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The Long and Winding Road…

~ An Alzheimer's Journey and Beyond

The Long and Winding Road…

Category Archives: Walk to End ALZ

Congratulations, Columbus!

28 Wednesday Sep 2016

Posted by Ann Napoletan in Advocacy and Awareness, ALZ Assn Central Ohio, Fundraising, Walk to End ALZ, World ALZ Month

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#endalz, alzheimers, alzheimers awareness, central ohio walk to end alzheimers, Walk to End Alzheimer's

This past weekend in Columbus, we saw our biggest Walk yet! The turnout was spectacular and over $540,000 was raised! Here are some images from a truly incredible day!

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Fighting Alzheimer’s in Columbus & Washington!

25 Sunday Sep 2016

Posted by Ann Napoletan in Advocacy and Awareness, Events, Ruminations, USAgainstAlzheimer's, Walk to End ALZ, Washington, World ALZ Month

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alzheimers, Alzheimers advocacy, dementia, national alzheimer summit, out of the shadows, usagainstalzheimers, Walk to End Alzheimer's

4mmemwall_sm

-2015 Walk

There’s a feeling of advocacy in the air! Tomorrow, I’ll don purple from head-to-toe and participate in my 8th Walk to End Alzheimer’s!! I’ve been on the planning committee for the past couple of years, so it’s exciting to be walking again. I look forward to taking everything in and connecting with the meaning, emotion, and excitement of the event. It’s looking like 81 degrees and sunshine – a perfect day!

Then, it’s on to the 3rd Annual UsAgainstAlzheimer’s National Alzheimer’s Summit in Washington. The Summit is a two-day event jam packed with panel discussions that include some of today’s most important voices in Alzheimer’s care, research, and advocacy.

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First Lady Laura Bush will be the keynote speaker for the Out of the Shadows dinner where House Minority Leader Nancy Pelosi and Senator Kelly Ayotte will be honored for their commitment to fighting Alzheimer’s disease. Advocate Greg O’Brien, author of On Pluto: Inside the Mind of Alzheimer’s, will also be honored for the hope and courage he displays each day in his own battle against this disease.

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-2015 Summit

 

Capping off the event, we’ll spend a day on Capitol Hill meeting with Senate and Congressional offices, telling our personal stories and asking for additional funding in the FY 2017 budget as well as support of the EUREKA Act and the Alzheimer’s Beneficiary and Caregiver Support Act.

The Summit and Hill Day events are certain to be educational, energizing, and filled with hope and determination. Sharing these two days with such devoted and passionate human beings – all focused on the same goal – is truly inspiring. Be sure to look for the hashtags #StopAlzWithAction and #WeWontWait to keep up on what’s happening!

Here are a few photos from 2014 and 2015.

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World Alzheimer’s Day: How Can You Make a Difference?

17 Thursday Sep 2015

Posted by Ann Napoletan in Advocacy and Awareness, ALZ Assn - National, Caregivers, Fundraising, Helpful Resources, Life After Caregiving, Prevention, Quotes, Ruminations, Tips, USAgainstAlzheimer's, Volunteering, Walk to End ALZ, Washington, World ALZ Month

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alzheimers, Alzheimers advocacy, alzheimers awareness, alzheimers caregivers, alzheimers prevention, alzheimers volunteerism, dementia, world alzheimers day

According to the World Alzheimer Report 2015: The Global Impact of Dementia, published by Alzheimer’s Disease International (ADI), there are 46 million people living with dementia globally. Without a medical breakthrough, that number will rise to 131.5 million by 2050. Worldwide, in 2015 alone, there will be 9.9 million new cases of dementia; that’s a new case every THREE seconds.

World Alzheimer’s Day is September 21, 2015, and it’s a great time to pause and think about what you can do to make a difference. You don’t have to be a brilliant scientist or a millionaire to make a significant impact.

Here are a few ideas to consider. If you have others, please share them by posting a comment below!

Take Care of a Caregiver

  • Deliver lunch, dinner, or a plate of homemade cookies. Send a restaurant gift card, or put together a group of folks willing to take turns cooking a couple of meals each week.
  • Mow the lawn, rake leaves, or offer to help with another household task.
  • Put together a spa basket! Think bath salts, lotion, candles, lavender essential oil, comfy slippers, et cetera.
  • Offer to hold down the fort for a couple of hours to give a caregiver a much-needed break. Perhaps they’d like to go shopping, see a movie, read a book, or just relax!
  • Simply send a card to say you care and offer your support.

Volunteer Your Time and Talent

  • Spend time visiting with memory care residents.
  • Volunteer at an Alzheimer’s Association event, join a committee, help with a special project, or offer to make phone calls.
  • Form a volunteer group to make fidget quilts or comfy blankets for people living with Alzheimer’s.
  • Volunteer to provide respite care during a caregiver support group meeting.
  • Become a support group leader.

Donate or Fundraise

  • Make a monetary donation to your favorite Alzheimer’s organization.
  • Sign up for Walk to End Alzheimer’s or The Longest Day and set a fundraising goal.
  • Donate puzzles, picture books, dolls, art supplies, or CDs to a nearby memory care unit or adult day care.
  • Sign up for AmazonSmile and designate your favorite Alzheimer’s organization as your charity.

Be an Advocate

  • Write or call your representatives in Washington and ask for their support on Alzheimer’s issues.
  • Commit to sharing an Alzheimer’s-related fact or statistic with three friends.
  • Use social media to help raise awareness.
  • Join the Alzheimer’s Prevention Registry!
  • Sign a petition.
  • Share your story!
  • Check out the Action Center at UsAgainstAlzheimer’s for more ideas!

Focus on Prevention

  • Commit to walking for 30 minutes at least 3x per week.
  • Each day, replace one unhealthy item in your diet with a healthier choice.
  • Make a monthly date to get together with friends!
  • Take the stairs instead of the elevator.

As Margaret Mead said, “Never doubt that a small group of thoughtful, committed, citizens can change the world. Indeed, it is the only thing that ever has.”

I’ve been told plenty of times that I’m wasting my energy. After all, I’m just one person can’t change the world My response to that is simple. I may not be able to change the world, but I can certainly make a positive difference – and you can too!

Here’s to World Alzheimer’s Day. May it be more than just another Monday – let’s all do a little something to further the #ENDALZ movement!

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The Long and Winding Road

Between 2009 and 2015, Marilyn’s Mighty Memory Makers have raised over $22,000 in the fight to #ENDALZ! To all who have supported us, THANK YOU!!

Marilyn, BA (before Alzheimer's)

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