Two Upcoming Events: Caregiving Conference and Lewy Body Dementia Webinar

22 Tuesday Nov 2016

Posted by Ann Napoletan in Caregivers, Events, Helpful Resources

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caregiving, caregiving conference, caregiving event, caregiving webinar, lewy body dementia, lewy body webinar

The first annual Caregiving.com National Caregiving Conference is coming up in Chicago on December 2nd and 3rd. Learn more on the registration website or find out how you can attend virtually via webinar. If you’re a professional, the conference qualifies for CEU credits.

Friday includes optional intensive sessions on various topics, while the main conference will take place on Saturday. Agendas for both days can be found here.

The Lewy Body Dementia Association and Lewy Body Dementia University are offering a series of free short videos and educational webinars for both LBD families and healthcare professionals. The next webinar is December 5th at 3pm ET.

Attendees will have an opportunity to ask questions of Dr. Bradley Boeve, Professor of Neurology, Division of Behavioral Neurology and Center for Sleep Medicine, Department of Neurology, Mayo Clinic College of Medicine, Rochester, MN. Dr. Boeve will focus on LBD clinical care.

You can also visit the website to view recordings of the previous webinars featuring an update on the latest LBD research and a discussion on clinical trials.

Fighting Alzheimer’s in Columbus & Washington!

25 Sunday Sep 2016

Posted by Ann Napoletan in Advocacy and Awareness, Events, Ruminations, USAgainstAlzheimer's, Walk to End ALZ, Washington, World ALZ Month

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alzheimers, Alzheimers advocacy, dementia, national alzheimer summit, out of the shadows, usagainstalzheimers, Walk to End Alzheimer's

-2015 Walk

There’s a feeling of advocacy in the air! Tomorrow, I’ll don purple from head-to-toe and participate in my 8th Walk to End Alzheimer’s!! I’ve been on the planning committee for the past couple of years, so it’s exciting to be walking again. I look forward to taking everything in and connecting with the meaning, emotion, and excitement of the event. It’s looking like 81 degrees and sunshine – a perfect day!

Then, it’s on to the 3rd Annual UsAgainstAlzheimer’s National Alzheimer’s Summit in Washington. The Summit is a two-day event jam packed with panel discussions that include some of today’s most important voices in Alzheimer’s care, research, and advocacy.

First Lady Laura Bush will be the keynote speaker for the Out of the Shadows dinner where House Minority Leader Nancy Pelosi and Senator Kelly Ayotte will be honored for their commitment to fighting Alzheimer’s disease. Advocate Greg O’Brien, author of On Pluto: Inside the Mind of Alzheimer’s, will also be honored for the hope and courage he displays each day in his own battle against this disease.

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-2015 Summit

Capping off the event, we’ll spend a day on Capitol Hill meeting with Senate and Congressional offices, telling our personal stories and asking for additional funding in the FY 2017 budget as well as support of the EUREKA Act and the Alzheimer’s Beneficiary and Caregiver Support Act.

The Summit and Hill Day events are certain to be educational, energizing, and filled with hope and determination. Sharing these two days with such devoted and passionate human beings – all focused on the same goal – is truly inspiring. Be sure to look for the hashtags #StopAlzWithAction and #WeWontWait to keep up on what’s happening!

Here are a few photos from 2014 and 2015.

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Alzheimer’s Talks: Monday, 4/11, 4pm ET – Register NOW!

09 Saturday Apr 2016

Posted by Ann Napoletan in Advocacy and Awareness, Events, Research, USAgainstAlzheimer's

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alzheimers, alzheimers research, alzheimers talks, dementia, usagainstalzheimers

Right now, more than 17 potential treatments are in Phase 3 clinical trials, and leading researchers are optimistic that promising new drugs will reach the market in the next five years.

This is big news: These would be the first new therapies on the market in over a decade!

Drew Holzapfel, Director of ResearchersAgainstAlzheimer’s, and Dr. David Morgan, CEO of the Byrd Alzheimer’s Institute at the University of South Florida, know the details of the coming wave of drugs inside and out. These gentlemen will join this month’s UsAgainstAlzheimer’s Alzheimer’s Talks to answer your questions about the growing hope for a cure.

Join the call on Monday, April 11, from 4 to 5 p.m. ET for a fascinating conversation about new Alzheimer’s drugs in the pipeline! Thank you to UsAgainstAlzheimer’s and ResearchersAgainstAlzheimer’s for making this call possible!!

Click HERE to register for the call!