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The Long and Winding Road…

~ An Alzheimer's Journey and Beyond

The Long and Winding Road…

Category Archives: Face of Alzheimer’s

A Story for Valentine’s Day & Beyond

13 Saturday Feb 2016

Posted by Ann Napoletan in Advocacy and Awareness, Blogging, Books, Caregivers, Celebrities, Face of Alzheimer's, Helpful Resources, Inspiration, Tips, USAgainstAlzheimer's

≈ 4 Comments

Tags

alzheimer's books, alzheimers, Alzheimers advocacy, alzheimers caregiving, b smith, barbara smith, before i forget, dan gasby

coverLast fall, I had the pleasure of attending a WomenAgainstAlzheimer’s dinner where Barbara (B.) Smith and husband, Dan Gasby, were honored for their Alzheimer’s advocacy work. You may know B. as a chef, restaurateur, entrepreneur, author, lifestyle expert, television host, magazine publisher, or supermodel – this lady has quite a resume!

What you may not know is that Barbara was diagnosed with younger onset Alzheimer’s in 2013 when she was just 64 years of age.

Today, Dan and B. work tirelessly to bring attention to the impending social crisis that is Alzheimer’s disease. They’ve recently written a book entitled, Before I Forget: Love, Hope, Help & Acceptance in Our Fight Against Alzheimer’s, chronicling their story, and whether you have been touched by Alzheimer’s (yet) or not, I suggest you pick up a copy and read it.

Dan writes with a courage and forthrightness that we don’t always see. He shares the good, the bad, and the ugly, in an enlightening and even validating style for those of us who have been through the journey. As I read each page, I found myself nodding, “YES, I’ve felt that way” or “Oh, I remember when that happened to us.”

Throughout the book, Dan shares practical tips based on his own experience. He discusses how this journey has affected the couple’s marriage and some of the things he has found help him cope on a daily basis. Before I Forget is a book about Alzheimer’s, but make no mistake – first and foremost, it’s a love story.

In a recent Alzheimer’s Talks call, Dan encouraged listeners to “do one thing” to move us forward in this fight. Read more about that call in my recap of a very compelling, thought-provoking hour with Dan. You can find it by visiting my friends at UsAgainstAlzheimer’s. Thank you to Trish Vradenburg and Virginia Biggar for allowing me to share my thoughts in A Love Story: B. Smith & Dan Gasby.

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The Angry Side of Alzheimer’s

23 Saturday Jan 2016

Posted by Ann Napoletan in Advocacy and Awareness, Early Onset, Face of Alzheimer's, Inspiration, Reblog

≈ 2 Comments

Tags

alzheimers, dementia, living with alzheimers, understanding alzheimers

Passionate, insightful, and important piece by friend and Alzheimer’s advocate Brian LeBlanc. Thank you, Brian, for sharing your life and experience with all of us! You’re making such a difference in the world!

A Bit of Brian's Brilliance's avatarA Bit of Brian's Brilliance

One of the things that makes me angry about having Alzheimer’s Disease are people that DO NOT WANT TO UNDERSTAND that I, and people like me, still know what’s going on around them and can still carry on an intelligent conversation. Sure, the words may not flow as evenly and smoothly as they did before, the mind may not allow us to remember the conversation an hour or a day or a week from now, but we still enjoy being in the moment.

Before my diagnosis, I had friends . . . lots of friends, or so I thought. These people who I thought were friends kept in contact with me, returned a phone call whether or not I left a message, would interact me with through Social Media or in person. Where in the hell are these people now? I have no idea. Don’t get me wrong, I’m not…

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Alzheimer’s Advocate Introduces Hillary Clinton in New Hampshire

06 Wednesday Jan 2016

Posted by Ann Napoletan in Advocacy and Awareness, Caregivers, Face of Alzheimer's, Washington

≈ 3 Comments

Tags

alzheimers, brenda bouchard, candidates on alzheimers, hillary clinton on alzheimers, honoring ken, stop alzheimers by 2025

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Photo courtesy of Brenda Bouchard – Clinton meeting Brenda’s mother, Cecile.

Our friend, Brenda Bouchard, has been busy since last summer attending every New Hampshire Town Hall she could get to. She has addressed 13 of the 2016 presidential candidates, asking how they plan to attack Alzheimer’s if they’re elected (click here for clips of some of those town hall meetings).

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Photo courtesy of Brenda Bouchard – From left: Brenda’s sister, Brenda, their mother, Secretary Clinton, Brenda’s daughter, Briana.

Bouchard was recently asked to introduce Hillary Clinton at a Portsmouth, NH, town hall. Clinton then opened the meeting by discussing her proposed plan to end Alzheimer’s by 2025.

Regardless of political persuasion, I think all of us touched by this horrific disease can agree – how extraordinary to see this issue on the national stage during an election year!

Thank you, Brenda, for your significant role in sparking the conversation and keeping it going! You’re an inspiring example of the difference one person can make!

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Marilyn, BA (before Alzheimer's)

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