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The Long and Winding Road…

~ An Alzheimer's Journey and Beyond

The Long and Winding Road…

Category Archives: Events

This, That, and the Other…

15 Wednesday May 2013

Posted by Ann Napoletan in A Place for Mom, Advocacy and Awareness, Alzheimers.net, Blogging, Caregivers, Events, Grieving, Helpful Resources, Life After Caregiving, Mom, Polls, Saying Goodbye

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I would love it if you would take just a second to click over to USAgainstAlzheimer’s and complete this super quick survey. In just 3 minutes, you’ll be helping to collect valuable data, and a $1 donation will be made to USAgainstAlzheimer’s for each survey completed! Tell your friends, too!

Next, I’d like to share information regarding an important upcoming event open to everyone. On May 22 (next week), at 2pm (ET), George Vradenburg, founder of USAgainstAlzheimer’s will host a conference call to discuss the top issues we face in the fight against ALZ. To sign up, simply click here –> Register for the May 22 call.

Last, but not least, remember to check out A Place For Mom‘s newest blog offering, the Alzheimer’s Resource Blog. My current article takes a look at the concept of the “long goodbye.” How does the ongoing grief felt throughout a loved one’s illness relate to the grief experienced with the final loss. The answer might surprise you…

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Tomorrow: Radio Interview with Dementia Expert Teepa Snow

08 Wednesday May 2013

Posted by Ann Napoletan in Activities for Your Loved One, Events, Helpful Resources, Mother's Day, Tips

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Senior Helpers is proud to announce that renowned dementia expert Teepa Snow is scheduled tomorrow at 8:30 am on WSNY Radio (Sunny 95) at 94.7 FM, Columbus, OH.  I’m assuming listening online is also an option: Sunny 95 Online Radio.

Snow will share insight and advice with families and caregivers who want to celebrate Mother’s Day despite cognitive changes taking place in their loved one. She will provide recommendations for appropriate activities based on where Mom falls along the scale derived from the Senior Gems® program.

 

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Tribeca Film Festival 2013 – Shining the Spotlight

23 Tuesday Apr 2013

Posted by Ann Napoletan in Advocacy and Awareness, Celebrities, Events, Inspiration, Pat Summitt

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It’s both wonderful and encouraging to know that two films featured at this year’s Tribeca Film Festival are helping to shine the spotlight on Alzheimer’s. This is the very sort of exposure we need to bring a critically important issue to the forefront, while giving it a human face and removing the stigma that comes with the disease.

The first, Pat XO, is a documentary produced by the great Robin Roberts. As I watched the trailer, I couldn’t help but smile. What an incredible idea to hand out video cameras to those closest to Pat Summitt and ask them to talk about this legend – the winningest coach in all of college basketball. I truly cannot wait to see this film! Coach Summitt is an inspiration in so many ways.

Also at Tribeca this year, the premiere of The Genius of Marian, a son’s intimate portrait of his mother’s struggle with Alzheimer’s.

John Anderson’s review for Indiewire describes the film as follows:

It’s remarkable film, not only for the obvious affection with which it was made, but as art. The downward trajectory of a woman in the grip of ever-worsening dementia provides only so many opportunities for visual storytelling. And while White and Fitch do have wonderful archival material to work with – their subject, Pam White, was a model, and the footage of her as a young woman sparkles in its poignancy. But for a great deal of the film, White is creating something out of imagery that occurs with a seeming randomness, but which ultimately coheres in a way that’s quite moving and singular: As well it should. Pam White isn’t a medical statistic, she’s a person with a history, albeit one that’s slipping away, at least from her.

Three cheers for Robin Roberts and ESPN, filmmaker Banker White, and of course the Tribeca Film Festival for bringing much needed attention to our fight.

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Marilyn, BA (before Alzheimer's)

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