Think Like a Scientist: Inside Alzheimer’s Disease

05 Sunday Nov 2017

Posted by Ann Napoletan in Advocacy and Awareness, Face of Alzheimer's, Films, Inspiration, Research, Video

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alzheimers, alzheimers inspiration, alzheimers research, alzheimers story, greg obrien, rudy tanzi, think like a scientist

Once or twice in a lifetime, if we’re lucky, we have a chance to meet a real life hero.

Greg O’Brien, author of OnPluto: Inside the Mind of Alzheimer’s, is one of those people for me. I had followed his story for years and finally had the privilege of meeting him a few years ago at the UsAgainstAlzheimer’s Summit in Washington. Greg’s courage, humor, and willingness to share his story in such an honest and unfiltered way, combined with his journalistic excellence, are beyond inspiring.

Also featured in this short film is Dr. Rudy Tanzi, arguably the leading AD scientist/researcher in the United States. Dr. Tanzi co-discovered all three early-onset familial Alzheimer’s disease genes and, as leader of the Alzheimer’s Genome Project, discovered several others. In 2014, he and Dr. Doo Yeon Kim, used Alzheimer’s disease genes to create “Alzheimer’s in a Dish,” effectively taking Alzheimer’s research to a new level.

Please take six minutes to watch this moving short film.

Meet Victoria

09 Tuesday Aug 2016

Posted by Ann Napoletan in Advocacy and Awareness, Caregivers, Expectations, Face of Alzheimer's, Video

≈ 6 Comments

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alzheimers, caregiving, dementia, younger onset alzheimers

This video is not only a lovely tribute from a daughter to her father, but it carries an important message. No matter how far along someone is in the disease, they deserve our attention, love, and respect.

Too many people still have this false notion that once a loved one no longer recognizes them, there’s no reason to visit. It pains me that this line of thinking still exists. Even in the latest stages, there are moments of clarity, and we just don’t know when they’ll come, but regardless, every person on the planet needs love, affection, and human interaction. Whether they remember you or not, they need you. Please don’t forget this.

Victoria’s father was diagnosed with young onset Alzheimer’s when she was just 19-years-old. Here is her story.

Thank you, Rep. Scott Rigell (VA)

04 Thursday Aug 2016

Posted by Ann Napoletan in Advocacy and Awareness, Early Onset, Face of Alzheimer's, Facts & Figures, Video, Washington

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alzheimers, Alzheimers advocacy, alzheimers funding, dementia, missing jim, young onset alzheimers

We, at The Long and Winding Road and Marilyn’s Legacy, wish to express our sincere gratitude to Representative Scott Rigell of Virginia. Thank you for being an Alzheimer’s champion, Rep. Rigell. Thank you for speaking up and for sharing the Garner family’s story. Your words were powerful and we hope and pray your colleagues in the House were listening and will act accordingly.