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The Long and Winding Road…

~ An Alzheimer's Journey and Beyond

The Long and Winding Road…

Tag Archives: Brain Health

Join the 30-Day Brain Health Challenge

01 Monday Apr 2019

Posted by Ann Napoletan in Be Brain Powerful, Brain Health, Marilyn's Legacy, Prevention, Tips, USAgainstAlzheimer's

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#braingoals, alzheimers, Be Brain Powerful, Brain Health, brain health challenge, dementia, womens brain health

social_media_twitterAs someone who has been up close and personal with Alzheimer’s disease, I think about the future a lot. If you are caring for or have lost a loved one to AD or another form of dementia, you more than likely know exactly what I’m talking about. What are our odds of being diagnosed at some point in our lives and if that day should come, will there be a treatment or means to slow the progression? As companies like Biogen and Lilly pull the plug on Phase III studies of drugs that once seemed to hold such promise, one has to wonder.

Brain Health

Today we are seeing much greater emphasis on prevention. How can we keep our brains healthy and stave off the disease for as long as possible? Enter the Brain Health Partnership.  Led by UsAgainstAlzheimer’s, the BHP is “a comprehensive strategy to ensure brain health is included as an integral element of overall good health, and cognitive decline is identified and addressed in a timely manner.”

We think of heart health as a critical part of overall health; why isn’t the same true of brain health?

Last year, my PCP laughed at me when I asked to have a baseline SAGE test placed in my medical records.  (Note: This was the same PCP that diagnosed my mother’s dementia, so she is fully aware of the family history.)  At the time, I was stunned and quite frankly appalled.  Thankfully, the Brain Health Partnership aims to ensure the medical community takes us just as seriously when we express concerns about cognitive health as they do when we raise concerns about any other aspect of our health.

Women and Alzheimer’s

When it comes to Alzheimer’s disease, women are disproportionately effected. Did you know that two-thirds of Americans living with Alzheimer’s are women and one in six women age 65 and older will develop AD? These numbers are staggering! Alzheimer’s is a women’s health issue – a women’s health crisis – and Be Brain Powerful was created to address it. Marilyn’s Legacy is proud to be an advocacy partner in this important campaign that shines a light on women’s brain health.  The mission is simple:  To be brain powerful at any age. 

Join the Challenge

We invite you to join the 30-Day Brain Health Challenge kicking off on 04.02.19. It’s free and easy; think of it as the first step toward taking control of your own brain health! Each day, you’ll receive a tip or challenge that can easily be incorporated into your daily routine.  You can sign up at any time during the thirty days, so please join us and invite your friends to participate as well! Click here to register.

 

 

 

 

 

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Alzheimer’s Round Up – Nov 2018

12 Monday Nov 2018

Posted by Ann Napoletan in Advocacy and Awareness, Be Brain Powerful, Brain Health, Celebrities, Children and ALZ, Events, Face of Alzheimer's, Genetic Testing, Research, Round Up, Treatments and Therapies, USAgainstAlzheimer's

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alzheimers, alzheimers research, Be Brain Powerful, Brain Health, dementia, diagnosing alzheimers, kid caregivers, sandra day o'connor

Greetings, friends. It’s time for an Alzheimer’s Round Up. As always, thank you so much for reading. Stay tuned for some tips as you prepare for the upcoming Thanksgiving holiday.

Until then…

Be Brain Powerful

This past week, the Be Brain Powerful campaign launched in NYC. This WomenAgainstAlzheimer’s campaign aims to bring awareness to women’s brain health and “ignite a cultural transformation in the way we care for our brains.” We talk about taking care of our bodies, but why don’t we talk about taking care of our brains? Be Brain Powerful will be a formidable health and wellness initiative, and Marilyn’s Legacy is proud to be a partner in this movement! If you had to choose one word to explain what brain health means to you, what would it be? Mine would be, independence.

Alzheimer’s Talks – Nov 20

Coming up at 1pm ET on November 20, UsAgainstAlzheimer’s hosts AlzTalks: A Biomarker Test – Now and in the Future.  During the call, Scott Lewis, Director of Alzheimer’s Disease Diagnostic Pathway at Biogen, will discuss techniques used today to diagnose Alzheimer’s and what diagnosis might look like in the future. In addition, Melissa Bianchi, an expert in patient protections and partner at law firm, Hogan Lovells, will share thoughts on how families should prepare for receiving biomarker confirmation. The call is free, register by clicking here.

Keep Asking Questions

Retired Justice Sandra Day O’Connor, the first female ever named to the U.S. Supreme Court, recently disclosed she has been diagnosed with dementia, most likely Alzheimer’s disease. O’Connor retired from the Court in 2006 to care for her husband, John, who also had the disease. In his touching article for Psychology Today, Greg O’Brien shares the story of meeting Justice O’Connor in Arizona back in the 1970’s and the mentorship and friendship that ensued. Click here to read Greg’s article.

Exciting Research at West Virginia University

Judy Polak was diagnosed with Alzheimer’s in 2014 and is now the only person in the world to undergo a new procedure using ultrasound waves in an attempt to slow the disease. The key is temporarily opening the blood-brain barrier, allowing antibodies from the immune system to pass into the brain and break up the plaques. You can read more about the trial, overseen by Dr. Ali Rezai, Executive Chair of WVU’s Rockefeller Neuroscience Institute, by clicking here.

An 11-Year Old Making a Difference

Hailey Richman is a force to be reckoned with! Her grandmother was diagnosed with Alzheimer’s when Hailey was just four, and that experience sparked her passion for helping others. Noticing there wasn’t much support available for kids, she started Kid Caregivers, a website providing support and encouragement to children affected by the disease. To learn more about how Hailey is using puzzles to help thousands who are living with Alzheimer’s, click here.

 

 

 

 

 

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The Long and Winding Road

Between 2009 and 2015, Marilyn’s Mighty Memory Makers have raised over $22,000 in the fight to #ENDALZ! To all who have supported us, THANK YOU!!

Marilyn, BA (before Alzheimer's)

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