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The Long and Winding Road…

~ An Alzheimer's Journey and Beyond

The Long and Winding Road…

Category Archives: Ruminations

Alzheimer’s: In This Moment…

23 Wednesday Jul 2014

Posted by Ann Napoletan in Advocacy and Awareness, Caregivers, Face of Alzheimer's, Grieving, Guilt and Regrets, Life After Caregiving, Mom, Ruminations

≈ 3 Comments

Tags

alzheimers, dementia, grief, life mysteries

A good day… always treasured.

It’s been a long time since I’ve written a purely stream of consciousness post, but I’m in that kind of mood.

This week has been emotional, and I’m not sure why. Maybe I’m extra tired or maybe it’s a particularly strong jolt of “reality” hitting. I miss my mom more than words can say. So much has happened, so much I wish I could share with her over a cup of tea or glass of wine.

I try not to question things, but Alzheimer’s is a real “head-scratcher,” isn’t it? I just can’t make sense of any of it. At all. Why? Just why? Why must so many people suffer its wrath? Is there a purpose, and if so, someone please fill me in!

I received a message from a friend tonight, regarding his mother who is struggling with dementia.

My response, pure stream of consciousness with no filter. In this moment.

“I’m sorry… It just sucks – no two ways about it. I’d be lying if I didn’t say I was #%&$ing *pissed off* that “it” stole my mom from me – I should have shared my 40’s with her and my 50’s for that matter. I always imagined us having a ball, traveling, etc., for many, many years after her retirement. But it wasn’t meant to be, I guess. I’ll just never, ever understand the unfairness of this disease. I wish I could tell you it gets easier… It doesn’t get easier, but I will say that once I got to a point of true acceptance, it was less difficult – if that makes any sense. That’s what my piece in Chicken Soup for the Soul is about, actually. Acceptance. But it took me way too long; so much wasted time. Just enjoy the time you have with her as much as you possibly can. It is what it is. Go to her world when she can’t come back to yours.”

It is what it is. In this moment.

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Waiting For Someday

13 Friday Jun 2014

Posted by Ann Napoletan in God Winks, Inspiration, Life After Caregiving, Mom, Ruminations

≈ 4 Comments

Tags

alzheimers, alzheimers lessons, dementia

Mom’s Retirement, 1998, Age 62

Life.

The natural ebb and flow.

Inhale. Exhale. Repeat.

Change is in the air.

I feel like I’ve been particularly introspective this week, in a good way. Having made a huge, life-changing decision, it seems rather fitting. After 27 years, I left the only company I’ve ever worked for as an adult… 27 years. A lifetime. But it was time. Beyond time, probably.

Paralyzed by What Ifs

By nature, I’m not a risk taker. For most of my 48 years, I’ve played it safe. Followed the rules. Colored inside the lines. Did what the world expected. I haven’t taken a lot of chances. Until now.

Mom’s Retirement Party

Seeing my mom suffer the ravages of Alzheimer’s for the better part of a decade. Watching as this disease robbed her of the opportunity to live the retirement she had planned and prepared for so carefully. Friends, travel, the “golden years” we all dream of experiencing someday – for Mom, it wasn’t meant to be.

The lesson is simple – “someday” isn’t promised. For years, I’ve been saying I needed a change. “I’m going to do this” and “I’m going to do that.” But it was all talk and no action. Fear of the unknown always got the best of me. What if it doesn’t work out? What if I fail? What if, what if, what if? Ah, but what if becoming complacent is the real peril?

If my mom had known her fate when she was my age, would she have done anything differently? It’s impossible to say. I suspect she may have taken that Alaskan cruise or gone to Italy rather than putting those dream vacations off until “someday.”

Striking a Balance

Ultimately, there has to be a balance between living for today and preparing for tomorrow. I voluntarily walked away from the “sure thing” to embark on the unknown. To be honest, I still can’t believe I did it. And more than anything, I can’t believe how easy the decision was.

For that, I have to thank my mom. Gone 18 months, yet she is still teaching me about life. It may sound cliché, but I know she’s been guiding me throughout the decision making process. More than once, I told myself I was crazy and tried like hell to talk myself out of the change – but without fail, there was an unexplainable pull back toward taking that leap of faith.

I’d be lying if I didn’t say I was apprehensive. Change is scary. However, more than anything I’m filled with hope and anticipation. I don’t remember the last time I felt so excited or had such a positive outlook. I’m going to a company whose mission is right in line with my passion – what I do will have a direct impact on providing affordable housing for seniors. I feel like the possibilities are endless and the future is bright.

The Lessons Keep Coming

That’s my mama!

Perhaps there’s a reason I never took the leap before; maybe this was the opportunity that was meant to be. There are a lot of things in life I don’t know, but the one thing I’m certain of is that dealing with Alzheimer’s has profoundly changed my life.

I sweat the small stuff much less than I used to. I take greater joy in the simple things. Those I love, I love deeply and unconditionally, I try to make a difference in the world every day, I pick my battles, and I constantly remind myself that tomorrow is not guaranteed.

Finally, I’m learning it’s okay to color outside the lines…

Thanks Mom…

 

 

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Coconut Oil: A Hot Button?

03 Tuesday Jun 2014

Posted by Ann Napoletan in "Super Foods", Alzheimers.net, Coconut Oil, Diet, Helpful Resources, Mom, Ruminations

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Tags

alzheimers, coconut, coconut oil, dementia

Image courtesy of Suat Eman / FreeDigitalPhotos.net

Coconut oil. It’s a very controversial subject in the world of Alzheimer’s.

Some online support groups actually ban posts about coconut oil suggesting any discussion on the topic gives people false hope.

There is no cure for Alzheimer’s.

No survivors.

No cure.

Simply put, if coconut oil cured Alzheimer’s, well… I wouldn’t be writing this. In fact, this blog wouldn’t exist at all. What a wonderful thing that would be, but for now, as the saying goes, “if ands or buts were candy and nuts, then every day would be Christmas!”

Coconut Oil and Brain Health

Last spring, I wrote an article for Alzheimers.net exploring coconut oil’s potential impact on brain health. If I had known about it ten years ago, would I have tried adding coconut oil to my mom’s diet? You bet your bottom dollar. I would have tried anything in an attempt to stave off the symptoms for as long as possible. Am I convinced that adding it to my diet will prevent me from getting this insidious disease? Not at all. Do I think it’s the magic antidote we’ve all been looking for? No.

Image courtesy of Toa55 / FreeDigitalPhotos.net

However, my *personal opinion is – no harm, no foul. I’ve replaced my old cooking spray with a coconut oil spray. I stir a teaspoonful of the solid form into my coffee or oatmeal, and I cook with it when it makes sense to do so. I also use coconut milk – simply because I like the taste! I believe there are overall health benefits associated with coconut, but my advice is simple. Do your research, discuss with your doctor, and make the choice that’s best for you.

Ultimate Guide to Coconut Products

Should you decide to explore adding coconut products of any sort to your diet, Lisa Richards provides an excellent Ultimate Guide to Coconut Products. On this page, she discusses everything from coconut oil to coconut flour to coconut….vinegar??! Yes, that’s right – coconut vinegar! Lisa’s guide is chock full of information; everything you wanted to know about coconut and more!!

*Disclosure: I am not a doctor, nor have I ever portrayed one on TV. The statements herein are my opinions and do not constitute medical advice.

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