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The Long and Winding Road…

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The Long and Winding Road…

Category Archives: Orthostatic Hypotension

Never a Dull Moment

14 Wednesday Nov 2012

Posted by Ann Napoletan in Mom, Orthostatic Hypotension, Pharma

≈ 4 Comments

Well, in the interest of keeping us all on our toes, it was another eventful day at Eason House. That staff really deserves an award for the past couple of weeks.

After I blessed giving a dose of the prn (as needed) psych drug the doc prescribed this week, I sat on pins and needles waiting to hear something. Would it calm her down, knock her out, or do nothing at all?  A couple of hours later, I got a text indicating that it didn’t calm her down, certainly didn’t knock her out, and seemed to make her hallucinations even worse.

When I got to the house between 1:30 and 2, Mom was laying in bed, but her mental status was off the hook. I can’t even describe what it’s like to see her like that. Whatever is terrorizing her mind must be absolutely horrific. It’s so painful to watch. I talked to her and tried to get her to focus on my eyes as much as possible, and while there were moments of peace, and even an “I love you,” she remained mostly inconsolable for the next couple of hours. I just sat there rubbing her head and holding her hand… feeling as though I was starring in a really bad dream. The epitome of helplessness – I couldn’t do a damn thing to fix this.

Around 4pm, after evening meds, she finally began to settle a bit. We took her to her favorite chair where she immediately dozed off for 10 or 15 minutes. From there, she fell in and out of a fairly peaceful sleep. She drank a glass of juice and half an Ensure for me, and even let me feed her a few grapes. I left around 6:30, and she was sleeping peacefully.

I’m praying she sleeps tonight. In the past 48 hours, she’s had essentially no rest. She got up at 1am today/last night and didn’t calm down for the next 15 hours. I honestly don’t even know how she continues to function, let alone scream for hours and hours on end.

I did talk to the house doc today, and the labs came back – she does have a UTI on top of everything else, which obviously isn’t helping her mental state. Hopefully an antibiotic will take care of that. We also went ahead and d/c’d her Fosamax (osteoporosis) and Fexofenadine (allergy), and cut the Diltiazem (hypertension) in half. Doc will be at the house on Saturday, so we’ll see how the ortho bp’s look then.

I’m tired and expect I’ll be on pins and needles tonight, just waiting for the phone to ring. But, what I’m feeling can’t possibly come close to what she’s going through, so I can’t complain. I won’t lie, though, I really need the couple of days away we have planned for next week, so I’m praying we can return to some semblance of normal in the next seven days.

 

 

 

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Good News

12 Monday Nov 2012

Posted by Ann Napoletan in Falls, Mom, Orthostatic Hypotension, Pharma

≈ Leave a comment

Mom’s visit to neurologist went well (getting her in and out of the car, not so much, but the actual appointment went well).  I’m feeling much better about things – hopefully not setting myself up for a big let down.

Verdict is: Orthostatic Hypotension. Today in the office, from the lying to standing position, her systolic pressure dropped from 120 to 68. No wonder she’s falling!! He tied a lot of her symptoms back to the OH, so it sounds like if we get that issue under control, things may “normalize” again (whatever “normal” is).  First step is to cut her current dosage of high blood pressure meds and monitor ortho bp for improvement. If needed, further changes will be made.

We will also have a “last resort” psych drug on hand for the next seven days. In the event that she has a very bad spell and we can’t get her reasonably settled, the lowest dose (0.5mg) can be given. BUT, I’m hoping that won’t be necessary at all.

If you’re so inclined, please pray for this initial change in bp meds to make a significant difference.

On an unrelated note, Caregivers is undergoing a facelift, and along with that it’s experiencing some growing pains. Once the site is back up, I’ll post a link to today’s piece.

Thank you all for your positive thoughts, prayers, and support. You’ll never know how much it means to Jess and I.

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