Think Like a Scientist: Inside Alzheimer’s Disease

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Once or twice in a lifetime, if we’re lucky, we have a chance to meet a real life hero.

Greg O’Brien, author of OnPluto: Inside the Mind of Alzheimer’s, is one of those people for me. I had followed his story for years and finally had the privilege of meeting him a few years ago at the UsAgainstAlzheimer’s Summit in Washington. Greg’s courage, humor, and willingness to share his story in such an honest and unfiltered way, combined with his journalistic excellence, are beyond inspiring.

Also featured in this short film is Dr. Rudy Tanzi, arguably the leading AD scientist/researcher in the United States. Dr. Tanzi co-discovered all three early-onset familial Alzheimer’s disease genes and, as leader of the Alzheimer’s Genome Project, discovered several others. In 2014, he and Dr. Doo Yeon Kim, used Alzheimer’s disease genes to create “Alzheimer’s in a Dish,” effectively taking Alzheimer’s research to a new level.

Please take six minutes to watch this moving short film.

Happy Birthday, Mom…

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My beautiful Mom…

I believe beyond a shadow of a doubt that had it not been for Alzheimer’s disease, we would be joyfully celebrating her 81st birthday today.

There are so many things in life that don’t make sense – things that simply defy any sort of logical explanation. We all face situations and experiences that shake us to the core and make us question everything we thought we knew.

At the end of the day, we have a choice as to how, or even if, we will move on. Will we allow the pain to eat us alive, leaving behind an unrecognizable bitter, hopeless shell? Or, will we use it as a path toward personal growth? Will we shut down, mired in pain and toxic negativity? Or will we share our story with the hope that we might be able to make someone else feel just a little less alone?

For the record, neither course will be easy and both will leave us doubting ourselves at times. The pain will never fully die away and regardless of the direction we choose, we are changed forever.

Happy Birthday, Mom. May your legacy live on and may your story continue to strengthen and inspire others. You will forever be my hero.

 

Marilyn’s Legacy – Second Annual Giving Campaign

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As my mom’s 81st birthday approaches, we embark on our second annual Marilyn’s Legacy giving campaign. I’m proud to say that because of your support, since our inception last year, we’ve been able to donate $5,000 to organizations making real strides in the fight to end Alzheimer’s. We’ve written checks to UsAgainstAlzheimer’s, the Cure Alzheimer’s Fund, and The Ohio State University’s Neurology Fund to support Dr. Douglas Scharre’s important research.  It makes my heart happy to know that, although  this horrendous disease cut her life short, Mom’s legacy lives on through our organization.

In addition to supporting critical research, one of our goals for 2017 was to seek out opportunities that would directly benefit individuals living with Alzheimer’s and other forms of dementia. To that end, we recently purchased five Hasbro Joy For All Companion Pets and will be donating them to local memory care units and families. I was introduced to these furry robotic pets by a friend who described her mother’s astounding and instantaneous affection for her new pet. It made me think about my own mother and the special bond she developed with her cat, Holly, as her illness progressed. Pets can have a remarkably positive effect on those living with Alzheimer’s, but having a real one isn’t always possible so we’re excited about the Joy For All companions! 

Will you join the fight to end Alzheimer’s and to support the families currently living its torment on a daily basis? Those who know me well know I find it very difficult to ask for help, but this is one area where that is not the case. We need you. Please consider making a one-time or recurring tax-deductible contribution today by visiting http://marilynslegacy.org/donateWe know you are entrusting us with your donation and we take our responsibility very seriously. We’ve committed to supporting organizations with little-to-no overhead. Two of our most important partners, UsAgainstAlzheimer’s and the Cure Alzheimer’s Fund, deploy every dollar to the goal of stopping Alzheimer’s in its tracks, while their leadership personally covers all overhead expenses. Your contribution will make a real difference! 

Shortly after retirement, 1998

It’s hard to believe that December will mark five years since Mom left us. The pain dulls, but never ceases. This past year was particularly difficult on many fronts, and there were so many times that I yearned for her wisdom – or just a comforting “mom hug.”  Had it not been for this hellacious disease, I believe with every fiber of my being that she would be a happy, vibrant 81-year-old, full of spunk and living life to the fullest. 

Thank you for considering a contribution to support our mission. Our gratitude is boundless.