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The Long and Winding Road…

~ An Alzheimer's Journey and Beyond

The Long and Winding Road…

Category Archives: Mom

Dementia Activities: Six Options to Encourage Engagement

19 Saturday Jul 2014

Posted by Ann Napoletan in Activities for Your Loved One, Books, Caregivers, Children's Toys & Books, Communication, Helpful Resources, Mom, Music and Art, Products, Smiles, Tips

≈ 6 Comments

Tags

alzheimers, alzheimers activitiies, dementia, dementia activities, dementia art therapy, montessori

As dementia progresses, it becomes challenging to find activities that encourage mental, emotional, and sensory stimulation. At the same time, we are often in search of ways to connect with our loved one when conversation is no longer an option. Possibilities are as wide and varied as one’s imagination, but here are a few ideas to get you started.

Photographs & Picture Books

My mom enjoyed looking at photos, so I always kept a scrapbook and some photo albums on hand. Later, I added a digital frame that continually scrolled through favorite photographs. Those pictures provided so many smiles, and I have fond memories of sitting next to her on the sofa flipping through the books. It’s impossible to know whether she recognized the people in the pictures – or whether they triggered any memories, but I do know they brought her joy in those moments, and that was the important thing.

Coffee table books full of large colorful images are also a nice option. Think about some of your loved one’s favorite things, and find a book on those topics. Children and animals are always a popular choice, but other potential topics include travel/scenery, cars, food, sports, and many more.

A few examples (all available on Amazon) include:

  • Dogs
  • Sweet Dreams: Wishes For Our Children
  • Journeys of a Lifetime: 500 of the World’s Greatest Trips
  • Life: Wonders of The World
  • Smitten: A Kitten’s Guide to Happiness

Dolls & Stuffed Animals

There was a woman at Mom’s first assisted living facility that had a profound and lasting impact on me. She had advanced dementia and struggled to speak. The woman was confined to a wheelchair, and every time I saw her, she was holding the same disheveled baby doll.

It was a poignant sight, and I recall feeling so sad for that woman. At the time, my mom was in the mid/moderate stages of the disease, so thinking of her with a doll wasn’t something I could even comprehend. She would never get to that point…

But, alas, she would and she did, yet when one of the caregivers asked if she could give Mom a doll, I was caught off guard. I remembered that woman from several years back and realized we had now arrived at that place in our journey – a place I never dreamed we’d be.

Mom immediately fell in love with her Dora the Explorer doll. The initial discomfort I felt dissipated instantly as I watched my mom’s genuine, heartwarming interactions with Dora. I was continually astounded at the delight and enjoyment the doll brought.

Dolls and stuffed animals allow our loved ones the unique opportunity to give care instead of receiving it. They also offer a distraction while providing positive sensory stimulation and they can even trigger memories. While there are expensive life-like therapy dolls on the market, in my experience, a regular doll works just as well and costs much less.

Fidget Quilts & Fiddle Boxes

Fidget quilts use a variety of colors, textures, and objects to keep busy hands occupied. Some quilts feature zippers, buttons, and Velcro, but the possibilities are endless. Many people design quilts around their loved one’s pre-dementia interests.

A “fiddle box” is a similar concept; simply a box (or basket) filled with items that provide a variety of tactile experiences. You might also consider your loved one’s hobbies or interests when putting this together. Ideas: buttons, ribbon, shoelaces, keys, marbles, jewelry, photos, small bits of pipe or safe small hardware items, various size paintbrushes, cookie cutters, measuring spoons.

How about a Busy Hands Fidget Apron or a handyman version for the gentleman in your life? Or if neither one of those strike your fancy, consider a Twiddle Muff or a sensory cushion. The Internet is overflowing with creative ideas, and Pinterest is an excellent starting point.

Art

According to the folks at Cognitive Dynamics, “Art therapy is the deliberate use of art-making to address psychological and emotional needs. Its benefits include fostering self-expression, enhancing coping skills, managing stress, and strengthening a sense of self. This translates into improved communication, behavior, and cognition.”

When the ability to communicate verbally is gone, art is lovely method of self-expression and creativity. Like music, art brings people together, and it doesn’t require a lot of fancy materials or special skills. Start with some heavy paper or card stock, a basic set of watercolors and a paintbrush, colored pencils or markers – it’s that simple!

Clay is another fantastic way to encourage creativity, interaction, and hand-eye coordination. I recommend good old Play-Doh since it’s brightly colored and more pliable than some of the modeling clay on the market. Combine the clay with a rolling pin and cookie cutters and you’ve created a form of reminiscence therapy for someone who once loved baking cookies!

Puzzles

My mom loved puzzles; we always had one going during the winter months. However, by the moderate stages of Alzheimer’s, large jigsaw puzzles overwhelmed and frustrated her. I hesitated to buy children’s puzzles, which had fewer (and larger) pieces because the designs were intended for kids. She was declining, no doubt, but still, I was afraid the children’s puzzles might be degrading in her moments of clarity.

Now there are puzzles designed specifically with dementia patients in mind. Max Wallack’s non-profit, Puzzles to Remember has partnered with Springbok to create puzzles with 12 or 36 large pieces that are much easier for Alzheimer’s patients to manipulate. Themes are adult-friendly, colorful, and pleasing to the eye. The puzzles provide a great way to stimulate cognition while offering your person an opportunity to achieve success!

Sorting & Organizing

Providing a loved one with sorting and organizing tasks is another beneficial way to keep dementia patients engaged and active. On a recent visit to a care facility, I observed one of the residents organizing the newspaper – apparently a daily ritual. Each morning, caregivers take apart the paper and lay the sections out on the kitchen table. With no prompting, the woman sits down and organizes the mess just perfectly, laying each section on top of the one before it about an inch below the last, creating a fan or stair step like pattern.

Consider using brightly colored marbles, several different kinds of fruit, socks, silverware, or various hardware items, such as nuts, screws, and washers. It makes little difference how well these things are sorted; the idea is to keep hands and mind busy, and help your person feel a sense of purpose.

Proponents of the Montessori method for dementia suggest these types of activities can reduce aggression, agitation, and other negative behaviors, improving quality of life.

Follow Their Lead

If you’re looking for other ideas, pick up a copy of The Alzheimer’s Creativity Book, by Jytte Lokvig, Ph.D. The book is full of suggestions to get the creative juices flowing, which in turn improves engagement, provides positive reinforcement, and promotes an overall feeling of well being for your loved one.

As you consider activities, remember this is not a “one size fits all” proposition. There are few things more unpredictable than dementia. Depending on the time of day, level of agitation, and mental status, preferences may vary. In fact, some days no activity is the right activity. Most importantly, don’t force the issue. The key is to offer options, then follow your person’s lead. In the process, you’ll create some extraordinarily beautiful moments of joy.

Please consider sharing your own experience or a favorite activity by leaving a comment!

 

 

 

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Waiting For Someday

13 Friday Jun 2014

Posted by Ann Napoletan in God Winks, Inspiration, Life After Caregiving, Mom, Ruminations

≈ 4 Comments

Tags

alzheimers, alzheimers lessons, dementia

Mom’s Retirement, 1998, Age 62

Life.

The natural ebb and flow.

Inhale. Exhale. Repeat.

Change is in the air.

I feel like I’ve been particularly introspective this week, in a good way. Having made a huge, life-changing decision, it seems rather fitting. After 27 years, I left the only company I’ve ever worked for as an adult… 27 years. A lifetime. But it was time. Beyond time, probably.

Paralyzed by What Ifs

By nature, I’m not a risk taker. For most of my 48 years, I’ve played it safe. Followed the rules. Colored inside the lines. Did what the world expected. I haven’t taken a lot of chances. Until now.

Mom’s Retirement Party

Seeing my mom suffer the ravages of Alzheimer’s for the better part of a decade. Watching as this disease robbed her of the opportunity to live the retirement she had planned and prepared for so carefully. Friends, travel, the “golden years” we all dream of experiencing someday – for Mom, it wasn’t meant to be.

The lesson is simple – “someday” isn’t promised. For years, I’ve been saying I needed a change. “I’m going to do this” and “I’m going to do that.” But it was all talk and no action. Fear of the unknown always got the best of me. What if it doesn’t work out? What if I fail? What if, what if, what if? Ah, but what if becoming complacent is the real peril?

If my mom had known her fate when she was my age, would she have done anything differently? It’s impossible to say. I suspect she may have taken that Alaskan cruise or gone to Italy rather than putting those dream vacations off until “someday.”

Striking a Balance

Ultimately, there has to be a balance between living for today and preparing for tomorrow. I voluntarily walked away from the “sure thing” to embark on the unknown. To be honest, I still can’t believe I did it. And more than anything, I can’t believe how easy the decision was.

For that, I have to thank my mom. Gone 18 months, yet she is still teaching me about life. It may sound cliché, but I know she’s been guiding me throughout the decision making process. More than once, I told myself I was crazy and tried like hell to talk myself out of the change – but without fail, there was an unexplainable pull back toward taking that leap of faith.

I’d be lying if I didn’t say I was apprehensive. Change is scary. However, more than anything I’m filled with hope and anticipation. I don’t remember the last time I felt so excited or had such a positive outlook. I’m going to a company whose mission is right in line with my passion – what I do will have a direct impact on providing affordable housing for seniors. I feel like the possibilities are endless and the future is bright.

The Lessons Keep Coming

That’s my mama!

Perhaps there’s a reason I never took the leap before; maybe this was the opportunity that was meant to be. There are a lot of things in life I don’t know, but the one thing I’m certain of is that dealing with Alzheimer’s has profoundly changed my life.

I sweat the small stuff much less than I used to. I take greater joy in the simple things. Those I love, I love deeply and unconditionally, I try to make a difference in the world every day, I pick my battles, and I constantly remind myself that tomorrow is not guaranteed.

Finally, I’m learning it’s okay to color outside the lines…

Thanks Mom…

 

 

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Coconut Oil: A Hot Button?

03 Tuesday Jun 2014

Posted by Ann Napoletan in "Super Foods", Alzheimers.net, Coconut Oil, Diet, Helpful Resources, Mom, Ruminations

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Tags

alzheimers, coconut, coconut oil, dementia

Image courtesy of Suat Eman / FreeDigitalPhotos.net

Coconut oil. It’s a very controversial subject in the world of Alzheimer’s.

Some online support groups actually ban posts about coconut oil suggesting any discussion on the topic gives people false hope.

There is no cure for Alzheimer’s.

No survivors.

No cure.

Simply put, if coconut oil cured Alzheimer’s, well… I wouldn’t be writing this. In fact, this blog wouldn’t exist at all. What a wonderful thing that would be, but for now, as the saying goes, “if ands or buts were candy and nuts, then every day would be Christmas!”

Coconut Oil and Brain Health

Last spring, I wrote an article for Alzheimers.net exploring coconut oil’s potential impact on brain health. If I had known about it ten years ago, would I have tried adding coconut oil to my mom’s diet? You bet your bottom dollar. I would have tried anything in an attempt to stave off the symptoms for as long as possible. Am I convinced that adding it to my diet will prevent me from getting this insidious disease? Not at all. Do I think it’s the magic antidote we’ve all been looking for? No.

Image courtesy of Toa55 / FreeDigitalPhotos.net

However, my *personal opinion is – no harm, no foul. I’ve replaced my old cooking spray with a coconut oil spray. I stir a teaspoonful of the solid form into my coffee or oatmeal, and I cook with it when it makes sense to do so. I also use coconut milk – simply because I like the taste! I believe there are overall health benefits associated with coconut, but my advice is simple. Do your research, discuss with your doctor, and make the choice that’s best for you.

Ultimate Guide to Coconut Products

Should you decide to explore adding coconut products of any sort to your diet, Lisa Richards provides an excellent Ultimate Guide to Coconut Products. On this page, she discusses everything from coconut oil to coconut flour to coconut….vinegar??! Yes, that’s right – coconut vinegar! Lisa’s guide is chock full of information; everything you wanted to know about coconut and more!!

*Disclosure: I am not a doctor, nor have I ever portrayed one on TV. The statements herein are my opinions and do not constitute medical advice.

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Marilyn, BA (before Alzheimer's)

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