some reason, this week I feel like I’ve been running at hyper-speed yet have gotten very little accomplished!! wheel

I promise a review of Angel’s Perch by the weekend, so be sure and check back. It’s been two weeks since the Columbus screening, and I’m still hearing from people who thought the movie was just incredible!

In the meantime, I want to leave you with this wonderful article from Mark B. Perry for dnj.com. It’s been awhile since I’ve read something that hit home so deeply and on so many levels.

The original article can be found in its entirety here –> PERRY: Alzheimer’s takes its toll on those in daily battle

____________

Alzheimer’s takes its toll on those in daily battle

by Mark B. Perry

For those of you who have had an experience with someone with Alzheimer’s, you are fully aware of the toll it can take on you.

I recently saw pictures of soldiers that had been in Afghanistan; they were before and after pictures. It was obvious that the constant worry and stress of their situations as well as the loneliness of missing their loved ones back home, had taken its toll on them. It reminded me a bit of what I see in the mirror every day.

I know I haven’t had to go through the horrors of what our soldiers have gone through, and I haven’t had the stress of literally fearing for my own life on a daily basis, but in the mirror, I can see what a long drawn-out battle has done to me and the toll it has taken.

I can see it in the faces of people who are taking care of their parents and their spouses. The hours of furrowed brows and thousands of tears have etched and grooved and new landscape across our faces that no amount of smiles can smooth away. Just as gravity pulls at the body and ages it, so stress and worry weigh us down

We are at war; we are in a battle. We are fighting something bigger than ourselves that we cannot defeat. Our days are long and drawn out and we are forced to do things we never thought we could do mentally or physically.

We are fighting a disease that knows no enemies and has never been defeated. We fight to keep our loved ones safe from harming themselves, wandering off, or simply from falling down. We fight to keep them involved while fighting to protect their dignity. We fight our frustrations in them not knowing who we are.

We fight the urge to argue when they want to go home even though they are already in their own home. We fight to convince them to do the basics of daily life. We fight to keep it together when they tell us the same thing every five minutes.

We struggle daily with the guilt of our bad decisions and letting someone else help to take care of our loved ones. We worry when we leave them alone with caretakers that they will be watched after and cared for and that no one will show them their own anger and frustration. At night we lie awake and worry about the day we just had and how we will handle the next one.

But each day, we gear up and face the battle. We do it to protect our loved ones. We do it because we have to and we want to and we are scared to death not to. The toll it takes on us is great. As hard as we try, our minds never really wander away from our task at hand.

Just like a soldier that comes back from war, when our loved ones have passed away, we need time. We need time to re-adjust when it is all over.

We are battered, shell-shocked and tired, but in time, we will pick up the pieces and find the good to remember and take pride in knowing that we made a difference; we did our best, and even though probably never expressed, it was appreciated. No one can really understand unless they have been through it. We can’t expect them too. What we must do is continue to pursue a happy life that we know our loved ones would so desperately want us to have.

Once a year we all come out of the trenches for a moment, and we join together, we march, we walk. In over 600 towns across this country, we gather in groups and walk to show our support for all the work that is being done to fight this horrible disease.

If you would like to help and join forces in time, support or even with finances, you can go to www.alz.org and look for the Walk To End Alzheimer’s in your area. There are many teams from healthcare organizations, caregivers and families. For my mom, Ann Perry, we are www.thememoryjoggers.com.

Don’t be discouraged if you don’t have the funds to help out financially. There are other organizations that require nothing more than a click.

One great organization that is working hard to get the government to increase the funding for Alzheimer’s research is http://www.usagainstalzheimers.org.This is a powerful group that is really starting to make things happen by making our government understand the epidemic situation we are facing and the economic impact it will have on our future.

Another that I love is the grassroots campaign to get a postage stamp (much like the one for breast cancer) for Alzheimer’s. These type stamps have raised millions in the past. That site is https://www.facebook.com/HelpStampOutAlzheimers.

Whatever you can do, do it. Do it for those you love and do it for future generations so that years from now, the Walk to End Alzheimer’s will be nothing more than a distant memory.

Source: http://www.dnj.com/article/20130820/OPINION/308200013/PERRY–Alzheimer-s-takes-its-toll-on-those-in-daily-battle?source=nletter-news

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