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The Long and Winding Road…

~ An Alzheimer's Journey and Beyond

The Long and Winding Road…

Category Archives: Fundraising

Giving Tuesday: Bravelets to donate $20 per item sold!

02 Tuesday Dec 2014

Posted by Ann Napoletan in Advocacy and Awareness, ALZ Assn - National, ALZ Assn Central Ohio, Fundraising, Products

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#endalz, alzheimers, alzheimers awareness, bravelets, giving tuesday

Today is GIVING TUESDAY, and the awesome folks at Bravelets are doing their part by doubling all donations today!

Purchase your Bravelet today from our fundraising page and $20 will be donated to the Alzheimer’s Association to fund research and programs. With seven unique styles to choose from, there’s one to suit every taste, and each time you wear your Bravelet, you’ll be helping to raise awareness!

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A Must See Film: The Genius of Marian

03 Sunday Aug 2014

Posted by Ann Napoletan in Advocacy and Awareness, Caregivers, Early Onset, Face of Alzheimer's, Films, Fundraising, Helpful Resources, Inspiration, Ruminations, Smiles

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Tags

alzheimers, dementia, early onset alzheimers, the genius of marian, younger onset alzheimers

Last week, we held a special 1-night only screening of The Genius of Marian here in Columbus.

This film is absolutely brilliant in both its simplicity and its layers of complexity. Banker White told his family’s story masterfully in this documentary that follows his spirited mother’s journey from shortly after her Alzheimer’s diagnosis through the ensuing years.

During the course of the movie, we see a decline that no doubt mirrors the decline many of us have witnessed in our own loved ones. In a particularly moving scene, Pam White struggles to put on her coat before finally giving up. Such a simple, yet impossible task. This is the face of Alzheimer’s.

Pam was just 61-years-old when she was diagnosed. A beautiful woman who had it all – the antithesis of the stereotypical person living with dementia. The Genius of Marian puts forth such a critical message: Alzheimer’s is not just a disease of the elderly. No. It’s striking youthful, vibrant individuals in the prime of life and something must be done to stop it.

If you’re interested in bringing The Genius of Marian to a theater in your town, visit http://www.tugg.com/titles/the-genius-of-marian for details. The process is easy and serves as a wonderful way to raise awareness while earning money for an Alzheimer’s organization of your choosing.

The film will also be shown on PBS in September (http://www.pbs.org/pov/geniusofmarian/), and the DVD, due out in November, is available for pre-order now (http://geniusofmarian.portmerch.com/stores/product.php?productid=19086&cat=0&page=1&featured).

Watching Pam’s journey will make you laugh and cry. This is a woman who never lost her indomitable spirit or sense of humor. Much like my own mother, a woman of great strength, and while Alzheimer’s does its best to steal everything from these women, they fight like hell, never completely losing the core of their being.

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I Am Woman, Hear Me Roar

30 Sunday Mar 2014

Posted by Ann Napoletan in Advocacy and Awareness, ALZ Assn - National, Beating Alzheimer's By Embracing Science (B.A.B.E.S), Facts & Figures, Fundraising, Helpful Resources, Research

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alzheimers, Alzheimers advocacy, alzheimers awareness, b.a.b.e.s., beating alzheimers by embracing science, dementia

The 2014 Facts & Figures report recently released by the Alzheimer’s Association shines a bright spotlight on the fact that women are disproportionately affected by AD. Consider these statistics:

  • Almost two-thirds of Americans with Alzheimer’s are women.
  • A woman’s estimated lifetime risk of developing Alzheimer’s at age 65 is 1 in 6, compared with nearly 1 in 11 for a man.
  • As real a concern as breast cancer is to women’s health, women in their 60s are about twice as likely to develop Alzheimer’s during the rest of their lives as they are to develop breast cancer.
  • More than 60 percent of Alzheimer’s and dementia caregivers are women.
  • Nearly 19 percent of women Alzheimer’s caregivers had to quit work due to caregiving responsibilities.

Those numbers are staggering, so what can we, as women, do to make a difference?

I’d like to introduce you to Beating Alzheimer’s By Embracing Science (B.A.B.E.S), founded by Jamie Tyrone. This grassroots organization channels the power and energy of women who share a common passion – ending Alzheimer’s and other related forms of dementia. Continue reading →

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Marilyn, BA (before Alzheimer's)

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