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The Long and Winding Road…

~ An Alzheimer's Journey and Beyond

The Long and Winding Road…

Tag Archives: national alzheimers awareness month

Alzheimer’s Book Giveaway!!

02 Wednesday Nov 2016

Posted by Ann Napoletan in Books, Caregivers, Giveaways, Helpful Resources, Inspiration, November-National ALZ Awareness Month

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Alzheimer's books, alzheimers, alzheimers book giveaway, alzheimers caregivers, national alzheimers awareness month, national family caregivers month

book-cover-sm

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The contest is closed and our randomly chosen winners are Sandra Collard and Jeffrey Brown (check your inboxes for an email from me!). Thank you to all who entered! 

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Did you know that November is National Family Caregivers Month as well as National Alzheimer’s Awareness Month?

With that in mind, I’ll be giving away two signed copies of Chicken Soup for the Soul: Living With Alzheimer’s and Other Dementias. I’m blessed to have been a contributor to this compilation of 101 stories that will touch your heart and provide inspiration even during the most challenging moments.

To enter the contest, all you need to do is leave a comment on this post. I’ll draw two winners on Friday, November 11. Contest is open to anyone in the contiguous United States.

Good luck!!

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Upcoming Event: Creating Dementia Friendly Communities with Olivia Mastry

11 Tuesday Nov 2014

Posted by Ann Napoletan in Advocacy and Awareness, Events, Helpful Resources, November-National ALZ Awareness Month, Tips, USAgainstAlzheimer's

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alzheimers, Alzheimers advocacy, alzheimers awareness, dementia, dementia friendly, national alzheimers awareness month

Olivia Mastry and ACT on Alzheimer’s have established dementia-friendly environments in 32 different communities in Minnesota.

In the next Alzheimer’s Talks call presented by USAgainstAlzheimer’s, we’ll learn more about the power of dementia-friendly communities and how to use the Minnesota model to create dementia-friendly environments in communities nationwide.

Olivia will answer questions and share her recommendations, including lessons learned and a toolkit with concrete steps in developing a plan.

Register today for the call on November 18th, from 3-4pm ET.

http://actions.usagainstalzheimers.org/p/salsa/web/common/public/signup?signup_page_KEY=6874

Postscript:  If you missed Olivia’s call, you can sign up to receive the highlights via email. Click –> here.

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November: Alzheimer’s Awareness Month

03 Sunday Nov 2013

Posted by Ann Napoletan in Advocacy and Awareness, ALZ Assn - National, Facts & Figures, Helpful Resources, November-National ALZ Awareness Month, Petition, Research, Ruminations, USAgainstAlzheimer's, Washington

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Alzheimers advocacy, alzheimers awareness, dementia awareness, national alzheimers awareness month

Image-1November is Alzheimer’s Awareness Month – a great time for everyone to help shine a spotlight on this impending national health crisis.  It’s estimated that 5.3 million Americans are currently living with Alzheimer’s, and 4% of those cases qualify as younger onset, attacking people in their 30’s, 40’s, and 50’s.

The Facts

ALZ org bar-graphAD is the 6th leading cause of death in the United States (5th among those over age 65).  It’s also the only one of the top 10 causes of American deaths that can’t be prevented, cured, or even slowed.  Simply put, there are no survivors.

Between 2000 and 2010, Alzheimer’s deaths rose 68% while deaths from all other major diseases, including heart disease, cancer, stroke, and HIV, have dropped.

Big numbers? Well, consider this:

  • Within the next 12 years, there will be 7.2 million adults, age 65 and older, living with Alzheimer’s and other dementias.
  • Unless there is a major medical breakthrough, it’s projected that 13.8 million older Americans (age 65 and over) will have Alzheimer’s by 2050.

ALZ org pie-graph

Cost of Care

The cost of care is astronomical and growing every day. Estimates indicate that this year alone, the direct costs of caring for those living with Alzheimer’s will total $203 billion.  At the rate we’re going, without significant progress toward preventing or treating the disease, costs will rise to $1.2 trillion (in current dollars) by 2050.

Research Dollars

graph-2011_national_institutes_of_healthResearch funding isn’t where it needs to be – not by a long shot. The National Institutes of Health spends over $6 billion/year on cancer research, over $4 billion/year on heart research, and over $3 billion/year on HIV/AIDS research. Less than $500 million/year is spent on Alzheimer’s – the disease that’s shaping up to be the health crisis of our generation.

Government can’t afford additional funding? Well, the alternative only exacerbates that situation. Should we reach the numbers mentioned above by 2050, we’re looking at a 500% increase in Medicare and Medicaid spending. Now who wants to talk about breaking the bank????

Facing the Fear and Raising Awareness

The fact is, there’s a generation of Alzheimer’s caregivers who are terrified about what the future may hold. I know because I’m one of them. Am I destined to follow in my mother’s footsteps? The thought of putting my daughter through that is – well, there’s no doubt – it’s my worst nightmare.  sunday-w-mom-1

The time is NOW, not tomorrow, next week, or next year. Sign a petition, contact your lawmakers, support organizations like USAgainstAlzheimer’s and the Alzheimer’s Association, and TALK ABOUT IT every time an opportunity presents itself.

We need to get this issue out in the forefront and do everything we can to keep it there for as long as necessary, so that someday we won’t need an Alzheimer’s Awareness Month.

 

Source for statistics and graphs: http://www.alz.org

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The Long and Winding Road

Between 2009 and 2015, Marilyn’s Mighty Memory Makers have raised over $22,000 in the fight to #ENDALZ! To all who have supported us, THANK YOU!!

Marilyn, BA (before Alzheimer's)

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