Exciting News from the Hill!!

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A press release from UsAgainstAlzheimer’s.

Washington, DC – The agreement reached between the House and Senate on a massive Fiscal Year 2016 omnibus spending package includes an increase of $350 million for the National Institutes of Health (NIH) for Alzheimer’s and dementia research.   (Read Full Press Release)

Contact your representative NOW to ask for their “yes” vote on Friday!

Dear Mom…

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Dear Mom,

Time is a strange thing. It’s impossible to believe that tomorrow you will have been gone from our world for three years, yet sometimes it feels like forever since I’ve seen your face. And believe it or not, there are still moments when it doesn’t seem real at all that I’ll never hold your hand again. It’s those moments, when they strike, that move me to tears.


The years have dulled the pain, but there are still moments when it cuts deep and the wound feels fresh and unbearable. There are a million things I wish I could share with you – oh how proud you would be of Jess. The things she’s accomplished, yes, but more importantly the loving, kind, bright, introspective, and passionate human being she is. In the past few years, I’ve seen her blossom like never before. You would be so happy. I see a lot of you in her.

You know, we went to Italy this fall. That was a trip the three of us meant to take, but it never happened. We felt you with us, though. We saw so much that you would have adored – Florence would have been your favorite place, I’m certain of that. It felt fitting that we spend your birthday in a spiritual place, so we toured the Vatican that day. Such beauty – overwhelming to the eyes, the mind, and the heart. How I wish we’d had time to take that trip together before Alzheimer’s came into our lives. Tomorrow is never promised, though, is it?

I still feel angry about the time we missed together; I don’t dwell on it, but it’s there. If you were alive, you would have turned 79 in October, and had it not been for that abysmal disease, you would be a young, healthy, active, and vibrant 79. You would be enjoying retirement, travel, friends, and holidays. We might be baking Christmas cookies right now.

I’ll never understand why life unfolded the way it did, but I vow to make the best of every day because I know that’s what you would want. Even during your long illness, you taught me so much, and those lessons continue to enlighten me three years later. Life is beautiful… and it turns out, the little things are really the big things. I never want to lose sight of that.

In 2016, there will be a new non-profit launched to honor your beautiful memory. We’ll do wonderful things with the money we raise, both to support caregivers and families living this horror right now and to help obliterate Alzheimer’s forever. Anyone who knew you knows you had a way about you – you seemed bigger than life itself, and I promise to keep your memory alive today, tomorrow, and always.

Keep sending the cardinals…

I love and miss you dearly, forever and a day,

Ann
xoxo

Catch the Spirit

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Today, something a tad bit off-topic, but relevant nonetheless. I wrote this piece back in 2003. Twelve years later, we still seem to be racing through life. Caregivers have even more challenges at this time of year – trying to juggle everything while doing their best to create a perfectly idyllic holiday.

The world seems to be going crazy, doesn’t it? Another shooting this afternoon. Fourteen people dead. I just read there have been over 350 mass shootings this year alone in the U.S. Our priorities are so mixed up, what’s happening? So much anger and hate. Too many tragic events. The world needs peace and love, and we all need to slow down. I hope these words touch your heart.

 


© Ann Napoletan

December 17, 2003

As I sit here alone at the end of my day, the house is quiet and dark, lit only by the twinkling lights of the Christmas tree and the glare of the laptop’s display panel.  A sparse dusting of snow has fallen and the mercury will likely plunge to icy-cold depths tonight.

My workday was hectic as usual and I opted to forgo lunch in order to escape the office early for some errand running.  Little did I know those errands would prompt such a conundrum of thoughts in my overactive, ever-churning brain.

Drained by the day’s frenzy, yet wound tighter than a rubber band perched for launch, I was more than ready to switch gears when I hit the road shortly after 3:30.  With holiday music playing on the radio and a light powdery snow falling gently from above, I thought about the fact that Christmas is just one week away.

With each year, time passes more quickly.  The month between Thanksgiving and Christmas is gone in the blink of an eye; holiday preparations are rushed, and it seems as though there is less and less time to actually soak up the spirit of the season.

This year, I made a conscious decision to simplify.  Rather than putting up two trees, I did one.  Instead of dragging out every single Christmas decoration from the many I have collected over the years, I pulled out only those that struck me as most cherished the day I set to the task of “decking the halls.”  As for baking, I decided there would be no rushing to squeeze in all the hours it takes to make a dozen different kinds of cookies.  Instead, I opted for two traditional favorites – Aunt Flora’s pizzelles and my soft cutout sugar cookies.   It just wouldn’t be Christmas without those.  Even the process of shopping for gifts was simplified as much as possible through use of the Internet.

My deliberate attempt at holiday simplification was definitely a tradeoff.  Sure, I find myself missing some of those extra decorations and lights that are still tucked away in their boxes, and I would love to have my usual extensive assortment of homemade cookies with which to adorn holiday trays.  But, at some point, something has to give.

This year, I actually enjoyed the 4 hours or so that it took to lovingly press each of those pizzelle cookies. I wasn’t nearly as rushed as in past years, so I was able to relish the warmth emanating from the iron and the scent of anise seed and sweet pizzelle dough as it wafted through the air.

Since I’d pared down my decorations, I took my time trimming the tree.  I sat for hours sorting through ornaments – taking time to place them just perfectly and think about the history and fond memories each special ornament holds.

This past weekend, we even took a ride to look at Christmas lights, something we hadn’t done in years.  And, over the past couple of weeks, I’ve tried to spend some quiet time now and then in the evening, just enjoying holiday music and the magic of our very special tree.

Even with all of this, I feel as though the holiday season is passing me by.  The evenings are short and the weekends even shorter.

It all makes me wonder about life and the ridiculous pace at which we run.

In the past two days, I have witnessed three drivers blatantly run red lights.  I’m not referring to sneaking through as yellow turned to red, but rather RUNNING the full-fledged-red light at a dangerous rate of speed.  Fortunately, in all three instances, other drivers were alert and disaster was averted.

Are people in that big of a big hurry?   Has the holiday rush made everyone kick up their pace yet another notch?  Or are people just so consumed by their ever-growing to do lists that they have become oblivious to their surroundings?  How much is too much?

Twice in the past week, I have been in stores and seen people rifling through racks while carrying on lengthy, rather loud, cell phone conversations.   I am one who has always defended appropriate use of cell phones.  Mine is a great convenience to me; however, I find it hard to believe that anyone has a 30-minute conversation that is so pressing it must be carried out in public for the entire world to hear.   Can’t these things wait?

What is happening to our society?

Based on life as we know it today, I truly fear for where we will be in 10 or 20 years if this pattern continues.

Priorities have become a tangled up mess, and for too many people, the things that bring true happiness are nowhere near the top of the list.   There is certainly no time for dreams or setting truly fulfilling personal goals.

People displaying road rage as they make their way from one pre-holiday sale to the next – where will it end?

The next time you’re waiting in line in a store or sitting in traffic, take time to observe those around you.  How many people are on cell phones?   Compare the number of friendly faces you see with the number of scowls.  How many instances of road rage do you witness in a week?  And, how many of the people you pass by in a day look as if they are stressed to wit’s end?

So many people just living day to day, minute to minute – not even LIVING, but merely existing.  From the moment the alarm sounds at dawn, until their weary heads hit the pillows in the wee hours, people are just going through the motions.  Crossing things off the to-do list, paying the bills if just barely, scurrying to meet unrealistic deadlines and goals dictated by others, running hither and thither never really accomplishing anything of great significance.

This year, before it’s too late, I challenge you to slow down and catch the holiday spirit.  Don’t let it go – grab it.  Enjoy the simple things.  Don’t let the intense commercialism fool you; Christmas isn’t about the material things.  Without hesitation, I would trade it all for simpler times and a more serene world.

In the words of John Lennon, life is what happens while you’re busy making other plans.

Each of us only gets one life; make the best of everyday…do what makes you happy; make a difference in the lives of those you love and those you may not even know.

And, Happy Holidays.  Now, go catch the spirit – before it’s too late.