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The Long and Winding Road…

~ An Alzheimer's Journey and Beyond

The Long and Winding Road…

Category Archives: Films

Think Like a Scientist: Inside Alzheimer’s Disease

05 Sunday Nov 2017

Posted by Ann Napoletan in Advocacy and Awareness, Face of Alzheimer's, Films, Inspiration, Research, Video

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alzheimers, alzheimers inspiration, alzheimers research, alzheimers story, greg obrien, rudy tanzi, think like a scientist

Once or twice in a lifetime, if we’re lucky, we have a chance to meet a real life hero.

Greg O’Brien, author of OnPluto: Inside the Mind of Alzheimer’s, is one of those people for me. I had followed his story for years and finally had the privilege of meeting him a few years ago at the UsAgainstAlzheimer’s Summit in Washington. Greg’s courage, humor, and willingness to share his story in such an honest and unfiltered way, combined with his journalistic excellence, are beyond inspiring.

Also featured in this short film is Dr. Rudy Tanzi, arguably the leading AD scientist/researcher in the United States. Dr. Tanzi co-discovered all three early-onset familial Alzheimer’s disease genes and, as leader of the Alzheimer’s Genome Project, discovered several others. In 2014, he and Dr. Doo Yeon Kim, used Alzheimer’s disease genes to create “Alzheimer’s in a Dish,” effectively taking Alzheimer’s research to a new level.

Please take six minutes to watch this moving short film.

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A New Film About Alzheimer’s: His Neighbor Phil

26 Saturday Sep 2015

Posted by Ann Napoletan in Advocacy and Awareness, Caregivers, Face of Alzheimer's, Films, Helpful Resources, Inspiration, Smiles

≈ 2 Comments

Tags

alzheimers, alzheimers awareness, alzheimers movie, dementia, his neighbor phil, zumbrota minnesota

His Neighbor Phil is a work of fiction, but one that very realistically chronicles the life of a family facing younger onset Alzheimer’s. The movie aptly demonstrates the ups and downs millions of families face every single day. From the first frame, it gently draws its viewers in with a heartfelt story that could just as easily be yours or mine.

Scott Thompson, who wrote and directed the film, skillfully peels back the many layers of this difficult subject matter in a brief ninety minutes. Thompson takes us through the full spectrum of emotions from moments of joy and unapologetic laughter through profound sadness – very true to life.

Image Source https://vimeo.com/103831298

Stephanie Zimbalist offers a brilliant performance as Mary, a witty, engaging wife and mother in her late 50’s. As Mary goes about her daily routine, we see poignant moments of clarity that mirror what many of us have witnessed in our own loved ones. At one point, she apologizes for “being so much trouble,” and as viewers, our hearts just sink.

Mary’s gentle, loving husband Harvey is played by Daniel Roebuck. The patience and tenderness he shows as he cares for his wife are exceptionally touching. Harvey exudes a quiet strength and devotion as her partner and protector, and his commitment is unwavering. When he takes Mary back to the local theater they once managed together, he discovers that music triggers something in her. While the music plays, he has his Mary back; this becomes a key element in the story.

Image Source http://www.ci.zumbrota.mn.us

As an adult daughter who watched my mother’s heartbreaking decline at the hand of Alzheimer’s, I found Kristi Knudson’s stinging portrayal of daughter Isabel to be spot on. Though difficult to watch at times, Knudson hit the mark with regard to the frustration, denial, and anger that comes with reluctantly assuming the role as your own mother’s caregiver. By the end of the film, she softens, accepting Mary for who she is now; the viewer is left with a sense that they are finally in a good place.

Supporting roles were brilliantly cast to highlight the depth and complexity of both the storyline and the characters themselves. In particular, Ellen Dolan’s quirky, free-spirited “Charlie” (Mary’s sister) provides bits of clever comic relief as well as some of the most moving moments in the film.

Likewise, Sally Kellerman’s depiction of Mary’s mother, Bernadette, was flawless. While we initially see this character as rather stoic and emotionless, we quickly watch that façade melt away. Although Kellerman’s screen time is minimal, her performance packed a powerful punch.

Image Source http://www.ci.zumbrota.mn.us

His Neighbor Phil proves it doesn’t take a huge budget or the magic of Hollywood to create a beautiful film that inspires hearts and minds. It was shot in Zumbrota, Minnesota, population 3,300, and the citizens of that town provided the majority of the film’s funding along with meals and lodging for the cast and crew.

Apparently this off the beaten path little town in Minnesota is also home to quite a bit of acting talent! A total of 18 local residents appeared in the film, including Kristi Knudson who had never acted before jumping into the role of Isabel! You can read more about the making of the movie in an article from SouthernMinn.com.

I truly loved the film and hope you’ll have an opportunity to see it. For more information about bringing His Neighbor Phil to your area, contact Lori LaBey, founder of Alzheimer’s Speaks at Lori@AlzheimersSpeaks.com.

 

 

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Honoring Ken: An Alzheimer’s Short Film

06 Sunday Sep 2015

Posted by Ann Napoletan in Advocacy and Awareness, Caregivers, Early Onset, Face of Alzheimer's, Films, Inspiration, Washington

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Tags

alzheimers, alzheimers advocate, alzheimers caregivers, brenda bouchard, dementia, honoring ken

Ken Bouchard, photo courtesy of Brenda Bouchard

I met Brenda Bouchard online, like so many other advocates across the country – and the world – that I’ve had the pleasure and honor of crossing paths with. This lady is something special. Her fearless determination, poise, and grace are so inspiring.

She has directly addressed the topic of Alzheimer’s with Hillary Clinton, Marco Rubio, John Kasich, Bernie Sanders, Jeb Bush, Scott Walker, Rick Santorum, Rand Paul, and Donald Trump at town hall meetings in her home state of New Hampshire. And now, she has released this incredible short film.

The film is 20 minutes long, but I ask you to please take the time to watch it. Learn about her husband Ken and his incredible life, how Alzheimer’s has affected their marriage – and their entire world, and how Brenda has stepped out of her comfort zone to become a courageous advocate.

Please watch and then share with others to help further Brenda’s mission.

You can also find Brenda on Facebook on her Honoring Ken page and on Twitter at @HonoringKen.

To see the various town hall meetings where Brenda has addressed 2016 presidential candidates, click here. 

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Between 2009 and 2015, Marilyn’s Mighty Memory Makers have raised over $22,000 in the fight to #ENDALZ! To all who have supported us, THANK YOU!!

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