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The Long and Winding Road…

~ An Alzheimer's Journey and Beyond

The Long and Winding Road…

Category Archives: Expectations

FREE Dementia Class

04 Tuesday Mar 2014

Posted by Ann Napoletan in Caregivers, Coursework & Learning Opportunities, Expectations, Helpful Resources

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alzheimers, caregiving, dementia, dementia coursework

Understanding Dementia
FREE Online Dementia Course – Available Internationally
Beginning March 31st, lasting 9 weeks

 Almost 9,500 people participated in the first offering of Understanding Dementia MOOC, and REGISTRATION IS NOW OPEN for the next course which begins on March 31st.

The curriculum draws upon the expertise of neuroscientists, clinicians and dementia care professionals from the Wicking Dementia Research and Education Centre at the University of Tasmania, Australia.

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From Lonna Whiting: ‘D’ Word x 100

11 Saturday Jan 2014

Posted by Ann Napoletan in Caregivers, Expectations, Guilt and Regrets, Life After Caregiving, Reblog, Ruminations, Signs and Symptoms, The Early Years

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alzheimers, caregiving, dementia

This post from Lonna Whiting is one of the most poignant pieces I’ve seen. So many of these are things I’ve felt or experienced – plenty I’m not proud of. But, it’s raw, unfiltered reality. It’s confirmation that only someone who has experienced this disease can truly understand. Incredibly sad, yet oddly comforting. In time, if we’re lucky, we reach a point of acceptance; we love and enjoy the time we have left with our loved ones despite the fact they aren’t who they once were. But at the end of the day, we still HATE this disease more than words can say… Thank you for your courage and honesty, Lonna.

Visit Lonna’s blog at http://lonnawhiting.wordpress.com

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More Invaluable Holiday Tips

20 Friday Dec 2013

Posted by Ann Napoletan in Advocacy and Awareness, Caregivers, Expectations, Helpful Resources, Holidays, Support system, Tips, USAgainstAlzheimer's

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alzheimers, caregiving, christmas with alzheimers, dementia, holidays with alzheimers

treeIf dementia has touched your life, you know how difficult the holidays can be. Expectations followed by disappointment and traditions slowly fading; a once joyous season often turns into what is perhaps the most stressful times of the year.

Earlier in December, I had the pleasure of being a guest on the USAgainstAlzheimer’s Activist Network call, and our very timely topic was – you guessed it – coping with the holidays. Trish Vradenburg, our co-founder, has compiled many of the tips from that call into a great piece for the Huffington Post.

Take a few minutes to read Making the Holidays Bright When Alzheimer’s Is in the Picture, and if you have a chance, listen to the recorded call. You’ll hear Susy Favaro, LCSW, from the Banner Alzheimer’s Institute, Virginia Biggar, Director of the USA2 Activist Network, and myself talking with both caregivers and several individuals who live with the disease every day. The callers who participated had many insightful comments and suggestions that could significantly improve this and future holidays for you and your family.

Do you have a holiday story or tip to share? If so, please leave a comment. By sharing our experiences, we have the potential to help each other immensely!

Happy Holidays!
Ann

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Marilyn, BA (before Alzheimer's)

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