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The Long and Winding Road…

~ An Alzheimer's Journey and Beyond

The Long and Winding Road…

Category Archives: Mom

Pat Summitt – CBS Interview

07 Sunday Apr 2013

Posted by Ann Napoletan in Books, Celebrities, Inspiration, Mom, Pat Summitt

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Those of us who have enjoyed women’s college basketball over the years know how special Pat Summitt is. As a coach, mentor, and someone who has always believed girls are capable of doing everything their male peers can do, Summitt has been an inspiration to millions. Mom always loved her.

Never was that more true than in the summer of 2011, when, at age 59, she announced she had been diagnosed with early onset Alzheimer’s. She, along with her incredible son, Tyler, were prepared to fight. They intended to do everything they could to bring awareness to the disease that has affected so many families. There was no self pity… just determination to go on with life and make a difference as they entered this unexpected new chapter in their lives.

Sum It Up, Coach Summitt’s third book with Sally Jenkins, is the story of resilience; from coaching to motherhood, and now her latest challenge, ALZ, this woman is tough as nails, yet as kind and compassionate as they come. Upon its release, Summitt’s memoir took its spot on the NY Times Best Seller List and has remained there since.

The basketball legend and her son were recently interviewed for a piece on CBS, and clearly, they continue to enlighten, inspire, and fight. Click here and take a few minutes to watch.

 

 

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A Simple Pair of Glasses

31 Sunday Mar 2013

Posted by Ann Napoletan in Grieving, Life After Caregiving, Mom, Ruminations, Saying Goodbye

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Sorting Mom’s clothes today, deciding what to keep and what to donate… doing pretty fine. And then I picked up an article of clothing and found her glasses…

The strangest things bring on such intense waves of emotion… opening the case containing her glasses literally took my breath away for a moment – it’s so hard to put into words. Impossible, really…

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Weeks like this…

30 Saturday Mar 2013

Posted by Ann Napoletan in Children and ALZ, Mom, Ruminations

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Today, I’m going to a party to celebrate the first birthday of my cousin’s adorable grandson. As I look forward to seeing everyone and watching that little doll dig into his smash cake, a little part of me is angry… plain and simply, ticked off that Mom cannot be here to enjoy moments like this.

Oh how she loved kids, especially babies. Even in the final stages of her illness, if a baby came into the house, she lit up like a Christmas tree. It was as though she morphed into a completely different person in the presence of a baby, transforming from sullen and essentially unresponsive to happy and animated, even talking a bit! At only 76 years old, she should be here to relish moments like today’s party… but damn this disease for stealing that opportunity from her – from all of us.

Earlier this week, a former co-worker of hers retired and I was invited to his retirement reception. For some reason, this one really got the best of me. I regularly see retirees come into the office to visit friends or attend parties and receptions. They typically look better than ever, as though retirement subtracted years from their age; they’re happy, relaxed, fit, and full of life. Mom never had that chance. She began to decline so soon after retirement that she barely had a chance to take it all in, and at the risk of sounding a little bitter, that’s just not fair.

I know, it is what it is, and now she’s happy and whole again, and in a place more beautiful than any of us can begin to imagine. But one just has to wonder why such simple, yet hard earned pleasures, are taken from perfectly good people much, much too soon. It will never make sense… ever.

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Marilyn, BA (before Alzheimer's)

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