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The Long and Winding Road…

~ An Alzheimer's Journey and Beyond

The Long and Winding Road…

Category Archives: USAgainstAlzheimer’s

A Story for Valentine’s Day & Beyond

13 Saturday Feb 2016

Posted by Ann Napoletan in Advocacy and Awareness, Blogging, Books, Caregivers, Celebrities, Face of Alzheimer's, Helpful Resources, Inspiration, Tips, USAgainstAlzheimer's

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alzheimer's books, alzheimers, Alzheimers advocacy, alzheimers caregiving, b smith, barbara smith, before i forget, dan gasby

coverLast fall, I had the pleasure of attending a WomenAgainstAlzheimer’s dinner where Barbara (B.) Smith and husband, Dan Gasby, were honored for their Alzheimer’s advocacy work. You may know B. as a chef, restaurateur, entrepreneur, author, lifestyle expert, television host, magazine publisher, or supermodel – this lady has quite a resume!

What you may not know is that Barbara was diagnosed with younger onset Alzheimer’s in 2013 when she was just 64 years of age.

Today, Dan and B. work tirelessly to bring attention to the impending social crisis that is Alzheimer’s disease. They’ve recently written a book entitled, Before I Forget: Love, Hope, Help & Acceptance in Our Fight Against Alzheimer’s, chronicling their story, and whether you have been touched by Alzheimer’s (yet) or not, I suggest you pick up a copy and read it.

Dan writes with a courage and forthrightness that we don’t always see. He shares the good, the bad, and the ugly, in an enlightening and even validating style for those of us who have been through the journey. As I read each page, I found myself nodding, “YES, I’ve felt that way” or “Oh, I remember when that happened to us.”

Throughout the book, Dan shares practical tips based on his own experience. He discusses how this journey has affected the couple’s marriage and some of the things he has found help him cope on a daily basis. Before I Forget is a book about Alzheimer’s, but make no mistake – first and foremost, it’s a love story.

In a recent Alzheimer’s Talks call, Dan encouraged listeners to “do one thing” to move us forward in this fight. Read more about that call in my recap of a very compelling, thought-provoking hour with Dan. You can find it by visiting my friends at UsAgainstAlzheimer’s. Thank you to Trish Vradenburg and Virginia Biggar for allowing me to share my thoughts in A Love Story: B. Smith & Dan Gasby.

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Keep the “HAPPY” in YOUR Holidays!

20 Sunday Dec 2015

Posted by Ann Napoletan in Advocacy and Awareness, Blogging, Caregivers, Helpful Resources, Holidays, Inspiration, Tips, USAgainstAlzheimer's

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alzheimers, alzheimers caregiver tips, alzheimers caregiving, alzheimers holiday tips, dementia, usagainstalzheimers

lightssantaalz.smOf the work I’ve done in the area of advocacy and caregiver support, my involvement with UsAgainstAlzheimer’s is one of the things I’m most proud of.

This organization has an incredible staff of passionate individuals who are in this fight to win it, and they’re led by George & Trish Vradenburg – a couple that does more for this movement than any other two people I know. As the founders of USA2, the Vradenburgs cover all operating expenses so that 100% of every dollar donated goes straight to the task at hand – fighting this monster called Alzheimer’s!

I’m honored to be a contributor to Trish’s blog, Before I Forget, and hope you or someone you know who has a loved one living with Alzheimer’s will find my holiday tips helpful. No matter what’s happening in our lives, we all deserve happiness, and I want you to know that this disease does NOT have the power to take away special moments of sheer joy.

Please hop over and read the holiday post and share the link with anyone who may benefit!   –> http://www.usagainstalzheimers.org/blog/keeping-happy-holidays

With love and wishes for a blessed holiday,
Ann

 

 

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Exciting News from the Hill!!

16 Wednesday Dec 2015

Posted by Ann Napoletan in Advocacy and Awareness, Research, USAgainstAlzheimer's, Washington

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Alzheimers advocacy, alzheimers research, alzheimers research spending, alzheimers spending, dementia research, usagainstalzheimers


A press release from UsAgainstAlzheimer’s.

Washington, DC – The agreement reached between the House and Senate on a massive Fiscal Year 2016 omnibus spending package includes an increase of $350 million for the National Institutes of Health (NIH) for Alzheimer’s and dementia research.   (Read Full Press Release)

Contact your representative NOW to ask for their “yes” vote on Friday!

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Marilyn, BA (before Alzheimer's)

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