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The Long and Winding Road…

~ An Alzheimer's Journey and Beyond

The Long and Winding Road…

Category Archives: Tips

Book Review: Elegy for Mom

28 Thursday Jul 2016

Posted by Ann Napoletan in Advocacy and Awareness, Books, Caregivers, Helpful Resources, Inspiration, Tips

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Tags

alzheimer's books, alzheimers, alzheimers caregivers, caregiving, dementia

Elegy-for-Mom_BookCvrI’m often asked to review books on the topic of Alzheimer’s/dementia caregiving. I’d love to have time to get to all of them, but with limited bandwidth, I’m forced to pick and choose. Today, I’m happy to share Elegy for Mom: A Memoir of Family Caregiving, Alzheimer’s, and Devotion, by Vicki M. Kaufmann. At just over 100 pages, it’s a quick, easy read, yet covers a lot of ground!

In writing Elegy for Mom, Kaufmann’s goal was to share useful ideas and resources based on her own experience caring for her mother. To the degree possible, she wanted not only to offer support, but also to help bring meaning to the journey and reveal some of the blessings that can be found along the way.

Although the author has a background as a counselor, the book is really a very personal look at caring for a loved one with Alzheimer’s. In fact, Kaufmann states early on that despite her clinical experience, she was unprepared for the job of caregiver.

She describes feeling emotions so many of us can relate to: first comes denial, followed by anger and depression, and finally, resignation. Kaufmann believes caring for a family member is a spiritual calling and often a “pathway to new levels of grace, courage, creativity, and love.” This resonates with me; through my own journey with my mother, I found courage I didn’t know I had, became a more compassionate human being, and felt a depth of love I didn’t know existed. Ultimately, like the author, I found purpose in sharing our story to help other families.

While no one would choose this journey, I truly appreciate those who can find something positive in the experience. Long-time caregiver and leading advocate Meryl Comer refers to this as “flipping the pain,” which is so fitting. We can wallow in grief and sorrow, or we can find something to be grateful for and even use our experience to ease the pain of others and affect change. Choosing the latter doesn’t mean there will never be sorrowful times when tears flow like a river; it just means that at the deepest level, we choose gratitude over bitterness.

vicki-imgElegy for Mom is filled with moving original poetry, snippets from Kaufmann’s personal journals, family photographs, and samples of her mother’s original artwork. Each chapter tackles a unique sub-topic, ultimately painting a picture of what could be any family making their way through life with Alzheimer’s – one day at a time.

Throughout the book, the author also includes tips for caregivers, grouped by topic: making the most of visits, dealing with the stress of caregiving, finding the best facility, and even simple affirmation exercises to fuel the spirit of the weary caregiver.

I found Elegy for Mom to be a lovely blend of storytelling, practical tips, helpful resources, touching poetry, and wonderful artwork. It’s a unique compilation based on one family’s experience – both a loving tribute to the author’s mother, Sophia, and a thoughtful, reflective gift to other caregivers. Kaufmann succeeded in crafting a gem that would make a great addition to any collection.

* Update (08.14.16) – Elegy for Mom has received a gold medal in the “Health and Fitness” category and a silver medal in the “How To/Self-Help” category in the Florida Authors and Publishers Association annual contest. Congratulations to Vicki Kaufmann on this well deserved recognition!!

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A Story for Valentine’s Day & Beyond

13 Saturday Feb 2016

Posted by Ann Napoletan in Advocacy and Awareness, Blogging, Books, Caregivers, Celebrities, Face of Alzheimer's, Helpful Resources, Inspiration, Tips, USAgainstAlzheimer's

≈ 4 Comments

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alzheimer's books, alzheimers, Alzheimers advocacy, alzheimers caregiving, b smith, barbara smith, before i forget, dan gasby

coverLast fall, I had the pleasure of attending a WomenAgainstAlzheimer’s dinner where Barbara (B.) Smith and husband, Dan Gasby, were honored for their Alzheimer’s advocacy work. You may know B. as a chef, restaurateur, entrepreneur, author, lifestyle expert, television host, magazine publisher, or supermodel – this lady has quite a resume!

What you may not know is that Barbara was diagnosed with younger onset Alzheimer’s in 2013 when she was just 64 years of age.

Today, Dan and B. work tirelessly to bring attention to the impending social crisis that is Alzheimer’s disease. They’ve recently written a book entitled, Before I Forget: Love, Hope, Help & Acceptance in Our Fight Against Alzheimer’s, chronicling their story, and whether you have been touched by Alzheimer’s (yet) or not, I suggest you pick up a copy and read it.

Dan writes with a courage and forthrightness that we don’t always see. He shares the good, the bad, and the ugly, in an enlightening and even validating style for those of us who have been through the journey. As I read each page, I found myself nodding, “YES, I’ve felt that way” or “Oh, I remember when that happened to us.”

Throughout the book, Dan shares practical tips based on his own experience. He discusses how this journey has affected the couple’s marriage and some of the things he has found help him cope on a daily basis. Before I Forget is a book about Alzheimer’s, but make no mistake – first and foremost, it’s a love story.

In a recent Alzheimer’s Talks call, Dan encouraged listeners to “do one thing” to move us forward in this fight. Read more about that call in my recap of a very compelling, thought-provoking hour with Dan. You can find it by visiting my friends at UsAgainstAlzheimer’s. Thank you to Trish Vradenburg and Virginia Biggar for allowing me to share my thoughts in A Love Story: B. Smith & Dan Gasby.

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Keep the “HAPPY” in YOUR Holidays!

20 Sunday Dec 2015

Posted by Ann Napoletan in Advocacy and Awareness, Blogging, Caregivers, Helpful Resources, Holidays, Inspiration, Tips, USAgainstAlzheimer's

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alzheimers, alzheimers caregiver tips, alzheimers caregiving, alzheimers holiday tips, dementia, usagainstalzheimers

lightssantaalz.smOf the work I’ve done in the area of advocacy and caregiver support, my involvement with UsAgainstAlzheimer’s is one of the things I’m most proud of.

This organization has an incredible staff of passionate individuals who are in this fight to win it, and they’re led by George & Trish Vradenburg – a couple that does more for this movement than any other two people I know. As the founders of USA2, the Vradenburgs cover all operating expenses so that 100% of every dollar donated goes straight to the task at hand – fighting this monster called Alzheimer’s!

I’m honored to be a contributor to Trish’s blog, Before I Forget, and hope you or someone you know who has a loved one living with Alzheimer’s will find my holiday tips helpful. No matter what’s happening in our lives, we all deserve happiness, and I want you to know that this disease does NOT have the power to take away special moments of sheer joy.

Please hop over and read the holiday post and share the link with anyone who may benefit!   –> http://www.usagainstalzheimers.org/blog/keeping-happy-holidays

With love and wishes for a blessed holiday,
Ann

 

 

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