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The Long and Winding Road…

~ An Alzheimer's Journey and Beyond

The Long and Winding Road…

Category Archives: Events

World Alzheimer’s Month: Free Streaming of Critically Acclaimed Documentary

23 Monday Sep 2013

Posted by Ann Napoletan in Advocacy and Awareness, Events, Films, Mom, Smiles

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alzheimers, dementia

If you haven’t watched this incredible documentary yet, you still have two days – streaming free through 9/25 –> http://video.pbs.org/video/2216780249/
I watched this evening, and I must say, there’s a lot of my mom in Lee… what a spunky, beautiful woman.

Ann Napoletan's avatarThe Long and Winding Road...

xposter-smallIn recognition of World Alzheimer’s Month, Independent Lens|PBS will offer free streaming of the documentary You’re Looking at Me Like I Live Here and I Don’t from 9/15 through 9/25!

Told exclusively from the perspective of Lee Gorewitz, a woman living with Alzheimer’s, all of the filming took place in an Alzheimer’s care unit. The film originally aired on PBS’ Independent Lens series and has received rave reviews from the Alzheimer’s community as well as film critics far and wide.

This riveting film grabbed my attention immediately and held it through the final scene. When it ended I felt sad — not because of the subject matter but because I wanted to spend more time with this unique and endearing woman with whom I’d fallen in love. I missed her, so I turned around and watched the entire movie again.– Marie Marley, Huffington Post

I must say that…

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Alzheimer’s Blues

16 Monday Sep 2013

Posted by Ann Napoletan in Advocacy and Awareness, Caregivers, Events, Humor, Inspiration

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Tags

alzheimer's blues, alzheimers, caregiver stories, dementia

alz-bluesAlzheimer’s Blues. Sounds almost like a song title, doesn’t it? Well, guess what…. not only is it the title of a song, but also of a one-woman show conceived by and starring Erica Herd.

The stage show, co-written by Herd and L.E. Swenson, premiered at the Stage Left Studio in NYC this past summer under the title The Year of Dead Cats. Several rewrites and additional music prompted the new title, which carries with it a touch of both humor and irony.

From Acting to Alzheimer’s

young-katherine-lindAlzheimer’s Blues centers on the story of Herd’s mother, Katherine Lind, who was a sought after New York actress in the 1950s, ‘60s, and ‘70s. Lind had it all – talent, beauty, and rave reviews for her off-Broadway work which included The Diary of Anne Frank, The Seven Year Itch, and I Am A Camera. She was also a touring member of the national and regional casts of shows such as A Little Night Music, Hamlet, The Glass Menagerie, King of Hearts, and A Midsummer Night’s Dream.

And then came schizophrenia, followed by Alzheimer’s in 2010… Yes, Alzheimer’s – that damn dreaded disease that doesn’t care about your background, status, or calling. Stunning New York actress or small town janitor – dementia and Alzheimer’s level the playing field like few other things in life.

Laughter is the Best Medicine

The show addresses many of the challenges Alzheimer’s and dementia caregivers face on a daily basis. In a May 2013 interview for nytheater.com, Herd explained that she chose humor as a path toward healing.

erica“I take a comedic spin on it, try to find a way to heal the pain with laughter. It started as a blog on Open Salon while I was in the throes of dealing with mom’s illness in 2011. And with the help of my director and co-author, we transformed it into a play,” says the actor/playwright.

In the video below, she performs the title song, Alzheimer’s Blues. As I listened to the lyrics – the poignant story of a daughter and her mother – paired with music by blues legend T-Bone Walker, I wasn’t sure whether I should laugh or cry…

Stay tuned for more about Erica and this fascinating one-woman show. Do you have a specific question for her? If so, post a comment below and I’ll incorporate your inquiry into our upcoming Q&A.

For tickets, click here.

– Photos courtesy of Alzheimer’s Blues / Erica Herd

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Volunteerism: Alive and Well

09 Monday Sep 2013

Posted by Ann Napoletan in Events, Inspiration, Ruminations

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margmeadquoteI was recently asked to write a post for VoiceQuilt on the topic of volunteering. Did you know that in 2009, the federal government designated September 11th as a National Day of Service and Remembrance? It’s really a lovely way to honor those who lost their lives in the horrible tragedy that shook our country on 9/11/2001. It also allows us to bring something positive to a day mired in sadness and loss.

Do you have any special plans with regard to 9/11? What are your favorite volunteer activities? Take a look at my post, Class in Session: Volunteering 101, for some ideas as well as information on the benefits of volunteering (you may find some of these surprising!).

You can also find out how VoiceQuilt can help you preserve memories in a very unique way!! Imagine having a high quality audio recording of your loved one telling a favorite story from years gone by – what a treasure! Or how about collecting recorded voice messages from family and friends and presenting it to someone in the early stages of Alzheimer’s?

flag_HI_2011September 11th changed our country forever – in many mournful ways , but it’s also an excellent reminder that tomorrow is not promised. Preserve a memory, lend a hand, commit a random act of kindness – do something as a tribute to the victims of that horrific act that took place 12 years ago on a morning that started out like any other “normal” morning…

 

 

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