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The Long and Winding Road…

~ An Alzheimer's Journey and Beyond

The Long and Winding Road…

Category Archives: Research

The Time is NOW: Raise Your Voice to Washington

15 Friday Nov 2013

Posted by Ann Napoletan in Advocacy and Awareness, Research, USAgainstAlzheimer's, Washington

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Alzheimers advocacy, alzheimers funding, alzheimers research

usa2_logo_email_headerDear Friends….

Leading researchers believe we can stop Alzheimer’s by 2025 if sufficient funding is allocated to Alzheimer’s research.

Congress is hammering out the details of the 2014 budget right now and we must convince them to prioritize biomedical research funding before it is too late.

The deep budget cuts – known as “sequestration” – that went into effect earlier this year are slowing efforts to find the cause of Alzheimer’s and to develop effective treatments and therapies to slow, modify, stop, and eventually prevent it.

The NIH’s 2013 budget has already been cut by $1.55 billion and, unless we can convince Congress to change course now, even more drastic cuts will be made in 2014 that will mean fewer research grants and delayed progress in medical breakthroughs.1

Some researchers are being forced to take out personal loans to keep their labs open – a practice that is clearly unsustainable.2

labpicThe budget cuts also mean that fewer research scientists are being trained – we’ve already lost one out of every ten MD-PhD training slots due to sequestration.3

Congress will be trying to reach an agreement on the budget in the next two to three weeks. This blueprint would set spending levels, and without adequate room for biomedical research and other programs, increased funding for Alzheimer’s research will be unlikely.

You and I both know that the squeaky wheel gets the grease. Taking just a minute to  raise your voice now will help ensure that our call for Alzheimer’s research funding can be heard in the halls of Congress.

Click here to ask your members of Congress to reverse the devastating cuts and invest more in biomedical research in the budget they’re creating right now.

Thank you again for raising your voice to stop this devastating disease from claiming more lives and destroying more families.

1. http://www.nih.gov/news/health/jun2013/nih-03.htm
2. http://fcnp.com/2013/08/21/congressman-morans-news-commentary-sequester-cuts-disrupting-nih-projects/
3. http://www.baltimoresun.com/news/opinion/oped/bs-ed-biomedical-research,0,6244826.story

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November: Alzheimer’s Awareness Month

03 Sunday Nov 2013

Posted by Ann Napoletan in Advocacy and Awareness, ALZ Assn - National, Facts & Figures, Helpful Resources, November-National ALZ Awareness Month, Petition, Research, Ruminations, USAgainstAlzheimer's, Washington

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Alzheimers advocacy, alzheimers awareness, dementia awareness, national alzheimers awareness month

Image-1November is Alzheimer’s Awareness Month – a great time for everyone to help shine a spotlight on this impending national health crisis.  It’s estimated that 5.3 million Americans are currently living with Alzheimer’s, and 4% of those cases qualify as younger onset, attacking people in their 30’s, 40’s, and 50’s.

The Facts

ALZ org bar-graphAD is the 6th leading cause of death in the United States (5th among those over age 65).  It’s also the only one of the top 10 causes of American deaths that can’t be prevented, cured, or even slowed.  Simply put, there are no survivors.

Between 2000 and 2010, Alzheimer’s deaths rose 68% while deaths from all other major diseases, including heart disease, cancer, stroke, and HIV, have dropped.

Big numbers? Well, consider this:

  • Within the next 12 years, there will be 7.2 million adults, age 65 and older, living with Alzheimer’s and other dementias.
  • Unless there is a major medical breakthrough, it’s projected that 13.8 million older Americans (age 65 and over) will have Alzheimer’s by 2050.

ALZ org pie-graph

Cost of Care

The cost of care is astronomical and growing every day. Estimates indicate that this year alone, the direct costs of caring for those living with Alzheimer’s will total $203 billion.  At the rate we’re going, without significant progress toward preventing or treating the disease, costs will rise to $1.2 trillion (in current dollars) by 2050.

Research Dollars

graph-2011_national_institutes_of_healthResearch funding isn’t where it needs to be – not by a long shot. The National Institutes of Health spends over $6 billion/year on cancer research, over $4 billion/year on heart research, and over $3 billion/year on HIV/AIDS research. Less than $500 million/year is spent on Alzheimer’s – the disease that’s shaping up to be the health crisis of our generation.

Government can’t afford additional funding? Well, the alternative only exacerbates that situation. Should we reach the numbers mentioned above by 2050, we’re looking at a 500% increase in Medicare and Medicaid spending. Now who wants to talk about breaking the bank????

Facing the Fear and Raising Awareness

The fact is, there’s a generation of Alzheimer’s caregivers who are terrified about what the future may hold. I know because I’m one of them. Am I destined to follow in my mother’s footsteps? The thought of putting my daughter through that is – well, there’s no doubt – it’s my worst nightmare.  sunday-w-mom-1

The time is NOW, not tomorrow, next week, or next year. Sign a petition, contact your lawmakers, support organizations like USAgainstAlzheimer’s and the Alzheimer’s Association, and TALK ABOUT IT every time an opportunity presents itself.

We need to get this issue out in the forefront and do everything we can to keep it there for as long as necessary, so that someday we won’t need an Alzheimer’s Awareness Month.

 

Source for statistics and graphs: http://www.alz.org

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Call to Action

09 Wednesday Oct 2013

Posted by Ann Napoletan in Advocacy and Awareness, Research, USAgainstAlzheimer's, Washington

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Alzheimers advocacy, alzheimers funding, alzheimers research, government shutdown, sequestration

usa2_logo_email_headerThe government shutdown has officially halted new federal investment in
Alzheimer’s research. But we can’t afford to waste a moment more
finding a cure for Alzheimer’s.

Please don’t delay!
Ask your members of Congress to end the shutdown now.

It takes less than 30 seconds…click HERE.

And when you’re done, share this link and ask your friends to do the same!

http://actions.usagainstalzheimers.org/p/dia/action3/common/public/?action_KEY=12187

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