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The Long and Winding Road…

~ An Alzheimer's Journey and Beyond

The Long and Winding Road…

Category Archives: Books

The Face of Alzheimer’s: Michael Ellenbogen

03 Thursday Oct 2013

Posted by Ann Napoletan in Advocacy and Awareness, Books, Early Onset, Face of Alzheimer's, Helpful Resources, Mom, Ruminations, The Early Years

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alzheimer's books, alzheimers, alzheimers story, dementia, early onset alzheimers

bookI recently read Michael Ellenbogen’s book From the Corner Office to Alzheimer’s and found this poignant account of living with the disease to be touching, heartbreaking, and eye-opening to say the least.

Ellenbogen, a former IT exec and self-proclaimed workaholic, was diagnosed with Early Onset AD in 2008. At that time, he was just 49-years-old and had noticed his earliest symptoms ten years earlier – before his 40th birthday. His forthright style helps us to understand what it’s like – from noticing the initial subtle changes, to trying to keep the wheels on the bus, so to speak, and live a “normal” life, to the search for a diagnosis, and beyond.

Yesterday, Ellenbogen wrote an enlightening post on katiecouric.com. When you have a few moments, pop over there and read My Name is Michael, and I Am Living with Alzheimer’s.

Stories like this not only serve to help crush the stereotype and stigma surrounding dementia, but they allow us – the family members, friends, and caregivers – to understand what it feels like to be that person.

In those early years with my mom, we didn’t know what was happening, and even once we did, we tended not to talk about it to avoid upsetting her. Maybe we thought if we buried our heads in the sand, it would go away. We spent years living in denial. I so wish we’d handled it differently.

Courageous people like Michael Ellenbogen who are willing to share their story are helping today’s families see that it’s okay to talk about it. In fact, it’s really only through talking that we have any chance of solving the problem…

Learn more about Michael by visiting The Michael Ellenbogen Movement on the web.

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Book Giveaway

29 Sunday Sep 2013

Posted by Ann Napoletan in Books, Children and ALZ, Giveaways

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Ann Napoletan's avatarThe Long and Winding Road...

And the winners are…….. Cyndy and Becky.  Congratulations!! Please send me an email and include your full name and mailing address.  anapoletan(at)gmail(dot)com

Max contacted me and generously donated a copy of the book (in addition to the book I had planned to give away), thus two winners were randomly chosen.

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Why_Did_Grandma_PutAs World Alzheimer’s Month draws to a close, I thought it would be fun to do a book giveaway.

Many of you know I’m a huge fan of 17-year-old Max Wallack, an incredibly gifted third year neuroscience major at Boston University. Max is a tireless advocate and researcher in the Molecular Psychiatry and Aging Laboratory at BU’s Alzheimer’s Disease Center and was recently published in the Journal of Alzheimer’s Disease.

Winner of too many awards and honors to list, he founded Puzzles to Remember at age  12. Together with the Springbok, Max created a unique line…

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Friday Potpourri

27 Friday Sep 2013

Posted by Ann Napoletan in Advocacy and Awareness, Books, Caregivers, Children and ALZ, Events, Giveaways, Helpful Resources, Inspiration, Support system, USAgainstAlzheimer's, World ALZ Month

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alzheimer's books, alzheimers awareness, caregiver, caregiver stories, usagainstalzheimers, world alzheimers month

heroJust a couple of tidbits that may be of interest…

  • In honor of her mother, World Alzheimer’s Month, and the upcoming NYC Walk to #ENDALZ, author and caregiver Lisa Hirsch will be offering her ebook, My Mom My Hero: Alzheimer’s – A Mother and Daughter’s Bittersweet Journey free of charge for 4 days, Sept 28 through Oct 2. Visit Amazon to download your copy. Thank you for your generosity Lisa!
  • Oct 3 USAgainstAlzheimer’s Conference Call – Register NOW!

From Ginny Biggar of USA2:

Please join me on Thursday, October 3 from 12-1 pm Eastern time for the next ActivistsAgainstAlzheimer’s Network conference call focused on Personal Stories. I may be familiar to some of you. For those that don’t know me, I’m the director of the Activists Network at USAgainstAlzheimer’s. I work with individuals around the country who are coping with Alzheimer’s every day.

usa2_logo_email_header

Part of my focus is listening to the stories that you and others tell about how Alzheimer’s is affecting your lives. Telling these stories is a critical way we can raise awareness about Alzheimer’s.

Why_Did_Grandma_Put

  • Last but not least, don’t forget to enter for a chance to win Max Wallack’s fantastic book, Why Did Grandma Put Her Underwear in the Refrigerator?  All you have to do is – click here – and leave a comment on the contest post. A winner will be chosen at random on Sunday evening (Sep 29).

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Marilyn, BA (before Alzheimer's)

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