In the “You’ve got to be kidding me” category, a great story from CNN! It’s true – Rudy Tanzi, world-renowned Alzheimer’s researcher, best selling author, and chair of the Cure Alzheimer’s Fund, can be heard playing keyboards on Aerosmith’s latest studio album. A random meeting with Joe Perry led to the collaboration.
Tanzi has been studying ALZ since 1983, but his work became very personal when his grandmother was diagnosed shortly after that.
“What you see is that this disease is really the worst thing you can imagine,” Tanzi said. “Because you spend your whole life — decades and decades — accumulating memories and association, and you develop a personality of who you are based on your experience and memories. And this disease comes in and rips all that right out. So it literally steals who you are from you. There is no other disease that does that. There is nothing worse.”
It’s both wonderful and encouraging to know that two films featured at this year’s Tribeca Film Festival are helping to shine the spotlight on Alzheimer’s. This is the very sort of exposure we need to bring a critically important issue to the forefront, while giving it a human face and removing the stigma that comes with the disease.
The first, Pat XO, is a documentary produced by the great Robin Roberts. As I watched the trailer, I couldn’t help but smile. What an incredible idea to hand out video cameras to those closest to Pat Summitt and ask them to talk about this legend – the winningest coach in all of college basketball. I truly cannot wait to see this film! Coach Summitt is an inspiration in so many ways.
Also at Tribeca this year, the premiere of The Genius of Marian, a son’s intimate portrait of his mother’s struggle with Alzheimer’s.
It’s remarkable film, not only for the obvious affection with which it was made, but as art. The downward trajectory of a woman in the grip of ever-worsening dementia provides only so many opportunities for visual storytelling. And while White and Fitch do have wonderful archival material to work with – their subject, Pam White, was a model, and the footage of her as a young woman sparkles in its poignancy. But for a great deal of the film, White is creating something out of imagery that occurs with a seeming randomness, but which ultimately coheres in a way that’s quite moving and singular: As well it should. Pam White isn’t a medical statistic, she’s a person with a history, albeit one that’s slipping away, at least from her.
Three cheers for Robin Roberts and ESPN, filmmaker Banker White, and of course the Tribeca Film Festival for bringing much needed attention to our fight.
Those of us who have enjoyed women’s college basketball over the years know how special Pat Summitt is. As a coach, mentor, and someone who has always believed girls are capable of doing everything their male peers can do, Summitt has been an inspiration to millions. Mom always loved her.
Never was that more true than in the summer of 2011, when, at age 59, she announced she had been diagnosed with early onset Alzheimer’s. She, along with her incredible son, Tyler, were prepared to fight. They intended to do everything they could to bring awareness to the disease that has affected so many families. There was no self pity… just determination to go on with life and make a difference as they entered this unexpected new chapter in their lives.
Sum It Up, Coach Summitt’s third book with Sally Jenkins, is the story of resilience; from coaching to motherhood, and now her latest challenge, ALZ, this woman is tough as nails, yet as kind and compassionate as they come. Upon its release, Summitt’s memoir took its spot on the NY Times Best Seller List and has remained there since.
The basketball legend and her son were recently interviewed for a piece on CBS, and clearly, they continue to enlighten, inspire, and fight. Click here and take a few minutes to watch.