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The Long and Winding Road…

~ An Alzheimer's Journey and Beyond

The Long and Winding Road…

Category Archives: Prevention

The Latest Alzheimer’s Research Developments

03 Monday Mar 2025

Posted by Ann Napoletan in brain health, Diagnosis, Podcasts, Prevention, Research, Treatments and Therapies

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alzheimers, alzheimers news, alzheimers podcast, alzheimers prevention, alzheimers research, alzheimers therapies, brain health, dementia

In a recent 2-part Brainstorm podcast, Dr. Rudy Tanzi provided an encouraging and informative update on Alzheimer’s developments as we move into 2025.

Meryl Comer recently spoke with renowned researcher, Dr. Rudy Tanzi, for the UsAgainstAlzheimer’s Brainstorm podcast. Dr. Tanzi is Director of Genetics and Aging Research and Director of the McCance Center for Brain Health at Mass General Hospital. He is truly a pioneer in Alzheimer’s research.

In this 2-part series, Dr. Tanzi provides an encouraging and informative update on Alzheimer’s developments as we move into 2025. He talks about new FDA-approved drugs, early cognitive blood tests, and why he believes Alzheimer’s should be treated similarly to the way we treat heart disease – by focusing on pre-symptomatic prevention. He also discusses his SHIELD framework.

Find Brainstorm on Spotify or Apple podcasts or use the direct links below for episodes 78 and 79.

Episode 78 Jan 21 (18:09)
Episode 79 Feb 4 (17:27)


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Join the 30-Day Brain Health Challenge

01 Monday Apr 2019

Posted by Ann Napoletan in be brain powerful, brain health, Marilyn's Legacy, Prevention, Tips, USAgainstAlzheimer's

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#braingoals, alzheimers, be brain powerful, brain health, brain health challenge, dementia, womens brain health

social_media_twitterAs someone who has been up close and personal with Alzheimer’s disease, I think about the future a lot. If you are caring for or have lost a loved one to AD or another form of dementia, you more than likely know exactly what I’m talking about. What are our odds of being diagnosed at some point in our lives and if that day should come, will there be a treatment or means to slow the progression? As companies like Biogen and Lilly pull the plug on Phase III studies of drugs that once seemed to hold such promise, one has to wonder.

Brain Health

Today we are seeing much greater emphasis on prevention. How can we keep our brains healthy and stave off the disease for as long as possible? Enter the Brain Health Partnership.  Led by UsAgainstAlzheimer’s, the BHP is “a comprehensive strategy to ensure brain health is included as an integral element of overall good health, and cognitive decline is identified and addressed in a timely manner.”

We think of heart health as a critical part of overall health; why isn’t the same true of brain health?

Last year, my PCP laughed at me when I asked to have a baseline SAGE test placed in my medical records.  (Note: This was the same PCP that diagnosed my mother’s dementia, so she is fully aware of the family history.)  At the time, I was stunned and quite frankly appalled.  Thankfully, the Brain Health Partnership aims to ensure the medical community takes us just as seriously when we express concerns about cognitive health as they do when we raise concerns about any other aspect of our health.

Women and Alzheimer’s

When it comes to Alzheimer’s disease, women are disproportionately effected. Did you know that two-thirds of Americans living with Alzheimer’s are women and one in six women age 65 and older will develop AD? These numbers are staggering! Alzheimer’s is a women’s health issue – a women’s health crisis – and Be Brain Powerful was created to address it. Marilyn’s Legacy is proud to be an advocacy partner in this important campaign that shines a light on women’s brain health.  The mission is simple:  To be brain powerful at any age. 

Join the Challenge

We invite you to join the 30-Day Brain Health Challenge kicking off on 04.02.19. It’s free and easy; think of it as the first step toward taking control of your own brain health! Each day, you’ll receive a tip or challenge that can easily be incorporated into your daily routine.  You can sign up at any time during the thirty days, so please join us and invite your friends to participate as well! Click here to register.

 

 

 

 

 

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Alzheimer’s Roundup

22 Sunday Jan 2017

Posted by Ann Napoletan in Advocacy and Awareness, Care Options, Diagnosis, Early Onset, Expectations, Face of Alzheimer's, Prevention, Round Up

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alzheimers, alzheimers diet, caregivers, caregiving, dementia, dementia village, living with alzheimers

img_4896

Who will care for the caregivers?

“There are some 40 million Americans like my patient’s daughter. Every day, they help a parent, grandparent, relative or neighbor with basic needs: dressing, bathing, cooking, medications or transportation. Often, they do some or all of this while working, parenting, or both. And we — as doctors, employers, friends and extended family — aren’t doing enough to help them.”  ~Dhruv Khullar, M.D.      Read full article

After the diagnosis…

You’re worried. Your mom has shown increasing forgetfulness for months. She even got lost going to the grocery store she frequents. You hoped things would resolve themselves, but instead, they kept getting worse. You took her to the doctor, hoping the problem was due to a bad interaction of her many medicines or a treatable infection. Instead, you got the dreaded diagnosis: Alzheimer’s. Now what?    Read full article

Dementia Village coming to San Diego

A San Diego nonprofit is taking an unorthodox approach to help seniors cope with Alzheimer’s disease. It’s building a village for them to spend time during the day. It’s not residential. But the village is modeled on San Diego in the 1950s, complete with vintage cars, period music, payphones and shops from the pre-shopping mall, pre-Wal-Mart era. The nonprofit says research suggests this type of visual reminder might improve cognitive function and quality of life of Alzheimer’s patients over 65.   Read full article

Eating for good brain health

“Diet absolutely does play a role. The brain is like any other organ that is susceptible to (foods) that can protect against oxidation damage. … Think of oxidation like a fire getting started. These (good) foods act like little tiny fire extinguishers that help put out those fires that otherwise would cause damage leading to loss of brain function.” ~Liz Applegate, Professor, UC Davis    Read full article

Living with early stage Alzheimer’s

“These days my ministry is Alzheimer’s. I am so much happier now that I’ve accepted my diagnosis. There’s a stigma associated with memory-loss disorders and oftentimes people are afraid to ask for help; I believe my calling is to help reduce that shame. You don’t have to be embarrassed to have Alzheimer’s.”  ~Rev. Cynthia Huling Hummel, D.Min  Read full article

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The Long and Winding Road

Marilyn, BA (before Alzheimer's)

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