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The Long and Winding Road…

~ An Alzheimer's Journey and Beyond

The Long and Winding Road…

Category Archives: Mom

Here we go on the “Medi-Go-Round”…

13 Monday Aug 2012

Posted by Ann Napoletan in Mom, Pharma

≈ 1 Comment

Merry-Go-Round;  noun \ mer-ē-gō-ˌrau̇nd
1: an amusement park ride with seats often in the form of animals (as horses) revolving about a fixed center

Medi-Go-Round; noun \ med-ē-gō-ˌrau̇nd
1: similar to merry-go-round, but much less fun; tends to be incited by changes in medication


Mom is having some pretty rough days, it seems… Actually, a roller coaster  would be more apt than a merry-go-round. She started on a new med last week to help with reactive agitation. All it seems to have done is make her agitation more severe and less predictable. Not good. Doc sent orders to DC it today after Tim spoke with the office. Let’s hope the next few days yield some improvement…

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The chicken and the egg…

12 Sunday Aug 2012

Posted by Ann Napoletan in Mom, Prevention, Research, Ruminations, The Early Years

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I recently happened upon this article about an Arizona State University study describing the effect of social interaction on honeybees. Essentially, the study found that older honeybees remain more youthful when they assume roles that would normally belong to their younger counterparts.

While it’s impossible to hold back the hands of time, the article does suggest there are things we can do to maintain our vitality.

  1. Staying active — Going for walks, taking music or swimming lessons
  2. Staying social — Being a member of a social organization, staying engaged with friends or family or volunteering for a local school or cause
  3. Maintain cognitive stimulation — Read, play games (card, computer, iPad, smart phone etc)

Years ago, when we started to notice Mom’s decline, I remember being so frustrated. The idea of ALZ hadn’t even crossed my mind yet, as I gradually watched her become less and less involved in life. When she retired in 1998, she had plans for the future – she wanted to travel, take up a hobby or two, and volunteer in the schools or at one of the local hospitals.

First, though, she just wanted to take a break. I remember her saying that after all those years of working, she just relished the idea of getting up in the morning and reading the paper in the sunroom. After all those years of living on a schedule, the time had come to relax and stop watching the clock.

The problem was, she never did get moving. She never followed through with her plans, and little by little, bit by bit, she began to withdraw. The person who was always so social, always the life of the party, didn’t want to do anything, and the more I nudged, the more she seemed to dig her heels in.

I’ll always wonder how much her inactivity contributed to the speed with which ALZ took hold. But then again, in the spirit of the chicken and egg, which actually did come first? Perhaps the disease was already manifesting itself well before any of us noticed changes in her. Maybe she knew in her heart of hearts that something just wasn’t right. Maybe she began to doubt herself because of the disease, and soon she was being held prisoner in a viscous cycle. The more she doubted herself, the more she withdrew, and the more she withdrew, the worse the situation became, until the disease began to win…

In Mom’s case, we’ll never know which came first. As for those of us in our 40’s and 50’s, all we can do is vow to remain active, keep our minds challenged, and always have a purpose in life. It’s scary as hell, though, isn’t it? The thought of being trapped by this disease and sucked into that lonely, vicious, never-ending cycle…

 

 

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Not such a great day…

06 Monday Aug 2012

Posted by Ann Napoletan in Behaviors, Mom

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Stopped at Eason House after work. Mom was asleep, but woke up when I sat down next to her. Apparently she had been up since 3am and wouldn’t sit still all day… she’d no more sit down and she’d be back up again pacing…

We sat for awhile, her eyes fixated on the ceiling, not really responding to me at all. She’d slept through dinner, so we warmed up her food and tried to get her to eat. One bite, and that was it. Lots of yelling and hitting her head; agitated by the sound of our voices. At times like that, we’ve found it’s best to just leave her alone.

Hopefully, she ate something before bed, and will get a full night of sleep tonight…

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